Petition to Anthem's CEO, Joseph Swedish
Anthem BlueCross BlueShield is Preventing My 12-year-old Son from Having a Better Life
My son, Brody, has a rare form of Duchenne muscular dystrophy. It’s a terrible disease that leads to an early death. Brody is only 12 years old. He has a fighting chance, especially in light of a new drug (Exondys 51) that the FDA approved late last year for all patients with the rare form of this disease. However, Anthem BlueCross BlueShield, one of the largest health insurers, recently announced that they won’t cover this treatment. Rather, Anthem is labeling this life-altering medicine “experimental,” despite its FDA approval. This is unacceptable! Anthem’s creative interpretation of its coverage policy withholds a treatment for Brody and the 1,500 other patients with this rare form of Duchenne affecting their quality of life and ensuring an early death sentence. PLEASE SIGN MY PETITION AND HELP ME SHOW ANTHEM THAT KIDS WITH MUSCULAR DYSTROPHY DESERVE A FIGHTING CHANCE. This drug isn’t a cure, but it’s the first FDA-approved treatment that gives our family hope. It helps slow the progression of the disease by producing dystrophin, a protein that my son needs to use his muscles and that he can’t produce on his own. The fact that Brody is in a wheelchair shouldn’t matter at all – he needs to be able to move his arms, hands and fingers. When did we start telling people in wheelchairs that one’s quality of life – eating, texting, writing, etc. – isn’t important? Should big insurance companies be able to discriminate against kids with disabilities? To Joseph Swedish, CEO of Anthem: You still have time to do the right thing. Maybe your decision was made in haste? Perhaps it was a clerical error or a simple oversight? Did you have an opportunity to speak with any of the Duchenne experts about the value of this drug? Did you even know this decision was made? Regardless, the Duchenne community is deeply concerned. Since my son is unable to walk, we have to be the ones to stand against Anthem for him. The company has time to reverse this decision before it’s too late for kids like Brody. I hope you will join me by signing this petition and sharing with your friends and colleagues on Facebook and Twitter Thank you for standing with me.
Petition to U.S. Congress
Test All Babies for ALD - Vote Yes on Aidan’s Law
Aidan Jack Seeger was a happy, healthy, spirited NY boy who, at age 6, suddenly developed vision and concentration problems. His parents thought he just needed glasses. He was misdiagnosed several times. His sight went entirely, then his ability to walk and talk. Eventually, doctors figured out that Aidan had adrenoleukodystrophy (ALD), a mysterious and deadly brain disease. Eleven months later, he was gone. The worst part? If the disease had been caught early, Aidan could still be alive and well today. Aidan’s parents, Elisa and Bobby Seeger, have since made it their life’s work to save other children. ALD afflicts 1 in 17,000 people, mostly boys and men, silently ravaging their central nervous systems. Results include blindness, deafness, seizures, progressive dementia – leading to permanent paralysis or death. But there’s a solution: newborn screening of ALD. If the disease is caught before the onset of symptoms, it can be treated and, in some cases, entirely reversed. Through the Seegers’ hard work and commitment, newborn screening for ALD became law in New York State. They are now fighting to pass “Aidan’s Law” (S. 2641 & H.R. 4692), which would require ALD screening in all 50 states. The procedure costs less than $2.50 per infant, and the price will go down as it is adopted in more states. We have no excuse not to pass this bill. Help us save our boys. Please join us in calling on Congress to pass Aidan’s Law and require newborn ALD screening in all 50 states. In two years of ALD screening in NY, 46 babies have been diagnosed with the disease —that’s 46 lives saved. Three more states will begin newborn screening of ALD soon, but that leaves people in 46 states in the dark about this silent killer. We must fight for them – for their children. Screening of ALD requires a single drop of blood taken from a baby’s heel at birth, and costs less than a cup of coffee. Please join us in urging Congress to do the right thing, and pass “Aidan’s Law” requiring newborn ALD screening in all 50 states.
Petition to President of the United States, Mitch McConnell, Daniel Donovan, Debbie Wasserman Schultz, Trey Gowdy, Kevin McCarthy, Maxine Waters, Eleanor Norton, Paul Cook, Elijah Cummings, Darrell Issa, Don Young, Louie Gohmert, Lucille Roybal-Allard, Theodore Yoho, Tulsi Gabbard, Adam Schiff, Fred Upton, Eliot Engel, Barbara Lee, Nydia Velazquez, John Garamendi, Joe Courtney, Steny Hoyer, Luis Gutierrez, Eric Swalwell, Mike Honda, Jackie Speier, Keith Ellison, Scott Peters, Sheila Jackson Lee
Ban Child Sex Dolls
Right now, teachers, coaches, babysitters, and neighbors, in every town in America, can purchase lifelike, anatomically correct dolls designed to simulate sex with a child. And it’s perfectly legal. These sick dolls are being imported into the United States and other countries. British police have seized more than 100 already in the UK, and authorities have found that the people buying them usually have child pornography too. Sign this petition to ban the sale and distribution of child sex dolls! These child sex dolls can normalize a pedophile’s behaviors, emboldening them to harm children, as is often the case with those who view child pornography. According to the CDC, 1 in 5 children are sexually abused. One child is too many. Our elected officials need to protect children. That’s why Congressman Dan Donovan from New York is introducing legislation that will ban the distribution and sale of dolls that encourage child abuse. Show your support for this legislation by signing this petition, and help protect America’s children!
