10 supporters are talking about petitions related to Myalgic Encephalomyelitis!
As a patient and physician with ME/CFS, I can objectively say that this condition has a real organic cause and is not psychosomatic/psychological in origin.
Please, do the right thing for this beautiful soul who need medical attention because her mitochondria are not working.
There is enough evidence to show this is a organic biological condition, it’s not a question anymore . To allow someone in this condition to be treated (or not treated) and to add to the immense suffering she is already experiencing everyday of her life, is truly the antithesis of inhuman. She and all people deserve much better.
Through Line's life experiences she has been positive and just trying to live her best. As a content creator she was kind and super inclusive. Even now she is writing and publishing books. She's clearly being affected by a serious real condition and has real support from others with the exact same condition.
This cannot happen again. Line’s life is in danger with forced psychiatric hospitalization. Please don’t let what happened to Sophia Mirza, and so many others, happen to her.
As someone that has experienced long covid and the affects that it gave me personally. No one deserves to live this way. These chronic illnesses are brutal and we need support and help.
ME is a real disease with peer-reviewed evidence of mitochondrial dysfunction at the root cause. Provide this woman treatment and support, don't worsen her health by sending her to a place that can only worsen her physical and mental condition.
As I was reading the statement made I was remembering the young woman who died earlier this year because of ME/CFS and lack of concern and care for her condition by the doctors who were supposed to help her. Was this young lady lazy or was she completely incapable of exercise? She was completely incapable for physiological reasons NOT due to laziness/a lack of trying. The statement made is ignorant, inaccurate, and could lead to someone becoming further debilitated if they were to take his words as fact and attempt activities that the body is not able to perform or recover from.
I know from personal experience how debilitating PEM can be. My own quality of life has degraded sharply after an ill-advised exercise program this past summer. I may never recover.
ME/CFS is a disease with a broad spectrum of disability, from being unable to socialize after work to being almost in a comatose state. The current leader of this organization has demonstrated that they do not have a clear understanding of the people they are meant to represent. Their comments were at best myopic and dismissive, and at worst cruel and damaging to an already misunderstood disease. Please replace them with someone who actually understands ME/CFS and can be an advocate for all patients. We do not need someone else who diminishes the severity of this horrifying disease. Thank you.