Petition to Public Health England
Public Health England to fund a Sepsis awareness TV advertisement
Last year my Grandad, Lester, suddenly passed away after developing Sepsis following a chest infection. Sepsis is a life threatening condition that arises when the body’s response to an infection injures its own tissues and organs. Sepsis leads to shock, multiple organ failure and death especially if not recognized early and treated promptly. Despite being visited by a doctor and having his symptoms explained by my Grandma (as he was unable to himself), the doctor failed to put two and two together and recognise the signs of Sepsis. Lesters condition became rapidly worse and he was taken to hospital the next day where, again, Sepsis was not suspected until it was too late. He passed away later that afternoon, just hours after phoning home to his wife to say that he had had a shave and was to return home to her soon. This cruel condition snatched him away from us before his time and I believe with greater awareness of the symptoms of Sepsis this could have been avoided. Until now, none of my family had even heard of the condition, let alone know what symptoms to look out for. A main symptom being the inability to pass urine (alongside with fever, a change in mental state - confusion, aches and pains, amongst others...). My Grandma reported this to the Doctor who visited Leister at home, however this did not ring alarm bells to the professional. Leister also had a very high temperature, despite saying he felt cold. He was unable to move from his armchair from where he sat, in and out of consciousness, all night long. My Grandma with him, feeling completely helpless, even after a Doctors visit. As upsetting and frustrating as his passing was it has given me a passion to make the general public and primary healthcare professionals more aware of this condition, the symptoms to look out for and what to do to treat it. I think a Television Advertisement would be the most effective method of spreading this message. One such as the Act F.A.S.T, Stroke awareness campaign, which I believe is highly effective at making the public aware of strokes and to be able to recognise symptoms. This campaign is calling on Public Health England to fund such an advertisement. Sepsis kills around 44,000 people a year - that's more than bowel, breast and prostate cancer combined. It affects people of all ages and without been recognised and acted upon fast often results in fatalities. Please help make a change to stop this silent killer. See Sepsis, Stop Sepsis, Save Someone.
Petition to UK Parliament
We demand Alder Hey to release Alfie Evans to a hospital of his parents' choice.
Alfie Evans is at Alder Hey Hospital in the PICU. He was born in May 2016 and has been hospitalised continuously since December 2016, dealing with chronic seizures of an undiagnosed disorder. Having given up on him as early as February 2017, and refusing to do a standard life-enhancing tracheostomy, the hospital has applied to the High Court to remove parental rights and withdraw ventilation to end Alfie’s life. Alfie was born healthy and on time. We were so happy to have him with us going home, our beautiful boy. He grew and fed well, but was exceptionally sleepy and didn't meet milestones. After a couple of weeks we noticed Alfie wasn't doing things he should be, like lifting his head up, grabbing his dummy, eating his hands, etc. We also noticed he was doing a jerking movement with his hands, arms and legs, and his eyes would roll up. Alfie often had his hands clenched into a fist. We took him to doctors three times, who said he was lazy and a late developer. Months went by and Alfie went backward instead of forwards. He started making more jerking movements and wasn't himself at all. Finally Alfie became agitated, crying inconsolably. Then Alfie got a chest infection and landed in the hospital. The infection led him to have a myoclonic jerking spasm, and Alfie struggled to breathe. This is when he was first put on life support, the worst nights of our lives. They told us in January 2016 that Alfie wasn't going to make it, so we had him christened. We thought we were going to lose our son and our hearts were desperate. But Alfie had other ideas, he managed to beat the infection and start breathing on his own again. He was moving and trying to open his eyes. Unfortunately, Alfie caught another infection and went back on the ventilator. Time and time again, despite not being diagnosed or treated for any suspected underlying disease, his seizures being somewhat controlled by a heavy cocktail of sedating drugs, Alfie has come back over and over from every infection and challenge. The hospital claims that Alfie is “insensate” and unaware of any stimulus or irritation, which is proven wrong in hundreds of videos, against the odds of a heavy cocktail of anti-seizure drugs with sedative effect. Daily, Alfie moves, stretches, yawns, responding to tickling and noise and cuddling. And yet even with all this, with loving parents (we are only 20 years old) who persevere through great strain and leave no stone unturned for Alfie, with support around the world, Alder Hey wants to turn his life support off. We have found another European hospital willing to help Alfie move forward, get a tracheostomy and PEG tube and get off heavy sedation, and to try to diagnose and treat him. We’ve been told several times by outside doctors that Alfie can even eventually be able to go home with a tracheostomy and direct stomach tube (PEG). Yet Alder Hey keeps moving the goalposts. They have gone from telling us they would allow transfer if a hospital was found, and putting us through a long process of proving our option was viable, to admitting they would not allow any such transfer. The pressure by the doctors to end Alfie's life has been unrelenting. Now they have resorted to legal force, to remove parental rights and end Alfie's life, going to court behind our backs when we were still willing to go through mediation to find a positive solution. We are relieved that after significant pressure was exerted by our legal team, the hospital backtracked and agreed to the fair mediation they denied us before going to court.Many people have seen Alfie's determination and strength as he battles through every single thing that is thrown at him. Alfie is a beautiful boy, growing big and solid, who is showing every possible sign that he could to tell us that he wants to get better and that he is still here to fight and live his life with whatever help we can give him. Doctors can’t explain away the signs Alfie gives of fighting on. Disabled and sick children deserve care, not a hastened death. We Alfie’s parents have the right and responsibility to make decisions to save him and move him to a hospital who will honour those decisions. Give Alfie his rightful chance at life!
