My daughter was diagnosed with MGJWP at 2 weeks old! Having a dedicated day with the opportunity for more attention, interest and even better research would be highly beneficial and appreciated from this growing community!
My almost 2 year old was diagnosed with MGJWS at 7 months old. And I feel that there should be awareness so people around her and everyone that has this knows it’s not a bad Bad thing to have nor a wired thing to have. But a unique cool thing that people are born with. And sometimes having this has more of a fact on peoples eyesight and physical appearance than others. People should be aware of this genetic deformity.