Topic

Health and Safety

1,179 petitions

Update posted 1 day ago

Petition to Francis Collins, Alex Azar

Increase Funding For ME/CFS So We Can Find a Cure

I am only 31, and yet, simple tasks like taking a bath completely exhaust me. This is because I am one of millions of people worldwide who suffer from Myalgic Encephalomyelitis (ME/CFS), a complex, multisystemic disease that causes disabling symptoms like chronic pain, cognitive impairment, exertional intolerance, severe weakness and crippling fatigue. Many days I am too weak to do anything but walk to the bathroom and back to my bed. Before I became sick, I was able to attend LSU, study abroad, enjoy SEC football and earn a degree in Journalism. Now, just a trip to the grocery store can land me in bed for days. I've lost my independence and take 25 pills a day just to manage the pain and symptoms of the illness. I have lost my life as I knew it. Health Agencies have dismissed this disease for decades and failed to take the health of millions of sick people seriously. There are no FDA approved treatments or cures for the disease on the horizon, which is the direct result of a major lack in funding for biomedical research. In the 2016 federal budget, the NIH allocated $6 million toward studying ME/CFS. More than double that amount was spent on male-pattern baldness. Meanwhile we are suffering, some of us bed bound, with little hope and our futures up in the air. We can do better. Please stand with me and the millions suffering with this life-sucking disease in demanding that Francis Collins keep his promise and that the NIH drastically increase their allocated funding for ME/CFS research. The burden of this disease is huge, on families and the economy. It costs our country billions every year in lost productivity because more than half of us are too sick to work. Families savings are drained as most insurance fails to cover the high cost of longterm management.  There are so many others like me; once living productive lives with families and promising careers. Now we're stuck with an orphaned disease and our pre-sick lives are just a memory. Some patients are so severely ill, they are confined to dark rooms, unable to tolerate sound, talking, or light. They cannot walk and some are unable to eat. They aren't "living" they are just hanging on. And it doesn't have to be this way. I started this petition because people suffering from ME/CFS just want our lives back, and that will only happen with an effective treatment and eventual cure. With your signature, we can hold the NIH and congress accountable for taking our disease seriously and honoring our request to increase the NIH research budget to $100 million for ME/CFS funding. We can also restore hope to millions world-wide that they may live again, including me and my dog Monty. Thank you.    #WeCanDoBetter Let's do it now. Read about my weird sick life at 25pillsaday.com  Visit millionsmissing.org for more information about upcoming protests.  

Mary Gelpi
50,630 supporters
Update posted 1 day ago

Petition to Xavier Becerra, Elizabeth Warren, Hillary Clinton, William P. Brough, Evan Low, Jim Wood, Federal Trade Commission, Alexandria Ocasio-Cortez

