Petition to UK Parliament
MAKE FIBROMYALGIA A DISABILITY
Suffers with fibromyalgia struggle with the condition on a daily basis, they often do not receive the medical help or support that could be provided. America take the lead with Fibromyalgia research and treatment but the UK are not following suit. As a fellow fibro sufferer I believe it is time that we all join together and fight to get the debilitating condition recognised in parliament as a disability at last, also to gain better treatment and support. please visit the web page at: www.letsgetfibrointoparliament.simplesite.com Facebook page at: https://www.facebook.com/fibrogetintoparliamentmakeachange/?rc=p #FIBROFIGHTERS #STANDUP #MAKETHEMHEAR
Petition to Medicines and Healthcare products Regulatory Agency (MHRA)
Remove the contraceptive pill 'Rigevidon' from the NHS
This combined contraceptive pill has caused myself and many others to develop serious health complications. After just 8 weeks on this pill I developed a blood clot in my brain and early onset stroke, numerous tests have shown there was no causing factor besides this pill. Whilst I recovered, many other young girls have died of blood clots as result of taking this specific pill. I feel very passionately that this pill should not be prescribed to anyone. The dangers are becoming more apparent and more and more stories are coming out of girls who have developed blood clots. Many alternative combined pills are available which I believe renders this pill an unnecessary danger that should be removed from the drugs market entirely. I would really appreciate your support in making this change happen and preventing any more potential fatalities that could occur from a drug that we would not expect to be harmful.
Petition to Simon Harris TD Minister for Health
The reduction of Adult and Paediatric referral, appointment and Scoliosis Surgery lists.
Scoliosis is abnornormal curvature of the spine. It can be present at birth, develop in infancy, preteens , teenagers and into adulthood. At present the waiting time to see a consultant here in Ireland can be up to 2 years for an adult or child. There is also a 15 month - 2 year wait for Surgery for spinal fusions and growing rods. Delays in Scoliosis Services can - Lead to missed window treatment times I.e bracing, casting in children. impact on the health of the patient - resulting in breathing difficulties, not being able to walk, mental health issues and no quality of life. Result in poor corrections Extended theatre time and blood loss Longer recovery times post op 15 - 24 months is TOO Long for a Scoliosis Patient to wait. Time is not on their side Please sign our petition and help us make a difference. Thank you
Petition to Minister for Health Simon Harris
Reduce scoliosis surgery waiting times and give our children a better quality of life
Scoliosis is an abnormal curvature of the spine. In Ireland, children are waiting up to 2 years for vital scoliosis surgery. Their quality of life is reduced because of this wait. Scoliosis can affect the child's heart and lungs, not to mention excruciating pain which can also lead to mental health problems. Why let a curvature progress and put a child through so much suffering when it makes more sense to deal with their spinal curvature sooner rather than later. Simon, help our children and make a change! Early detection and intervention are key!
Petition to Department of Health
To ensure a coordinated package of aftercare for all families following the loss of a baby/child, which will involve Midwives, GPs and full support networks.
In December 2012 we lost Charlie Arthur Curtis to Potters Syndrome after 19 minutes of life. Whilst in hospital the care we received was excellent, however once we stepped outside the hospital doors we found that there was little or no support out there for bereaved/grieving families. The support we received fell well below any standard a grieving family should receive. We want our experience to help improve the support available to other parents and families in the future. In Leeds alone there are 32,000 people awaiting bereavement counselling. The wait for counselling can be anything from 6 - 18 months. Surely this cannot be right. Bereaved families need support as soon as they leave the hospital. If each family were to be given a carefully coordinated personalised aftercare package their journey through grief could be made easier. We need your support to help get the Health Department to change their bereavement services throughout the UK. We know we can make a difference with your support. Already we have been able to generate much discussion within the NHS in Leeds.
