Decision Maker

The Hon. Sussan Ley MP

  • Federal Minister for Health

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Victory
Petitioning The Hon. Sussan Ley MP

Decriminalise the use of medicinal cannabis for people with terminal cancer like my son.

Our 24 year old son has a terminal cancer diagnosis. He is receiving great benefit from using medical cannabis to manage his nausea, vomiting and poor appetite.He is also using cannabis oil in a bid to halt the progression of his disease. We can see the changes in him and fully believe that cannabis is absolutely  the right path for him to go down as conventional treatments have failed him. The adoption of the 5 recommendations of the NSW Parliament Legislative General Purpose Standing Committee No. 4: The use of cannabis for medical purposes, is essential to Daniel and the thousands of terminally ill and debilitated Australians who would benefit from the use of Medicinal Cannabis. These patients and their carers (just like us) are being forced to break the law to obtain and to use cannabis, mostly without medical supervision because they are fearful to expose themselves. The medical evidence is available and opinions world wide are changing based on this evidence, yet the NSW Government is still sitting on it's hands and demonstrating a complete lack of compassion with it's disregard for these recommendations.  Adoption of these recommendations will afford the terminally ill and chronic pain suffers the right to choose a treatment which is beneficial to them, whilst being protected from arrest and prosecution under the current NSW legislation. Our son cannot afford to wait for the government to step up. We need help now!

Lucy Haslam
250,708 supporters
Victory
Petitioning The Hon. Sussan Ley

Quit targeting general practice and the health of all Australians

From 19 January 2015, patient rebates from Medicare will be CUT by up to $25, meaning patients will pay more. Both patients and GPs have been unfairly targeted under the Government’s revised co-payment model. GPs are vital to the health and wellbeing of every Australian. Don’t let yours be targeted. The Royal Australian College of General Practitioners (RACGP) represents over 28,500 GPs working in or towards a career in general practice. The RACGP has been vocal with Government but it is falling on deaf ears. They haven’t listened to us but perhaps they will listen to you. By uniting GPs and patients, we stand a stronger chance of having our voices heard by a Government that has continually chosen to ignore the general practice profession, Australian community, and international evidence. Stand up and show the Government that your health, that of your families, and a viable healthcare system matters most.

Royal Australian College of General Practitioners
44,572 supporters
Victory
Petitioning The Hon. Sussan Ley MP

Help save May Ali's life and approve her continued treatment with life-saving drug Eculizumab

My name is May Ali and my life is at risk. Please ask Health Minister Sussan Ley to intervene for continuation of life-saving drug Eculizumab. Without it, I could die. Please act now to help save my life. Up until July last year, I was a healthy and active member of the community. A mother of two wonderful daughters, a wife to an amazing husband, and an emerging artist, my future was bright. But then things went downhill. Shortly after being diagnosed with the autoimmune conditions of Sjogren’s syndrome and myositis, I was admitted to hospital for what was expected to be a short stay of a few days. Unfortunately my condition deteriorated rapidly, puzzling my specialists as my symptoms intensified and began affecting multiple organs. Coming close to death several times, I also became severely disabled, unable to sit, walk and feed myself. I required full-time care and medical attention. Eventually, I was diagnosed with atypical haemolytic uremic syndrome (aHUS) in addition to my other autoimmune conditions. This combination has not been recorded in medical literature, making me a very unique case that does not fit a “one size fits all” approach. I was given the lifesaving drug Eculizumab, as my last hope. This drug literally saved my life, allowing me to be reunited with my family and friends after a harrowing five months in hospital. It has given me the opportunity to work at rehabilitation, regaining my independence and quality of life, albeit to a different level from my previous healthy self. I still suffer from chronic kidney disease and other issues due to organ damage sustained prior to Eculizumab but Eculizumab has successfully halted any further damage and allowed my body the opportunity to recover as much as possible. Unfortunately, Eculizumab is a prohibitively expensive drug without government subsidy – it costs around $500,000 a year. For the last 12 months it’s been subsidised on the PBS. However, late on Thursday 3rd December, I was advised that my doctors’ application to continue my treatment was rejected. Four specialists who are responsible for my treatment strongly believe that my life depends on this drug. My next dose is due on Thursday 10th December. It is the opinion of my doctors that without Eculizumab, I am likely to sustain further damage to my kidneys and other organs, again stripping me of my independence and quality of life, and placing my life at risk. This risk is too high to take. Please help to keep me alive by asking Health Minister Sussan Ley to intervene to allow me access to PBS subsidised Eculizumab. It is the opinion of my doctors that without it, I could die.  Thanks for your support.  Please help spread the word: facebook.com/SaveMayNow and twitter.com/SaveMayNow May