Stop abusive Hotel Practices

  Ever had a Bad Hotel Experience? Planning a family trip can be pretty stressful and the last thing you need is a bad motel / hotel experience. However, its becoming more and more common that you don’t get what you pay for when it comes to booking online. Whether its a change in price, a completely different room, a much lower quality than you expected, or advertising items that are not working or not there at all.  TruTV features a short video on how illegal business practices are even spreading to new businesses like Air BnB and are leaving consumers to self enforce the laws. Adam Ruins Everything - Why Your Airbnb May Be ILLEGAL Amazon has been flooded with fake reviews and manipulated product ranking YouTube has also been called out for being flooded with fake views Youtube spokeswoman admits, "There is room for improvement" when it comes to warning users about fraud and abuse.  This is not to mention the fake millionaires selling the secret on YouTube and defrauding many consumers out of there money through deceptive marketing tactics. For example, Sam Ovens (currently running many ads on YouTube for his Consulting.com business) presents himself as a millionaire who will teach you the secret, for a very high cost of course. His LinkedIn Profile states that he moved to New York and made $20 Million. The profile also states he started his NY Business in 2013, however a quick search on the NY Corporation and Business Entity Database reveals the company Consulting.com was started in March of 2017. Indeed, archive.org confirms his website was in the development phase in March of 2017. He is one of many on YouTube who extremely misrepresent themselves in order to gain consumer confidence and eventually, their cash! And what is being done about it? When congress demands recommendations, the FTC is too slow in acting to adequately defend consumers. So here we are. What are your Rights as a Consumer? There is a large gap between consumer rights violations and consumer rights awareness. Our proposals seek to close this gap. Proposed Changes; Require online businesses to display the Better Business Bureau rating of their organization or the organization they are marketing. Release a smartphone application similar to the Better Business Bureau’s smartphone application in order to simplify access to consumer rights information AND provide ez file for complaints Our goals with each of these proposed changes; Show consumers a rating that has not been manipulated by travel agencies, property owners, paid reviewers, affiliates, etc. Level the playing field by making consumer rights information and complaint systems easily accessible according to modern standards. i.e smartphone applications We Are Contributing to an Ongoing Effort The Federal Trade Commission have been directed by Congress to produce a report regarding recommended enforcement for online hotel booking markets engaging in deceptive marketing. I want to use this opportunity to bring attention to the larger problem at hand and make recommendations that are in the best interests of the consumer. Click Here to Read the FTC's full report  Although their report has already been provided to congress, I want to show support for what the citizens feel should be the response. Our hope is that the report will be updated to reflect the proposals supported by the people.  Our dedication is to work with our government, by showing mass support for citizen approved proposals that accurately reflect our needs. Additionally, we want to show our government that we desire a solution that is up to date with todays on-demand culture.  According to statista.com, “In 2018, 52 percent of all website traffic worldwide was generated through mobile phones.” It only makes sense that our government provides information about consumer rights in a manner that is consistent with how citizens receive information today, which is through our mobile devices.  We are Louder Together We live in a world where anything can be publicized and its because of social influence, power is being given back to the people. Let us use our voice together as one and fight to defend our families from illegal business practices. ====== The Story Behind the Petition Our family was planning a reunion and we decided to book a room with Oceana Inn Santa Cruz through booking.com. At the time of reservation, booking.com had Oceana Inn listed with a 7/10 rating. Upon entering the room, we immediately noticed it was not the room advertised on booking.com. I immediately asked for the correct room or a refund. Both were denied.  After my experience with the motel, I went to yelp.com and google.com to see Oceana Inn Santa Cruz reviews which ranked the motel at 2/5 stars, which equates to 4/10 stars. There is a significant distinction between the quality you would expect at a 7/10 motel compared to a 4/10 motel. After reading several Yelp reviews for this motel, it became clear that this business has continued to operate for some time now despite several public complaints regarding illegal business practices.  What’s the problem here? Consumers are not trained to handle complaints using the proper channels within our government. Instead we are systematically trained to rely on the private sector to handle our complaints and so we turn to online review platforms such as Yelp and Google as a way of getting some resolution to our problem by leaving negative reviews that reflect an honest experience.  But who is responsible for monitoring all the bad reviews and doing something about it when there is clearly a pattern of illegal business practices such as false advertising, bait and switch, predatory lending, and so on? Government needs to catch up with how people have decided to speak out! People have been preconditioned to speak out on platforms that do not have the consumer’s interest at its core. That is why I propose the following; Require online businesses to display the Better Business Bureau rating of their organization or the organization they are marketing. Release a smartphone application similar to the Better Business Bureau’s smartphone application in order to simplify access to consumer rights information AND provide ez file for complaints Our goals with each of these proposed changes; Show consumers a rating that has not been manipulated by travel agencies, property owners, paid reviewers, affiliates, etc. Level the playing field by making consumer rights information and complaint systems easily accessible according to modern standards. i.e smartphone applications Our dedication is to work with our government, by showing mass support for citizen approved proposals that accurately reflect our needs. Additionally, we want to show our government that we desire a solution that is up to date with todays on-demand culture.

# DefendConsumers
2,943 supporters