Petition to Theresa may/uk goverment/secretary of state (conservative party), chris leslie, vernon coaker, nick clegg deputy, Jeremy Hunt, Theresa May MP
CHANGE THE GUIDELINES USED AT HOSPITALS WHEN DEALING WITH AUTISTIC CHILDREN HARRY WAS LET DOWN THIS CANT HAPPEN AGAIN WE ASK THAT THESE CHANGES WILL FOREVER BE KNOWN AS HARRYS’ LAW
my 4 yr old autistic son lost his life this can never be allowed to happen again this petition is to run along side a paper petition and an epetition already in progress We were in a+e and the ward of the hospital for a combined time of just under 9 hours the dr in a+e said harry was 8% dehydrated and needed to be put on a drip and have blood tests taken and even prepared him with numbing cream and sent him to the ward we entered a+e at 8 mins after 12pm we were on the ward for just about 2pm and left just before 9 pm all this time we kept asking for the tests to be completed The heart murmur was detected on the ward at approx 4pm His blood tests taken after he passed away shows high levels of potassium high levels of sodium some liver and kidney problems and some other abnormalities when I asked if they would have been detected on the friday or saturday I was told yes I also asked if he could have been treated and again I was told yes So it seems the dr in a+e may have given the right diagnosis but the drs on theward just never followed through on the tests and treatment the full story is below my little boys story on the 18th June I attended the gp's with Harry as he had been ill for a few days and his mum and I were growing concerned as although the vomiting and diorreah had stopped he was getting no better within himself. We were seen by dr layzel who said that he had a tummy bug and a temperature and although he had lost some weight this was not much of a concern and advised that we should continue giving Harry paracetamol and she made a further appointment for the Friday so that harry could be checked again as the weekend was approaching. on the evening of the 19th June Harry's' mum and I were still concerned so we telephoned the 111 service and we were advised to take harry to the out of hours service at nems on derby road which we did we were seen by the doctor and again told that he had a temperature and a tummy bug and as we already had a gps' appointment the following morning we were advised to continue with the paracetamol and attend the appointment the following morning. on the 20th June we attended the gps' appointment and we were seen by Dr Holly Barret who checked harry over she also asked dr layzels' opinion as she had seen him previously and they both said they weren't too concerned but as the weekend was upon us she asked that I take harry to A+E at the QMC so that a paediatrician could check him over. we arrived at A+E at approx 12pm there was a short wait and then harry was seen. The nurse that saw harry took his obs and we explained about his severe autism which made him anxious and distressed when in unfamiliar environments she said that his temperature was a little high and his heart was racing his blood sugar was fairly high at 9.4 and harry was given the priority level of a category 2 to see the doctors. after the doctor had seen harry we were informed that they wished to tube feed him however harry started to take nutrition orally via a syringe and after a while harry was given a fairly large dosage of ibuprofen when I questioned this i was told that larger doses can be used within the hospital as they dose on weight. Harry had cream applied to both arms and legs as we were told blood tests were needed. harry was then sent up to the children's' assessment unit on arrival we again explained about the severity of his autism and also about his previous problems with his heart when he was a baby and again his obs were taken. we were told that his heart was again racing and that a murmur was heard along with a gushing noise and we were told that an ECG and blood tests were going to be undertaken. we were left sitting in the ward with a very distressed child (due to his autism) for hours we kept asking about the murmur and in total 3 doctors heard this so again we kept asking about the tests as harry was becoming more distressed and had the cream that numbs on both arms and both legs and were told that it was all in good hands, in total my son was left for over 8hours with nothing practical being done we also had to tell the Doctors on more than one occasion that he had thrush in his mouth. Harry was becoming more and more distressed and the test were not being undertaken so we asked again and again but nothing was done. eventually we asked if we could take Harry home for the evening as he was very distressed and would not settle this was agreed with the Doctors with the plan that we return Saturday morning which we did, when home Harry was asleep within 15minutes. on out return Saturday morning still no tests were carried out only his obs and weight we were then discharged by the Doctor and told to take him home and given prescription and told to carry on feeding fluids orally via a syringe which we did. On Sunday he was much the same and then on the Monday he passed away. during his short stay in hospital we were left for hours with a very distressed autistic boy and very little was done we repeatedly asked about the murmur and about his heart and repeatedly asked about the ECG and blood-tests they had said were needed yet these tests were not carried out despite all of our questions nothing was being done. all the above is why we feel that his care while in the hospital was highly inadequate