May Ali
40,638 supporters
Victory
Petitioning Malcolm Turnbull

He smashed my jaw until my teeth cracked out - please help me rebuild my mouth

He smashed my head into the floor and clamped his hands on my jaw until 9 of my teeth cracked out. I’d suffered years of his daily domestic abuse, but this pain was by far the most excruciating.  My ex locked me in the house for a week after, so I was not able to get immediate medical attention. By then I had got blood poisoning via my gyms and broken teeth. I was rushed to the dental hospital in Melbourne and they removed 9 top teeth and made follow up appointments for me to receive dentures. Unfortunately I done what most women do in a domestic violence relationship like that and went back to the ex (haveing no family around me or friends, no where to live as that was my home, no car no money, being emotionally unstable). He trapped me in the house. I couldn’t escape - I missed three crucial appointments, so long story short 3 years later I am no longer eligible for any dental assistance from the government. I’m desperate. I’m only 21 and don’t have the $6,000 minimum to visit a private dentist, and I’m not a child so Medicare can’t fund this. I am petitioning for the Health Minister to be compassionate and grant me access to urgent dental care. I would be forever grateful if you could help. i also have a "go fund me" that I set up 15 days ago if any one is willing to donate towards private dental fees it would be much appreciated, just $5.00 can make all the difference. Xox   **If you need help, contact the National Domestic Violence Service at 1800 737 732 or Lifeline at 13 11 14**

Jesse Black
27,817 supporters
Victory
Petitioning The Hon. Sussan Ley MP

Don’t abandon young people with psychosis in South Australia – please help us

“It's long past time to listen to the people who know. THESE SERVICES ARE VITAL. When people were ignored in Queensland, the Barrett Centre was closed without adequate replacement services. And three young people have died … so far. Mental health is a torturous plague. Our governments should be building on services that already exist … not taking them away!!” - concerned community member on our petition This is gutting. As youth mental health is in crisis, they’re ending funding and shutting down South Australia’s only youth early psychosis intervention service, the headspace Youth Early Psychosis Program. Without a program such as this, hope for a functional life for young people living with psychosis looks bleak. This is a service we desperately need to stay open. As young people ourselves, we want to ask: “who has our back?” If we cannot rely on politicians to tackle our most important issues, we need to hold them to account. Please, please help us. Cutting this program will put young people at risk. We need the funding restored before it ends on June 30th (just days before election). Help by signing our petition and sharing it. Thank you.

South Australian Youth Mental Health Action Group
17,752 supporters
Victory
Petitioning Tony Abbott, Sussan Ley