Petition to Rt Hon Jeremy Hunt Secretary of State for Health, Theresa May MP
Automatically become a UK Organ & Tissue Donor with the option to Opt Out
My name is Lucy Ryan and was incredibly lucky to receive a life saving heart transplant 23 years ago aged 2 years-old. I am also fortunate enough to have a lot of fellow transplantees as friends due to someone somewhere being generous, selfless and brave enough to donate either their own organs & tissue, or those of a relative at an unimaginably difficult time. But heartbreakingly I have lost friends along the way who waited for a transplant they never received. 96% of the UK population have expressed a desire to donate their organs yet only 33% are signed up to the current Opt-in system. (The Opt-in system is where to become an organ and/or tissue donor those of us living in Scotland, Ireland and England must make the effort to sign up to the organ donor register.) This is all well and good, but despite it being so simple and fast to sign-up by for example spending two minutes online, many of us still have not “opted-in”! This is even with all the amazing work charities and organisations do to raise awareness of the need for more donors. I know from my own experience it is often something we keep meaning to do, but it never quite reaches the top of the “To-do” list! In the past few years I have been becoming increasingly frustrated with the growing organ donation crisis and decided it was about time I took some action. I researched the best way to try to improve the situation and consequently I passionately believe the introduction of the “Soft Opt-out” system in all of the UK (alike Wales did in December 2015) is what we need (Scotland & Northern Ireland have already proposed the same idea). Once the system is reformed we will wonder why on earth it took us so long to do it like banning smoking in restaurants! The Soft Opt-Out system would be a massive leap forward, because everyone is automatically signed up as an organ & tissue donor unless they decide to “opt-out”. Also, if no objection was registered during their life their relatives are consulted at the time of death, and if there is still no objection raised it is only then any organs and tissue would be used for donation. II believe the majority of those whom do not wish to become organ donors are far more likely to make the effort to opt out, than the 63% of the current UK population who would like to become organ donors but have not yet "opted-in". By becoming a donor you can save almost as many lives as cats apparently have, and that is not including the fantastic life enhancing effects donating your tissue and corneas can have on recipients. 3 people die Every day waiting for a transplant—Let’s all Opt in to Opt out and end the donor crisis! Thank you for taking the time to consider my proposal and hopefully sign up. With your support we can make this happen. Yours Sincerely Lucy Ryan
Petition to Anne Marie Bond, Lisa Antrobus
SAVE JUBILEE GARDENS, BRIXHAM.
Gordon Oliver, Mayor of Torbay has identified Jubilee Gardens, Brixham be placed on the Assets List for Disposal. Once on the list Jubilee Gardens could be sold to a developer and our green space lost forever! Jubilee Gardens, otherwise known as Land adjacent to 4 Berry Head Road, Brixham. To be auctioned off to a potential developer. Tell the Mayor 'please do not place Jubilee Gardens on the Disposal of Assets List' and help Save this area for future generations to enjoy. Contact Kevin Mowat, Torbay Development Agency, 3rd Floor, Tor Hill House, Torquay, TQ2 5QW.
Petition to Richard Wilson
Reinstate full access to the Harpsden playing field for local residents
Please sign this petition to urge Richard Wilson, Chairman of the John Hodges Trust For Harpsden Hall, to live up to the Trust’s primary duty and reinstate the use of Harpsden playing field for the local inhabitants. The playing field in Harpsden, at the bottom of Drawback Hill, which has been used by local residents and sports clubs alike for decades, has now become closed to local residents because the Trust has given exclusive access to AFC Henley. Local inhabitants have now been locked out from September to April, except for the small areas outside of the marked up football pitch. A tiny strip. And yet, one of the Trust’s primary duties is “the provision and maintenance of playing fields for use by the inhabitants”. The Trust Chairman, Richard Wilson, says that giving AFC exclusive rights of access satisfies this duty – we disagree. Many of you will have played on this field with your children and/or as children. You may have used, and continue to use this field for many recreational purposes. All that has now been officially stopped. The signs are about to go up around the field telling you to “KEEP OFF THE PITCH”. AFC’s Chairman, Trevor Howell, has already been patrolling the field, ejecting local residents. AFC themselves have two main sites – one by Tesco and now, as tenants, our Harpsden playing field – a field which is and has always been intended, by the terms of the Trust, for the use of inhabitants of Harpsden and surrounding areas. They are both locked up and unavailable for general recreation, exercise and fun outside of the AFC training and match fixtures. You can help to change this by supporting the call to reinstate free access to the whole Harpsden playing field for the whole year. The teams AFC use the field for are the U16 and U18 boys. This is a very narrow group of people – you have to be a boy, you have to be 16-18 years old and you have to be an AFC Henley player. Hardly representative of the makeup of the local population, their gender and interests. There is no objection to AFC or any other club using the field, but not exclusively. The field has been used by the local inhabitants for informal recreation together with sporting clubs for many, many years, all throughout the year. No club has ever exercised exclusive rights – they have been happy to share as have the residents of the local area to have clubs use the field. Nobody even thought about it being any other way. Did Richard Wilson, Chairman of the Trust ask the local inhabitants if it was OK to rent the field out under such exclusive conditions? No! He, as Chairman, is therefore failing in his primary duty because the Trust is only permitted to rent out the playing field if it is not used by local inhabitants. Well, we do use it and want to continue to do so – the whole field – the whole year through. Please sign our petition. Act now to reinstate full access, or lose it. Map courtesy of Google