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Dementia
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7 supporters are talking about petitions related to Dementia!
My late husband had Lewi Body dementia. Tried to tell us it was Parkinson disease at hospital at first. Definitely Lewi Body but refused another scan! Hard for him as he was an artist and couldn't draw or paint anymore.
Margaret supported: Sign the Lewy List!My partner suffered with this, was diagnosed in 2013 and still a lot of people and professionals know nothing about it more awareness is needed.
Christine supported: Sign the Lewy List!My late husband was diagnosed in2016 by Dr Andrew’s he went into an excellent nursing home in 2017 with trained nursing staff and carers it was a gentle peaceful place our families second home people with Lewy body dementia are confused have to be treated gently and listened to and never confronted as they become aggressive they are still the same loving people underneath it’s harder for them and upsetting for us as a family to see the change in them we were very lucky they understood his moods singing and happy times as well my husband was ther over 3 years we were grateful we need more nursing homes for people with lewy body dementia are desperately needed.
Margaret supported: Sign the Lewy List!I lost my lovely Aunt to LBD last year. And also a dear friend's Mum not long after, from LBD. So greatful for the support from everyone involved.
Sarah supported: Sign the Lewy List!As a caregiver for my husband with LBD I will say this disease is debilitating. He knows what is happening and it’s heartbreaking. His symptoms were gradually happening for years, we thought he was just eccentric…until he wasn’t. The hallucinations are hard to understand. They are vivid and personal for him and he gets frustrated when I don’t see the same things he sees. But the most heartbreaking is he sees me as several different people. Occasionally he will hug me and tell me how much he has missed me even though I am always with him. For him to think or feel abandoned him when he needs me the most is gut wrenching. He’s a beautiful, wonderful soul who deserves so much more.
Joyce supported: Sign the Lewy List!It took 5 years for my mother to receive a diagnosis of LBD, by which time she was totally bedridden and barely functioning. At the time was no charity in the UK devoted exclusively to this terrible disease so I founded the Lewy Body Society in 2006 to fund research and raise awareness.
Ashley supported: Sign the Lewy List!Caring for my mum with LBD was one of the most challenging, heartbreaking experiences of my life, I have been a nurse for over 30 years and none of my clinical experience prepared me for the journey. I read so much, but information was not really given to us, and more shocking was the lack of understanding from other professionals/carers who assumed it was the same as the generic term ‘dementia’ I can only hope that education is shared to support other people, families, carers and professionals to help them on a very difficult journey.
Lindsay supported: Sign the Lewy List!You’re not alone — a community of supporters is ready to back you.
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