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Mental Illness Awareness
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My sister is cursed by tardive dyskinesia.
She suffers every day, not only in her physical movements of uncontrollable situation, but in her mental status. The mental interference of this disorder is devastating she has changed. She’s gotten very thin her appetite changed. Her voice is changed. It’s putting horrific to watch to see your loved one go through this Shame on industry that developed and designed these formulas just supposedly helped their patience, but in long-term results are destroying their lives. That’s why we need scientific studies and facts of medications before their distributed to our loved ones friends and family. I hope that we as a group can do something about this to create change in our society. Specially going 2025.
Susan supported: Require Training, Awareness, and Accountability Re: Tardive DyskenisiaMy friend has this and it is debilitating. She has mouth sores all the times, her hips hurt from her legs constantly moving and at times she's too embarrassed to leave the house.
Her doctor didn't tell her to go off causation medicine and prescribed her Ingrezza and when that caused problems, she took Austedo that made her symptoms worse.
Doctors need to know how to treat it. She had see another doctor before and she complained about her symptoms and he dismissed them.
I truly believe that if it was treated correctly and caught early, it would not be permanent.
Med students need to see videos of ppl with tardive dyskenisia.
Judy supported: Require Training, Awareness, and Accountability Re: Tardive DyskenisiaI am a C-PTSD survivor. Unfortunately, in order to get my daily necessary medication, my doctors have diagnosed me with PTSD and other mental illnesses. All of my conditions can be explained under one umbrella: Complex Post-Traumatic Stress Disorder. My trauma was consistent throughout childhood and culminated with a vicious incident at 19 years old. I am now 31. I have been fighting this battle for almost 11 years. I deal with daily panic attacks, body temperature fluctuations, my brain’s natural defense mechanism of “shutting down” where I can fall asleep almost anywhere, night terrors, and even more. These are just the aspects of the disease I deal with on the daily - this doesn’t even brush the surface of what happens when I experience something someone would consider “traumatic”.
Please help people like me get the necessary care they deserve. No victim of trauma should have to fight for rights while they are fighting for their own sanity and inner peace.
Erin supported: Recognize Complex PTSD (C-PTSD) in AmericaI thought I had BPD my whole life and was diagnosed with it, until I realized it’s just CPTSD, ASD and OCD. I am a troubled teen industry survivor and endured unnecessary cruelty and neglect from hospitals, therapists, group homes, and other treatment facilities. This has led to disabling health issues that I don’t even know will be reversible. I’ve been trying to get EMDR therapy, but the availability is super limited. I strongly believe that if CPTSD becomes a recognized diagnosis, complex trauma survivors like myself will be able to finally receive the quality, compassionate care we’ve been long overdue for.
Frida supported: Recognize Complex PTSD (C-PTSD) in AmericaI was diagnosed with BPD five years ago, and recently learned of CPTSD. I identify with the symptoms of CPTSD much more. As much as DBT has helped, not knowing that I should focus my therapeutic efforts on trauma work has put me years behind. I had an unrealistic view of what I was working with, and felt myself trying to mould my emotional/physical responses into that of BPD. CPTSD is a much more focused diagnosis with applicable treatment, where as BPD is much too broad. Where these two diagnoses intersect in many ways, they too differ in ways that can be harmful if not understood.
PTSD often comes from a one-off large traumatic event, where CPTSD often is associated with consistent trauma. Many times this leads to a false narrative of believing one does not qualify for trauma treatment, thus perpetuating the issue. The parts of our brain affected by trauma cannot be reached through talk therapy alone, thus years of work may not be impacting the core issue, just addressing the symptoms brought on by raised amygdala sensitivity (among other things).
CPTSD is its own individual diagnosis, and by sewing multiple diagnoses together you are unnecessarily creating a convoluted picture where a clear one could be. Thus disrupting not only treatment plans, but an individual's own understanding of themselves and their lived experiences.
This diagnosis being added to the DSM is the correct thing to do. The APA has the responsibility to give individuals the clearest information available thus leading to the most direct treatment plans. I repeat, CPTSD is its own diagnosis, individual and unique, and people deserve to have access to this knowledge.
Faith Alden supported: Recognize Complex PTSD (C-PTSD) in AmericaI suffered childhood abuse only to find out at 42 years old (7 months ago) that I was Autistic & its gone undiagnosed. I have spent my entire life believing I was bad & that something was inherently wrong with me. This has lead to tremendous trauma but what's worse is that I was first diagnosed as Bipolar & BPD 20 years prior. I was given medications to sedate me & who's effects have not been good over the last 20 years. I do not feel as though there is adequate treatment & how can there be when CPTSD isn't even being recognized by the DSM?! I hope this changes & I hope to see advancing therapies for PTSD for CPTSD bc im so tired of being tortured by my mind everyday.
Bonny supported: Recognize Complex PTSD (C-PTSD) in AmericaI am a survivor of childhood sexual and physical abuse, and was misdiagnosed with Schizophrenia and Manic Personality Disorder at 15 years old back in 2012. Unfortunately my abusers were still involved in my life because they were my parents and it allowed evil people to use such a serious diagnosis against me and abuse that power over me. No one believed me and what happened to me. That alone left me severely depressed and have a lot of social anxiety. 3 years ago I was finally diagnosed with CPTSD and life has been easier to breathe it all makes sense more. As a survivor who is a mother and a partner I stand with this petition on getting the proper information out there for family and spouses to be more educated on the diagnosis and providers to have the correct treatment/medications. The medications I was prescribed were very harmful to me and caused a chemical imbalance due to the amount of pills I was provided that affected my pituitary gland. Not having the information and knowledge on CPTSD caused me more trauma then it did helping me.
Aaliyah supported: Recognize Complex PTSD (C-PTSD) in AmericaI have cptsd and several comorbidities with it. I have been denied disability because of a lack of accurate diagnostic understanding.
Joslyn supported: Recognize Complex PTSD (C-PTSD) in AmericaMy dad was a Korean War vet. I’m a csa, tbi, dv, #thrivingsurvivor. Ancestral trauma doesn’t have to be a curse. The right mental health support has helped me heal a lifetime. Yet, and still, every day can be wrought monsters. We need the DSM-11 to reflect the 21st century American! #cptsdrecovery is a hashtag I have on my profile because I AM a WARRIOR For the Evolution of Mental Health!
Keep Fighting!
🪬Kathleen
Kathleen supported: Recognize Complex PTSD (C-PTSD) in AmericaYou’re not alone — a community of supporters is ready to back you.
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