Petition to Nicole Jackson Colaco
Allow uncensored birth images on Instagram
In recent years, the birth community has created a presence on Instagram, celebrating the wonder of pregnancy and birth, connecting with other birth professionals, and sharing inspiring stories and educational resources. It is clear there is a huge audience who appreciates this content and wants to see these images. The birth community has amassed hundreds of thousands of followers and continues to grow each day. We contribute to the power and popularity of Instagram's platform, and now we ask for change and support for our cause. Instagram's censorship policies continue to inhibit and discourage our work by allowing photos to be removed and entire accounts to be shut down. Instagram continues to categorize physiological birth with pornography, graphic violence, profanity, and other subject matter it deems too offensive for the public eye. Birth does not belong in the same category as any of these things. This pervasive attitude toward birth is counterproductive to our mission of normalizing birth and releasing it from shame, stigma, and social taboo. The only way we can begin to change the way society views and appreciates birth, is to stop categorizing it as offensive material and start allowing our community the freedom to share uncensored images and information. We ask that Instagram collaborate with its birth community and users of its platform to find a better and more productive solution than censorship. We propose the following: 1. Recategorize all birth related content as educational material, in its own unique category if necessary 2. Allow our community to post graphic images of physiological birth with the images blurred or greyed out, so users can tap to see the images and choose whether to view them. This gives the birth community the freedom to share more meaningful content, and the users of Instagram control over what they see. 3. Continue to provide additional layers of protection to birth related accounts and work with influencers and users to restore content and accounts as needed, including protection from Instagram's shadowban Thank you Nicole and the Instagram team for protecting our accounts and restoring content and pages that have been taken down unjustly. We now ask for your support in this next phase of our mission to normalize birth and begin to heal society's shame and stigma around the miraculous event that has given life to us all. #IGallowuncensoredbirth Sincerely, Katie Vigos Founder @empoweredbirthproject
Petition to Consumer Product Safety Commission, Anna Eshoo, Jackie Speier, Dianne Feinstein
Make play yard mattresses breathable to stop accidental infant suffocation.
It was nap time at our 7-month-old daughter Abigail's daycare. Her caretakers put her down on a play yard mattress pad to sleep, as they had many times before. But this time, Abigail slept stomach-down. An hour later, Abigail was unresponsive and unconscious. She had suffocated with her face against the mattress pad. Doctors tried to save her, but it was too late. That was six years ago, and her loss still haunts us. It turns out there are no laws requiring mattress pads for babies to be breathable. We couldn’t believe this when we found out. We, and her daycare providers, had assumed her sleeping surface must be safe because it was manufactured especially for babies. We took it to court, as we could not stand the idea of another child meeting Abby's fate. As part of our case, we engaged top experts to conduct tests on 30 popular play yard mattresses: results proved that the one Abigail slept on that day had more in common with a plastic bag than a safe sleeping surface, and many other brands are as bad when it comes to breathability. This is unthinkable, and we must demand better regulation of infant products. Please, in Abby’s memory and for all infants who could fall into harm’s way, sign this petition calling on the Consumer Product Safety Commission (CPSC) to require all mattress pads for babies to be breathable. In our tests, some play yard mattresses proved very breathable. But there are no standards or labeling for this, so parents and daycare providers have no way to know which products provide a safe place to sleep, and which ones are no more breathable than a deadly plastic bag. We hope that our story, and the fact that the jury in our court case made history when it chose to hold the mattress pad’s manufacturer accountable for Abby's passing, will result in better regulations when it comes to mattress pad breathability. It would be a fitting and important tribute to our beautiful Abby, and a crucial safety measure for all babies to come. Now that we know the truth, we cannot allow our babies’ lives to be put at risk any longer. Please join us in asking the CPSC to make surface breathability a mandatory requirement in mattress pads for babies.