Reinstate the Inborn Error of Metabolism (IEM) Food Grant

The Metabolic Dietary Disorders Association (MDDA) – the national patient support group for families living with an Inborn Error of Metabolism (IEM) - has been advised by the Department of Health today that the IEM food grant (a grant supporting individuals living with rare metabolic diseases) will finish in December 2015 and will no longer be funded by the government.  This is part of the government’s recent cuts to health budget, and effects families who are the most vulnerable and who only have a small voice because their condition is rare. Background on IEM’s and supplementary dietary costs People who have Inborn Errors of Metabolism (IEM) - Amino Acid cannot break down specific amino acids in protein.  They are treated by a low protein diet using special medical foods, a prescribed amino acid supplement and, for some more rare IEMs, a medication. This low protein diet means most food groups are unable to be consumed including meat, dairy, legumes, eggs and only very small amounts of grains. This medically prescribed diet is essential to prevent a range of health problems from brain damage, seizures, liver failure and in some cases death. Since 2001 people who are required to maintain this very low protein have received a food grant from the Department of Health - this is currently $256.75 per month. The last official figures provided by the Department of Health were provided in 2013 and stated that 904 people were receiving the grant.  We have formally requested more current figures but have not received them.  Since last year recipients require a form signed by the treating specialist stating they are either compliant with diet and monitoring requirements or that they have a plan in place to address compliance to receive their grant.  The special low protein food is available from 3 suppliers and a pre-made loaf of bread from one of the suppliers is $10.00 and a box of cereal is $14.95.  A member has just paid $28 for grated cheese and $20 for sliced cheese plus a $40 delivery fee. These foods are not subsidised by PBS as they are special medical foods not prescription products.  The prescribed amino acid supplement replaces essential proteins and nutrients that normally come from food.   These supplements are subsidised by PBS but the foods are not.  Without treatment of both supplements and special medical foods people with IEMs experience range of outcomes from irreparable brain damage to premature death. This decision will have a disastrous effect on the family budgets of this rare group of Australian families already struggling with the many challenges that come with living with a rare and silent disease. As it is a genetic disorder many families have more than one child with the disorder. The costs on untreated or poorly treated IEM's is much higher with children who are not well managed experiencing cognitive deficits requiring additional help in educational settings, some requiring more hospital admissions, adults being less likely to be employable due to concentration, cognitive issues, anxiety and depression arising from poor metabolic management and unlike so many disorders this can all be prevented by effective management of the disorder.  

Metabolic Dietary Disorders Association
12,117 supporters
Victory
Petitioning Sussan Ley

Sussan Ley: MAKE LIFE SAVING TECHNOLOGY AFFORDABLE TO TYPE 1 DIABETICS BY INCLUDING CONTINUOUS GLUCOSE MONITOR (CGM) ON THE NDSS and PBS

Type one diabetes is not a lifestyle choice. You can't get it from eating too much sugar. It is an autoimmune disorder, caused when the body's own immune system attacks the pancreas, rendering it permanently unable to produce insulin. The above picture is of our 6 year old daughter, Violet- a newly diagnosed Type 1 Diabetic.   The is no cure. 80% of those diagnosed have no family history. Most are young children. It is a life sentence of endless needles, finger pricks and carb counting. Management of type one is intense, round the clock and vitally important. Blood sugar that is too low will cause disorientation, loss of consciousness, coma and, if unrecognised or untreated- death. Low blood sugar levels whilst sleeping are particularly dangerous and can also be fatal.Blood sugar that is too high has an immediate threat of DKA (blood that is too acidic) which is also life threatening. It is a fine line and a balancing act that diabetics walk every day to try to maintain normal blood sugar levels. For you and I, that is between 4-6 mmol/l. A diabetic can sway from 2-22mmol/l in a day, even when they actively manage their diabetes to the best of their ability. The long term effects of poorly managed levels are frightening and costly to the community- kidney failure, loss of extremities, eye problems, damage to blood vessels, and damage to just about every organ in the body. Even young type one diabetics without long term complications often require hospitalisation for common gastro and flu, also at great cost to the tax payer. In addition to illness, blood sugar levels are effected by exercise, hormones and even emotion. To say that blood sugar levels are unpredictable is a significant understatement. To better manage their diabetes, type one patients need comprehensive information about the way their body's blood glucose levels trend. The current recommendation (that is supported and funded by the Australian healthcare system) is for type one diabetics to check their blood sugar levels by conducting approximately 10 finger pricks a day (upon waking, before every snack or meal, before bed and at 2am). But this only provides 10 small snapshots, and does not allow the identification of blood sugar level trends. Continuous Glucose monitoring (CGM) is the perfect solution to many complications faced daily by type one diabetics. CGM is conducted by the wearing of a sensor (such as a Dexcom) that checks the blood sugar level every 5 minutes, 24 hours a day. It allows for trend identification, prevention of high and low blood sugar events, and is the best way to prevent hospitalisation for common illnesses, as it allows for better management and control at home. Better day to day management is the best prevention for long term complications. It also allows type one diabetics (and their families) to sleep at night, knowing they will be alerted by their CGM if their blood sugar is dangerously low - thus saving lives! The technology for CGM is available in Australia - for a price. Unfortunately, the Australian government does not support this technology, calling it a ' lifestyle choice', and it is not covered by the NDSS/ PBS or private health insurance. The out of pocket costs are prohibitive to Australian families (we pay approximately $108 per week for CGM, in addition to the other costs of diabetes management- insulin, consumables, insulin pumps, blood glucose meters, etc). Inclusion of CGM into the NDSS/ PBS will initially have a cost to the tax payer, yes. But the savings in avoided hospital stays and long term complications will be significant. Diabetics only make up 3% of the population, and type one make up 10% of these but treatment costs for long term complications are staggering- between $4500 and $9000+ per person per year. In addition to the financial and health implications just described, a diagnosis of type 1 diabetes also has a profound emotional impact on the entire family. As the parent of a newly diagnosed 6 year old child, I know firsthand of the shock, grief, fear and desperation of coming to terms with the diagnosis of a chronic medical condition that has the real possibility of shortening your child's lifespan by decades. CGM also provides type 1 diabetics and their families peace of mind. The ability to know with a glance at the Dexcom that your child is not going dangerously low during gymnastics class, dangerously high due to a failed/missed insulin dose. To know that your child WILL wake up the next morning! Please help support the inclusion of CGM on the NDSS/ PBS by signing this petition.

