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Research Funding
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My son James had spastic quadriplegic cerebral palsy. He was dependent on others for all mobility as well as activities of daily living. James endured so much during his 22 years on earth and despite so many surgeries he always had a smile and a huge full body laugh. James could light up a room. Would have loved to have seen him walk as he used to be so proud when he could stand with assistance and if there was more research done more people could be independent and not have to rely on constant caretakers
kathy supported: Show Your Support for Cerebral Palsy!I have been taking care of my sister since my mom passed in 2007. It has been a struggle for me working full time and very little family support. I moved to get away for my own mental because I lost my only child, it has been hell trying to get her back on a waiver, so I can get a break and go to the doctor so I can continue to take care of her. She was in a ISL for a couple of years after losing my only child in 2015. They stole her clothes, money and didn’t take care of her. The waiting list for 2 years is unacceptable, she will be 50 and I will be 60. It’s getting hard, but I don’t want to put her back in a facility, she is happy at home. I am pleading for help.
Tammy supported: Show Your Support for Cerebral Palsy!I have Cerebral Palsy, and have struggled to transition into adulthood due to the lack of research and resources available for individuals with cp who are no longer adolescents. Cerebral Palsy is a lifelong condition and support shouldn't end on our 18th birthday.
Hannah supported: Show Your Support for Cerebral Palsy!It's because I have CP myself and if it can be researched and cured I would like to know about it because I was born with cerebral palsy
Tommy supported: Show Your Support for Cerebral Palsy!This is very important
amanda supported: Show Your Support for Cerebral Palsy!My brother had Cerebral palsy. Was not expected to live past age 18, he made it to age 43. He spent a lot of time in the hospital in his lifetime due to pneumonia. Yet there were other struggles for our family. When he aged out at 21 it was hard to get many needed services for him and equipment. Equipment such as wheelchairs need replacement every 3 to 5 years. We could not afford that. Also we told we couldn't obtain life insurance for him as his life expectancy was unknown. That should not matter, it's expensive to have a funeral and bury someone. Those with CP deserve just as much as any able bodied person does. They are the most loving, bright and happy people in the world. Despite their struggles.
Becky supported: Show Your Support for Cerebral Palsy!My “daughter” has cerebral palsy and is confined to a wheelchair. I love this young lady with all my heart. She has had a very traumatic life, especially during Covid. In and out of the hospital and adult care. Some experiences not very pleasant and quite heart breaking. Medical and all around care is a very important issue for her as well as everyone involved.
Donna supported: Show Your Support for Cerebral Palsy!My 13 yr old grandson was just diagnosed with CP ! He has been suffering with pain and struggling with the simplest things such as putting on his shoes . Doctors had misdiagnosed him for years until finally at 12 yrs old when I his grandmother noticed the changes in his back. And they sent us to orthopedic and I sweet therapy nurse took time and notice all his stiffness in his lower body hips legs feet . At first she thought theater spinal cord and immediately she got us in contact with children's neurologist and that when lot of testing begain CT scans Mri physical therapy few other test list goes on . We finally got the diagnose in the end of 2024. Our Hunter (grandson) never complains is the sweetest young man.and has pushed thru all his disability and the pain he is in everyday and the medication he is on to help him stay focused , help his anxiety, help with his muscles stiffness in his legs and feet the older he gets the more pain he is in but he fights thru he is so excited about getting his leg braces that even his therapist was amazed by Hunter because Hunter is excited to wear these even at school I just want the pain to stop Hunter says! When I say my grandson Hunter is a fighter and a Amazing kid that pushes thru his daily struggles his dream is to make it in to the NFL my grandson is a Beast at football and he puts all he has into becoming the best at it and fights thru his pain and struggles he has with his feet and hands . Hunter says cp will not define him Hunter will define CP ! The coach are amazing by Hunter determination and his drive to be the best he can be. I would love to see my grandson Hunter dreams come true and be pain free and his everyday life task become easier for him along with other children and adults struggling with CP. But we can only due this with added resources and more researching and medical services and testing being done and more support groups for these family and adults. Together our voices can make that change .
Brandy supported: Show Your Support for Cerebral Palsy!My 12 year old daughter has mixed Cerebral Palsy. She is very independent.but it's taken every day of every year to get where we are today.
Hannah supported: Show Your Support for Cerebral Palsy!You’re not alone — a community of supporters is ready to back you.
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