and that the hospital didn't listen and take our concerns seriously instead they did very little for over 8 hours if they had listened to us and had done the tests that we were told were needed i truly believe that my son harry would have received the correct treatment and would still be with us today. we have also received a discharge letter which mentions a diagnosis of gastroenteritis we were never told this also no medications listed although a prescription was given for harry by the doctor on the ward. the system needs changing and we are eager to make sure that it does so this can never happen again with a different system my son would still be alive today. Harrys law 1: On arrival to A&E status elevated to level 2 so less waiting time to cut down stress levels 2: Each childrens department to have atleast one Dr and nurse trained in autism awareness on duty at all times and they be assigned to specific children with special needs and that they have periodic updated training 3: Experienced play workers to be made more readily available 4: Quicker transitions from one department to the next 5: Side rooms made available to cut stress levels 6: Notes and identity bracelets coloured as a clear indicator of special needs 7: Parents always to be approached first 8: Any treatments or tests needed to be done swiftly 9: Do not leave autistic children unattended at any time 10: Make sure any appropriate treatments or issues are dealt with before discharge 11: Make sure parents have all relevant information during the stay in hospital and on after care on discharge 12: Make Drs aware and accountable for their own actions 13: Give any willing parents a questionnaire so that the hospitals can learn from them
Petition to Theresa May, Jeremy Corbyn MP, Tim Farron
Petition to get Mental Health Education on the curriculum
www.itaffectsme.co.uk #itaffectsme wants to see Mental Health Education put on the National Curriculum. To arm our children with knowledge, understanding and compassion. 1 in 4 people suffer with mental illness and 50% of those are established by age 14. We teach our children symptoms of chlamydia and gonorrhoea so why not depression, OCD and anxiety? As a teacher and I come across young people with mental health issues and anxieties regularly. If they were taught to talk about their feelings in the same way they might if they had a tummy ache, it would help remove the stigma that’s stayed attached to mental health for too long. That’s why I’m calling on party leaders to include adding mental health on to the school curriculum on to their manifestos.An independent report published this year found that around three-quarters of people with mental health problems received no help at all, proof that mental health is still not taken as seriously as physical health. If the government wants a healthy and happy Britain it needs to flood the NHS with funding, and respect us by being honest, not spinning the truth about ‘new funding’. People's lives are being ruined by lack of mental health services. We need to get mental health education on the curriculum to give our children a future where they are unafraid to speak out and ask for help.
Petition to Rt Hon Jeremy Hunt Secretary of State for Health
Let’s All Opt In to Introduce the Opt Out Organ & Tissue Donation System
My name is Lucy Ryan and was incredibly lucky to receive a life saving heart transplant 25 years ago aged 2 years-old. I am also fortunate enough to have a lot of fellow transplantees as friends due to someone somewhere being generous, selfless and brave enough to donate either their own organs & tissue, or those of a relative at an unimaginably difficult time. But heartbreakingly I have lost friends along the way who waited for a transplant they never received. Imagine waiting to live, being on the transplant list unable to lead a normal life just waiting in hope for that bittersweet call for months even years! 96% of the UK population have expressed a desire to receive an organ donation. If they needed one yet only 36% are signed up to the current Opt-in system. (The Opt-in system is where to become an organ and/or tissue donor those of us living in Scotland, Ireland and England must make the effort to sign up to the organ donor register.) Yet despite it being so easy to sign-up e.g. spending 2 minutes online, many of us still have not “opted-in”! Even with all the fantastic work charities and organisations do to raise awareness. I know from my own experience it is often something we keep meaning to do, but it never quite reaches the top of the “To-do” list! In the past few years I have been becoming increasingly frustrated with the growing organ donation crisis and decided it was about time to do something. I researched the best way to try to improve the situation settled on the introduction of the “Soft Opt-out” system in all of the UK (alike Wales did in December 2015) is what we need (Scotland & Northern Ireland have already proposed the same idea). Once the system is reformed we will wonder why on earth it took us so long to do it like banning smoking in restaurants! The Soft Opt-Out system would mean would everyone automatically becomes an organ donor as an adult unless they decide to “opt-out”. Relatives would be consulted at the time of death, and to see if their loved one ever ever expressed a wish to opt out but for some reason hadn’t. I believe the majority of those whom do not wish to become organ donors are far more likely to make the effort to opt out, than the 60% of the current UK population who would like to become organ donors but have not yet "opted-in". By becoming a donor you can save almost as many lives as cats apparently have. 3 people die everyday waiting for a transplant—Let’s all Opt in to Opt out and end the donor crisis! Thank you for taking the time to consider my proposal and hopefully sign up. With your support we can make this happen. Yours Sincerely Lucy Ryan