Petition to US Department of Education
Parents against School Violence
We the People pray that our governing body will hear our request and act. It has become obvious that our schools as a whole are ready and in need of updated protocols for our students that include emotional health, mental health, bullying, and safety. This petition is in no way to take away from the job that schools do in these areas. Instead this petition is to confirm to our schools and teachers our support and assistance in getting them the tools they need. PREVENTION. We feel strongly that prevention to school violence is the number one key as well as the hardest to achieve. · Zero Tolerance Policy needs to be reevaluated. The fact that one student can physically assault another and the victim receives the same disciplinary actions is causing trust issues between school staff and students. Current policy is giving the attacking student a sense of justification that should not be permitted. Victims should not be punished in our Country. · Bullying. Bullying is causing deterioration of the mental and emotional health of students. Administrative staff should by law not be allowed to tell the accused who reported them before investigation has been completed. Again this policy is causing additional insult to the victims and teaching the accused that their actions are acceptable. We would like to see actual investigations into claims of bullying and actions taken to reprimand those claims found to be true. Including expulsion for repeat offenders that limit their ability to return to the public school system only after receiving proper therapy and/or rehabilitation. · Parental Involvement. We believe that everything starts at home. It is our duty to our children and our communities to enforce and support schools and law enforcement at home. The school administrative staff should be required to notify both sets of parents to parties involved within 24 hours. There should be reprimand for parents that do not take their children’s needs or behavior serious. This could be an extension or a department of the current truancy policies in place. We further feel that any parent that does not assist the school in resolving behavior issues or concerns could be charged with neglect and receive the same sentence if found guilty that has already been prescribed by state and local laws. Likewise, school administrations should be held accountable and responsible for any violent act performed by a child who’s parent where not properly notified. · Psychotherapist. We are requesting that each school has either a psychotherapist on staff or contracted to work with each school. Thus, all extreme cases of bullying, teachers and student assaults can be reviewed by therapist. Recommendation can then be made as to what future step to be taken. · Training for teachers in behavioral matters. Each teacher to be properly trained to notice any negative behavioral change, when to report it and who to report to. These reports should be made within 24 hours of staff or teacher witnessing said behavior. Any organization, between the local Department of Children Services to the FBI, which does not properly handle those reports should be held accountable for any incident that may occur due to their negligence after a report has been made. LIVE THREATS. We suggest that all threats have equal disciplinary action taken immediately. We ask that our federal government enforce that each school has at minimum these safety items and protocols in place. · Bullet resistant interior doors for every classroom. Each door to have lock down ability from inside main office and class room. · Exterior doors to be locked down and no persons allowed entering without staff approval. Approval should require student or staff Id for all exterior doors. For schools with detached buildings there should be one staff member at each end to watch over students between class exchanges. Members of the public and parents must enter the main door and only after security clearance. · Security at each location to verify all visitors before they may approach the school. · Each school to be supplied with a minimum of two hand-held metal detectors. · Video Surveillance that is sufficient to cover all hallways and entrances. Surveillance should include the ability to record in real time and record audio. Local authorities should have the ability to login to said system at any time. · Cell phone use while in class should be restricted to emergency communication with parents, calculator use and educational videos. · One security guard to every 500 student. We would prefer Military Veterans in this role. Rather armed or not military trained men and women are properly trained to handle combat situations. · We request that any student that makes a threat regarding bombing or gun violence receives immediate expulsion and may not be permitted to return to public schooling for no less than one full year and obtain certification of therapy and/or rehabilitation prior to being considered for returning to public school system. We understand that schools across this country already have some if not all of these items. However, we would like to see it enforced for those that do not. We understand this may mean funding be raised through fundraisers, taxes, and government funding. We must make our schools safe and hold all parties involved accountable.
Petition to Jay Inslee
Change the current run away policy!
For 5 years my now 16yr old son has run away more times i can count. Without this law, the police can do nothing!!! As parents we are obligated to report the runaway, but thats where it ends. Unless your child does something illegal they wont look for them let alone pick them up. Im pushing for a full evaluation once picked up. (I understand some kids runaway for a good reason, this would help them!) Please help these kids who feel so troubled they feel running away is the only option!!
Petition to John Allison
Lockdown Drills for Olathe, KS Elementary Schools
While I appreciate the districts proactive efforts for the middle and high schools, they are burying their heads in the sand when it comes to the elementary schools. This vulnerable age group does not participate in any lockdown, code red, intruder, etc. drills. The teachers do some training with A.L.I.C.E. but nothing too in depth. Parents need to start asking questions, getting involved, and not make the mistake of assuming that all of the Olathe schools are proactive with the safety of our students. Blue Valley, Shawnee Mission, and many other districts have their grade school aged students participating in drills, so why isn’t Olathe? After finding this out, I began asking questions and was told that the district didn’t feel the elementary age students were cognitively capable of performing these drills. That is not only unacceptable but also false. According to the National Association of School Psychologists (2017), “frequent and varied practice, training, and discussion activities aid the development of readiness, providing staff and students the means to quickly access and apply their knowledge" (p. 6). Furthermore, according to the NASP (2017), "lockdowns involve locking the door, moving students out of sight, and requiring students to remain quiet within the room" (p.4) and “traditional lockdowns should remain the foundation of an options-based approach..." (p. 1). Finally, the NASP (2017) also stated, “available research supports the effectiveness of lockdown drills implemented according to best practices...” (p. 1). If young children are capable of performing the steps needed for fire and tornado drills, then they are cognitively capable of executing a lockdown type of exercise. So, let’s make a change to become more proactive with our youngest and most vulnerable citizens. I ask, as a concerned parent, that you, please sign this petition for implementing age-appropriate lockdown drills in the grade schools. I would rather have children prepared than become another statistic as I’m sure the Sandy Hook parents would have wanted too. Reference National Association of School Psychologists (April 2017). Best practice considerations for schools in active shooter and other armed assailant drills. Retrieved from http://www.nasponline.org/resources-and-publications/resources/school-safety-and-crisis/best-practice-considerations-for-schools-in-active-shooter-and-other-armed-assailant-drills