Erika Lutz
7,974 supporters
Victory
Petitioning The Hon. Sussan Ley MP, The Honourable Jillian Skinner, The Honourable Jillian Skinner, The Honourable Cameron Dick MP, The Honourable Annastacia PALASZCZUK, The Honourable Michael Baird, Lives at ...

Don't let Peritonectomy (CRS) / HIPEC Cancer patients die waiting for life-saving surgery.

To really understand the anguish and despair try standing in the shoes of a patient suffering a life threatening illness who the Australian "Health Bureaucracy" is knowingly denying life saving peritonectomy surgery / HIPEC within clinically recommended times. When our fellow Australians are being left to deteriorate and perhaps die whilst those in the Australian "Health Bureaucracy" continue to argue the toss when the rest of the world has moved on and is offering this surgery as the standard treatment it becomes a Human Rights issue and not just a funding and/or capacity problem. In the UK there are never any funding or capacity issues as this surgery is funded on a "per case" basis and is performed in 2 Special Centres, Basingstoke and Christie, to ensure the best possible outcomes for all patients. Why can't we do the same here in Australia? Let's try putting best possible patient outcomes first and medical politics second! This surgery is now the standard treatment for our peritoneal cancers: read more http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3070715/?tool=pubmed Peritonectomy patients should not be discriminated against and viewed as "taking up beds in ICU!" It is not our fault that we are suffering life threatening illnesses and want the best possible outcomes. Solution: more ICU beds so all patients, including trauma,  peritonectomy, etc get the best possible outcomes. REQUESTS TO STOP EXCESSIVE DELAYS for life-saving Peritonectomy (CRS) surgery / HIPEC for all Australians no matter where they live, like those inflicted on this mother of young children who left this online comment: "I was one of the lucky ones. It took 14 months from my initial operation in Perth before I was given a surgery date in Sydney. Those 14 months were gut wrenching as I had four children and my youngest was 7. I spent that time preparing my children and family for the worst. We are all Australians so access to this surgery should not be dependent on which state you live in." Accessing life-saving surgery within clinically recommended times should not be limited by the state based delivery of health services in Australia which allows states: 1) to fix the number of life-saving peritonectomy (CRS) surgeries / HIPEC per year so as to restrict funding irrespective of demand; and 2) to stop patients accessing the state delivery of this surgery based on their postcodes unless for eg they are "assessed as eligible for the surgery" in their home states and "clinically referred" to St George Public Hospital, in NSW. Hopefully the assessing and referring doctors know about this surgery and that it is now the standard of care in many countries for PMP, appendix cancer and peritoneal mesothelioma because of the greatly improved survival statistics compared with the old standard treatment. SURVIVAL STATISTICS Read more at: http://www.pmpcure.org/ Apart from the world class results for PMP, Professor David Morris and his team have achieved these results from CRS (peritonectomy) surgery /HIPEC performed at St George Public hospital: "...for appendiceal adenocarcinoma, there is a 60 per cent five-year survival, compared to zero per cent with standard treatment. For peritoneal mesothelioma, there is a 50 per cent five-year survival, compared to zero per cent with standard treatment. For colonic cancer, the results depend on the amount of tumour, but they now have a 60 per cent five-year survival for low-volume disease. These are world's best practice results:" https://www.parliament.nsw.gov.au/prod/parlment/hansart.nsf/V3Key/LA20141119006?open&refNavID=undefined Excessively long waiting times, way beyond clinically recommended times, put these patients' lives at risk. WA and NZ patients have been refused permission to join the waiting list at St George Hospital because they don't live in NSW. Limited Numbers of Operations and Capacity Issues put patients' lives at risk so it is not just a funding issue but a human rights issue as well. Let's hope