Petition to Jeremy Hunt, Steve Barclay, Lord Prior, Nicola Blackwood MP, Nadine Dorries, Jeremy Corbyn MP
The NMC and it's subtle destruction of the nursing profession
Nursing must have a regulator. However as we have seen in recent media coverage the current system is failing miserably. It is neither protecting the public or the registrants and ultimately is putting both group's lives at risk.The current systems leaves it wide open to abuse by vexatious managers or colleagues with a grudge. Many registrants are referred on allegations that are not evidenced based and even if the NMC finds no case to answer at the end of their investigation the damage has already been done. The NMC decisions affects nurses who have previously had no issues raised and unblemished careers, many for a number of decades. The profession is struggling to retain experienced nurses and midwives. Recent figures show up to 45% increase in nurses leaving the profession than joining it. The current Ftp process has resulted in nearly 10,000 registrants being removed from the register since 2008 and currently a registrant has a 1 in 20 chance of being struck off. Many who go through the FtP leave the profession as a result. In a small survey we conducted has found: - 62% of respondents stated that their mental health was the most affected by referral to NMC- 64% stated they did not know where to go for support- 100% stated having difficulty sleeping- 90 % stated poor self confidence- 80% stated difficult trusting people- 77% stated they had feelings of paranoia More than half admitted to having some suicidal thoughts and all stated that they were never the same as prior to referral. The current system creates fear and a lack of transparency as nurses are in fear of their regulator. A process of luck and decent employer determines whether you are called in-front of the NMC. Some moves have been made with the Morecambe Bay Investigation and the PSA report into it https://www.professionalstandards.org.uk/docs/default-source/publications/nmc-lessons-learned-review-may-2018a0851bf761926971a151ff000072e7a6.pdf?sfvrsn=6177220_0 however so far nothing has changed in the process and daily between 30 & 80 registrants ( nurses and midwives ) undergo hearings at the NMC at a cost of £13,000 per case. We need 100,000 signatures for this to be raised in Parliament and taken seriously as an issue affecting and destroying our profession. PLEASE sign and share and share and let's get it changed for the better as ultimately the only people who will suffer are our patients.
Petition to Health minster Matthew Hancock, Nick Clegg MP, Andy Burnham., Daniel Poulter
Secretary state of health Matthew Hancock MP Give more funding for brain tumour research.
Brain tumours are on the increase, and in the last 30/40 years there has been no breakthrough in treatment to prolong life. The out look of a GBM is grim. People under 40 die of a brain tumour,more than any other cancer. Approx every £100.00 spent on all cancer research, brain tumour research only gets £1.25p. I started this petition in 2012. Its now 2018 nothing has changed or advanced in any way, this is appalling, and shameful.
Petition to The Rt Hon Chris Grayling MP, Baroness Sugg CBE, Henry Smith, Huw Merriman, The Countess of Mar, Theresa May MP
Stop contaminated cabin air in aircraft!
Every day, many millions of people board an aircraft, which has become a normal way of transportation in every day life. But what they do not know is that this flight could land them in a hospital or with debilitating illness because of exposure to toxic cabin air! It often begins with flu like symptoms: limb pain, dizziness, fatigue and nausea. Long-term damage to the nerves, the lungs, the cardiovascular system or cognitive impairment may follow. How do I know this? Because I am one of a growing number of people that has been affected. I had to end my flying career in 2016 following 2 onboard fume events within 1 year (2014/15) and the cumulative effects of 20+ years flying. My health had deteriorated badly and tests showed that chemicals used in aircraft engine oil were present in my body. My GP advised me to stop flying. You as a passenger, but also pilots and flight attendants are at great risk to be exposed to neurotoxic breathing air on any flight in most aircraft! The World Health Organization recently published a new study about aircraft cabin air quality and the illness related to being exposed to the toxic fumes: "AEROTOXIC SYNDROME: A NEW OCCUPATIONAL DISEASE?" which shows a definite connection between in-flight toxic fumes and health damage. Over many decades new victims have been added every day; it is now time to address the political leaders directly. The poisoning of human beings on flights cannot be tolerated any longer. This issue has been denied by the UK Government and airlines for too long. On 17th September 2017 EasyJet announced they will be fitting filters to their aircraft - Due to "health concerns". Politicians must stop ignoring this issue. Airline regulations must be implemented: aircraft must be fitted with SENSORS AND FILTERS and airlines must be placed under obligation to inform the public! 'JUSTICE WILL NOT BE SERVED UNTIL THOSE WHO ARE UNAFFECTED ARE AS OUTRAGED AS THOSE WHO ARE.' - Benjamin Franklin.