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Urgent! Support the "Right To Try Act (H.R. 3012) of 2015" Hope for the Terminally ill

This petition had 1,186 supporters


I am writing this letter in utter despair, because my family needs your help. My brother, my hero, the man I've always looked up to was diagnosed with ALS. You the Congress, the decision makers, have the chance to pass the "Right To Try Act". And everyone fighting a terminal illness right now needs this.  

I remember being a little kid, I remember always trying to hang out with my brother, he is 10 years older than me, so I was never allowed. But I thought I was cool having an older brother that could take me places. I am the youngest of 4, there are 3 sisters and 1 brother. We have always been a close family. Always. I feel like I was just at the shore this summer carrying on with him at the beach, and today he can barely walk. ALS, has been around, over 80 years and still NO CURE. The ice bucket challenge in my opinion brought much needed awareness to the disease. I was told in Oct 2015, about my brother and that he has ALS. I don't think it really hit me, as I really didn't understand the magnitude of what he was about to go thru.  Maybe in a way I didn't want to believe it? I didn't want him nor his family to have to go thru this. But its real. Its not going away.

I don't think I myself was prepared for him, to have to fight for his life. Its heart wrenching to watch, even more so, he has a family, a loving wife, 6 children. He is a family man, he would give you the shirt off his back because that is the man he is. Always has been.

Life certainly hasn't been easy for our family, in December 2013 we lost my sisters 10 year old son, our nephew, it never gets easier, the heartache never goes away. Time does Not heal. There are 12 nieces and nephews between my sisters and brother. He and his wife have 6 children. His wife is amazing. Not only does she make sure my brother is taken care of, she also takes care of 6 kids, and her mother who currently has brain cancer. So if anyone, anyone wants to complain about life, they certainly deserve to. But guess what? they don't. They don't complain, they look for answers, they look for hope. They look for ways to change the lives of other people. That is the ultimate meaning of strength and courage, they are.

So I write this letter to You, in hope that you listen clearly to my message. My brother, deserves the "Right To Try" He derves to possibly change his quality of life for the better. He deserves so much more from life besides ALS. He deserves to try a medicine, that may give him hope. His family deserves that right. He deserves to walk his daughters down the aisle. He deserves everything every other human on this earth does. So grant him that right to try what ever he wants to. He was given a terminal diagnosis. Terminal. There is no cure for ALS. And you the government, have the ability to change that. You have the opportunity to pass the "Right To Try Act", to make it possible for him to maybe change his life. Maybe not. But shouldn't that be a human right ?

 Would you want his 6 children wondering why their dad wasn't given a chance at life? give him the "Right to Try" then just maybe, he can watch all his kids grow up. He can sit with his wife in a rocking chair on the porch when they are older.  Why would you not want to give him that right? I beg you to support  this Act, "Right To Try Act"  (H.R. 3012) of 2015. I beg you. No one ever , ever deserves a terminal illness, they don't, but you as our law makers have an opportunity right NOW to make their life a little bit brighter. A little bit more hopeful. Let's try to change the world to make it a better place instead of holding people back from having hope. That is all they have. HOPE. Please help my family, please allow my brother Frank Mongiello, the "Right To Try".

#CureALS

Warmest Regards, Frank's Lil' Sister, Lisa Mongiello Kupsey

 

 



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