there isn't a CAPACITY ISSUE at St George Public Hospital now that the funding has been increased for about 120 operations per year because 72 for NSW residents only was absolutely not enough to meet demand. NSW Health has announced that it intends to review the arrangements for peritonectomy / HIPEC. What happens to patient number 121? In QLD what happens to patient number 25, 26, 27 etc? WA restored funding for 20 peritonectomies a year from zero from Dec 2013. What happens to patient number 21, 22, 23 etc? SA offers this treatment but how many peritonectomies are funded??? ACT, NT and Tasmania do not offer peritonectomy surgery. What happens to patients who live there? REQUESTS  We call on the NSW Health Minister, Jillian Skinner MP, the Federal Health Minister, Sussan Ley MP and all State Health Ministers to review the arrangements for the delivery of Peritonectomy Surgery / HIPEC for all Australians no matter where they live to ensure the best possible outcomes for everyone not just the lucky ones: 1. By ensuring that the review of arrangements for peritonectomy / HIPEC by NSW Health results in cancer patients in Australia getting life-saving peritonectomy surgery within clinically recommended time frames to ensure the best possible outcomes. 2. By ensuring that before a patient from Australia is refused this life-saving surgery in NSW an opinion from a "peritonectomy specialist" in Australia will be considered by the Enhanced Multi-Disciplinary Team for peritonectomy at St George Public Hospital. Currently interstate patients have to pass the very difficult hurdles of being "assessed as eligible for surgery in their home states" and being "clinically referred to St George Public Hospital" before they will be considered for this surguery in NSW. The present criteria appear to give the interstate referring oncologists the final say as to whether patients are "assessed as eligible in their home states" for surgery and "clinically referred to St George Public Hospital." Unfortunately, not all members of our medical profession are well informed about this surgery. 3. By reporting the waiting times for peritonectomy surgery, like for other cancer surgeries, so delays can be highlighted and fixed ASAP to ensure the best possible outcomes for all patients. For Campaign History and Discussion of "Lives at Risk" parliamentary petition which occurred in the NSW parliament on 19.11.2014 thanks to all the petitioners who signed and collected original signatures and addresses click this link: http://livesatrisk.com.au/ Read Discussion: https://www.parliament.nsw.gov.au/prod/parlment/hansart.nsf/V3Key/LA20141119006?open&refNavID=undefined You can find out about what is happening to peritonectomy patients by emailing any questions to: 1. NSW Health Minister, the Hon. Jillian Skinner MP, at office@skinner.minister.nsw.gov.au or jillian.skinner@minister.nsw.gov.au. 2. The Australian Health Minister, the Hon. Sussan Ley MP, at Farrer@aph.gov.au. Patient numbers were manipulated at St George Public Hospital to fit the quota of 6 operations per month or 72 per year  by: 1) making patients from NSW, like Nicole Perko, wait much longer than is clinically recommended;  2) discriminating against interstate patients, like Stacey and Lex, by ignoring cross-border arrangements and refusing to allow them to join the waiting list; and  3) denying more patients this surgery by more rigorous "careful patient selection." THANK-YOU Dr Andrew McDonald (former Shadow Min. for Health) & Prof. Morris, a world renowned expert in peritonectomy surgery, for: 1. Informing the community in 2013 & 2014 that 72 surgeries per year in NSW was not enough. Watch here: http://aca.ninemsn.com.au/arti.../8751776/cancer-surgery-shame This extremely complex surgery is not undertaken in any private hospitals in Australia. So having private health insurance does not help! Australian Health Minister says there are now too many patients needing this surgery to establish a Nationally Funded Centre but that NSW Health is conducting a review of the arrangements for peritonectomy surgery / HIPEC. Read more: http://www.bjs.co.uk/details/article/6939881/Multicentre-study-of-the-learning-curve-and-surgical-performance-of-cytoreductiv.html Please join Our Website For more information: http://www.pseudomyxomasurvivor.org/

Rebecca P
5,872 supporters
Closed
Petitioning The Hon. Sussan Ley MP

To get Meningococcal B on the NIP and PBS.

On 26th August 2015 Our daughter Jazmyn contracted the deadly Meningococcal Disease. We were not aware at the time that she was not fully covered for the B strain which is now the most common type of Meningococcal in Australia. We were not even aware that there was a vaccine out there that we could have given to our beautiful girls. Meningococcal is a horrid and such a fast disease, were sitting there watching the rash change and develop right in front of our eyes and not knowing what the outcome for our daughter would be. We couldn't even hold or touch her as it  caused her so much pain to do this, her little nerves were so heighten that even a slight move of the sheets she would be screaming in pain, and the pain lasted for about 2-3 weeks. It is the hardest thing to want to comfort your child and to know they want your comfort but to touch her would cause her so much pain. We were very lucky with Jazmyns out come she ended up with skin grafts on her legs and they have healed up really well, but over this 12 month  journey she is still suffering day to day with crippling headaches, pain in her feet and legs and excessive tiredness, they think she has suffered Neurological Nerve damage from the disease so this will be life long for her. The reason i am wanting to start this petition up again is because family's are still suffering and it is just not fair and i strongly believe the government should step up, This is not only to protect the future of our children but anyone anyone any age. Come on Australia Health System its time to do what is right and sometimes to do the right thing can cost a huge amount of money in the beginning, but in the long term it will be worth it. No more family's need to witness or suffer this Disease. Please sign and share with all your friends and family and lets show Australia what we want.   

Jazmyn Meningococcal Fight
4,618 supporters
Victory
Petitioning Malcolm Turnbull, Sussan Ley

Malcolm Turnbull: I have breast cancer and can't afford to live – please help

Right now I can’t afford to keep myself alive. I’m struggling with breast cancer, but the treatment I need is too expensive. Unless the government subsidise the Zoladex needle on the PBS - women like me won’t be able to fight breast cancer. I had to stop my job because my cancer got so bad. I’m expected to rely on a tiny government payment of $300/wk - but I haven’t received any of it this entire year! It’s impossible for me to pay the $350 sting each month for one needle of treatment. It’s outrageous and unfair - some patients are getting the treatment subsidised, others like me aren't with no fair justification. Because I’m under 40 years and “only” have Stage 3 cancer, I’m discriminated against for medical costs help. My doctors have said I’ll need the treatment for at least 6 years - that’ll cost over $25K that I don’t have. I don't know how long I can keep fighting. Please, many women are struggling, alone like me. We’re desperate. Please sign and share my petition calling on Prime Minister Malcolm Turnbull and Health Minister Sussan Ley to immediately list Zoladex on the PBS to give breast cancer sufferers like me an equal shot at surviving.  

Lisa W
4,289 supporters
Eating disorder support service, The Butterfly Foundation, funding cut!

Claims today mental health phone help lines are being cut are WRONG. Here are the facts. Based on advice from the independent Mental Health Commission, from 2017 the Coalition’s digital mental health ‘gateway’ will give Australians the option to call one single phone number to then directly access the phone and online service they need. This single call will act as a ‘triage’ service putting people in touch with a specialist phone or online service best suited to their personal circumstances. The service is not designed to replace existing specialised mental health phone counselling services, such as those used for eating disorders, but improve access to them. You will still be able to call a preferred phone counselling service directly if you believe it is the best service to help. Feel free to link here for more information... https://goo.gl/lezkzn

2 years ago
The Butterfly Foundation set to be axed

Claims today mental health phone help lines are being cut are WRONG. Here are the facts. Based on advice from the independent Mental Health Commission, from 2017 the Coalition’s digital mental health ‘gateway’ will give Australians the option to call one single phone number to then directly access the phone and online service they need. This single call will act as a ‘triage’ service putting people in touch with a specialist phone or online service best suited to their personal circumstances. The service is not designed to replace existing specialised mental health phone counselling services, such as those used for eating disorders, but improve access to them. You will still be able to call a preferred phone counselling service directly if you believe it is the best service to help. Feel free to link here for more information... https://goo.gl/lezkzn

2 years ago
Guarantee ongoing funding for Butterfly Foundation eating disorders helpline

Claims today mental health phone help lines are being cut are WRONG. Here are the facts. Based on advice from the independent Mental Health Commission, from 2017 the Coalition’s digital mental health ‘gateway’ will give Australians the option to call one single phone number to then directly access the phone and online service they need. This single call will act as a ‘triage’ service putting people in touch with a specialist phone or online service best suited to their personal circumstances. The service is not designed to replace existing specialised mental health phone counselling services, such as those used for eating disorders, but improve access to them. You will still be able to call a preferred phone counselling service directly if you believe it is the best service to help. Feel free to link here for more information... https://goo.gl/lezkzn

2 years ago
Sussan Ley: MAKE LIFE SAVING TECHNOLOGY AFFORDABLE TO TYPE 1 DIABETICS BY INCLUDING CONTINUOUS GLUCOSE MONITOR (CGM) ON THE NDSS and PBS

On the weekend, it was my absolute pleasure to join with the Prime Minister to announce a re-elected Turnbull Coalition Government will invest $54 million to subsidise continuous glucose monitoring (CGM) technology for children and young adults under 21 years old facing extra challenges managing their Type 1 diabetes. I have heard and related to many touching personal stories and hopefully this announcement will help relieve some of the stress, anxiety and even just daily difficulties that children and parents living with this situation can face every day. But what makes this case truly special is the advocacy of yourselves and experts such as JDRF and Diabetes Australia, who put forward reliable evidence in an ongoing dialogue with Government to support this significant taxpayer investment, because ultimately we must find the money to pay for it one way or another. Just like our world-first decision to list cures for all Hep C sufferers on the PBS, funding CGMs for children who need them is a clear example of why it’s important we undertake reforms, such as building a Healthier Medicare, and what can be achieved when we ensure health spending is efficient, evidenced-based and every dollar lands as close to patient as possible. Full details on yesterday’s announcement can be found here: https://m.facebook.com/story.php?story_fbid=1023975371003168&substory_index=0&id=198830586850988 Best Wishes Sussan

2 years ago
Subsidise a LIFE SAVING device for ALL Type 1 Diabetics & keep 140,000 Australians alive!

On the weekend, it was my absolute pleasure to join with the Prime Minister to announce a re-elected Turnbull Coalition Government will invest $54 million to subsidise continuous glucose monitoring (CGM) technology for children and young adults under 21 years old facing extra challenges managing their Type 1 diabetes. I have heard and related to many touching personal stories and hopefully this announcement will help relieve some of the stress, anxiety and even just daily difficulties that children and parents living with this situation can face every day. But what makes this case truly special is the advocacy of yourselves and experts such as JDRF and Diabetes Australia, who put forward reliable evidence in an ongoing dialogue with Government to support this significant taxpayer investment, because ultimately we must find the money to pay for it one way or another. Just like our world-first decision to list cures for all Hep C sufferers on the PBS, funding CGMs for children who need them is a clear example of why it’s important we undertake reforms, such as building a Healthier Medicare, and what can be achieved when we ensure health spending is efficient, evidenced-based and every dollar lands as close to patient as possible. Full details on yesterday’s announcement can be found here: https://m.facebook.com/story.php?story_fbid=1023975371003168&substory_index=0&id=198830586850988 Best Wishes Sussan

2 years ago
Decriminalise the use of medicinal cannabis for people with terminal cancer like my son.

Landmark medicinal cannabis legislation introduced today The Turnbull Government today introduces landmark legislation providing the “missing piece” for Australian patients and their doctors to access a safe, legal and reliable supply of medicinal cannabis products for the management of painful and chronic conditions. Minister for Health Sussan Ley today announced the amendments to the Narcotics Drugs Act 1967 would allow the controlled cultivation of cannabis for medicinal or scientific purposes through one single national licensing scheme – an Australian first. Ms Ley said, if passed, this legislation would open the way for Australians with painful and chronic conditions to get access to the relief they needed where this was determined by their doctors to be of potential benefit. “This is an important day for Australia and the many advocates who have fought long and hard to challenge the stigma around medicinal cannabis products,” Ms Ley said. “For Australia, this is the missing piece in a patient’s journey. “Importantly, having a safe, legal and reliable source of products will ensure medical practitioners are now at the centre of the decision making process on whether medicinal cannabis may be beneficial for their patient.” Ms Ley said the Turnbull Government had worked closely with the states and territories, law enforcement agencies and other stakeholders over the past eight weeks to ensure this legislation was “robust” before bringing it to Parliament to give it the best chance of a smooth passage. “I am also aware of the passion of many MPs and Senators from all sides of politics towards making this happen and I thank them for their contributions so far,” Ms Ley said. “I sincerely hope the Parliament can continue to work together to pass this legislation in a bipartisan fashion as quickly as possible in the interest of Australian patients seeking access to medicinal cannabis.” Currently, there are provisions already in place allowing the legal production and distribution of medicinal cannabis products to patients through various means via the Narcotic Drugs Act 1967 and the Therapeutic Goods Act 1989. This includes authorised prescribers such as specialists working with particular patient groups and clinical trials run by research institutions and state and territory governments. However, Australia does not currently have a safe, legal and reliable supply of locally-grown cannabis to allow the manufacture of therapeutic products or satisfy this demand, hence why today’s legislation has been described as the all-important “missing piece” to patient access. “I am confident creating one single, nationally-consistent cultivation scheme, rather than eight individual arrangements, will not only help speed up the legislative and regulatory process, but ultimately access to medicinal cannabis products as well,” Ms Ley said. “A national regulator will also allow the Government to closely track the development of cannabis products for medicinal use from cultivation to supply and curtail any attempts by criminals to get involved.” Ms Ley said sharing an exposure draft of the legislation with state and territory governments, law enforcement agencies and other stakeholders had ensured feedback and contribution on a range of issues, and was essential to navigating this complex legislative path. “The legislation also ensures Australia meets all of its international obligations under the Single Convention on Narcotic Drugs.” Ms Ley said she hoped the legislation would pass in both the House and Senate this sitting of Parliament. Ms Ley reminded Australians today’s announcement did not relate to the decriminalisation of cannabis for general cultivation or recreational use, which remained a law enforcement issue for individual states and territories.

2 years ago
Help save May Ali's life and approve her continued treatment with life-saving drug Eculizumab

I wanted to let people know that I last night signed off Pharmaceutical Benefits Advisory Committee recommendation to now give patients 24 months access to Eculizumab before a clinical assessment is required to determine whether or not treatment should continue. This ensures decisions are made without undue influence or pressure about whether a new medicine really will deliver what it promises patients for the price it costs. This is the foundation behind the success of Australia’s world-class system for subsiding medicines and we support this process continuing. I wish May and all sufferers of aHUS the very best with their ongoing treatment and best wishes for the festive season. For more information on announcement: https://www.facebook.com/SussanLeyMP/posts/936390259761680

2 years ago