health and safety
Petition to Theresa may/uk goverment/secretary of state (conservative party), chris leslie, vernon coaker, nick clegg deputy, Jeremy Hunt, Theresa May MP
CHANGE THE GUIDELINES USED AT HOSPITALS WHEN DEALING WITH AUTISTIC CHILDREN HARRY WAS LET DOWN THIS CANT HAPPEN AGAIN WE ASK THAT THESE CHANGES WILL FOREVER BE KNOWN AS HARRYS’ LAW
my 4 yr old autistic son lost his life this can never be allowed to happen again this petition is to run along side a paper petition and an epetition already in progress We were in a+e and the ward of the hospital for a combined time of just under 9 hours the dr in a+e said harry was 8% dehydrated and needed to be put on a drip and have blood tests taken and even prepared him with numbing cream and sent him to the ward we entered a+e at 8 mins after 12pm we were on the ward for just about 2pm and left just before 9 pm all this time we kept asking for the tests to be completed The heart murmur was detected on the ward at approx 4pm His blood tests taken after he passed away shows high levels of potassium high levels of sodium some liver and kidney problems and some other abnormalities when I asked if they would have been detected on the friday or saturday I was told yes I also asked if he could have been treated and again I was told yes So it seems the dr in a+e may have given the right diagnosis but the drs on theward just never followed through on the tests and treatment the full story is below my little boys story on the 18th June I attended the gp's with Harry as he had been ill for a few days and his mum and I were growing concerned as although the vomiting and diorreah had stopped he was getting no better within himself. We were seen by dr layzel who said that he had a tummy bug and a temperature and although he had lost some weight this was not much of a concern and advised that we should continue giving Harry paracetamol and she made a further appointment for the Friday so that harry could be checked again as the weekend was approaching. on the evening of the 19th June Harry's' mum and I were still concerned so we telephoned the 111 service and we were advised to take harry to the out of hours service at nems on derby road which we did we were seen by the doctor and again told that he had a temperature and a tummy bug and as we already had a gps' appointment the following morning we were advised to continue with the paracetamol and attend the appointment the following morning. on the 20th June we attended the gps' appointment and we were seen by Dr Holly Barret who checked harry over she also asked dr layzels' opinion as she had seen him previously and they both said they weren't too concerned but as the weekend was upon us she asked that I take harry to A+E at the QMC so that a paediatrician could check him over. we arrived at A+E at approx 12pm there was a short wait and then harry was seen. The nurse that saw harry took his obs and we explained about his severe autism which made him anxious and distressed when in unfamiliar environments she said that his temperature was a little high and his heart was racing his blood sugar was fairly high at 9.4 and harry was given the priority level of a category 2 to see the doctors. after the doctor had seen harry we were informed that they wished to tube feed him however harry started to take nutrition orally via a syringe and after a while harry was given a fairly large dosage of ibuprofen when I questioned this i was told that larger doses can be used within the hospital as they dose on weight. Harry had cream applied to both arms and legs as we were told blood tests were needed. harry was then sent up to the children's' assessment unit on arrival we again explained about the severity of his autism and also about his previous problems with his heart when he was a baby and again his obs were taken. we were told that his heart was again racing and that a murmur was heard along with a gushing noise and we were told that an ECG and blood tests were going to be undertaken. we were left sitting in the ward with a very distressed child (due to his autism) for hours we kept asking about the murmur and in total 3 doctors heard this so again we kept asking about the tests as harry was becoming more distressed and had the cream that numbs on both arms and both legs and were told that it was all in good hands, in total my son was left for over 8hours with nothing practical being done we also had to tell the Doctors on more than one occasion that he had thrush in his mouth. Harry was becoming more and more distressed and the test were not being undertaken so we asked again and again but nothing was done. eventually we asked if we could take Harry home for the evening as he was very distressed and would not settle this was agreed with the Doctors with the plan that we return Saturday morning which we did, when home Harry was asleep within 15minutes. on out return Saturday morning still no tests were carried out only his obs and weight we were then discharged by the Doctor and told to take him home and given prescription and told to carry on feeding fluids orally via a syringe which we did. On Sunday he was much the same and then on the Monday he passed away. during his short stay in hospital we were left for hours with a very distressed autistic boy and very little was done we repeatedly asked about the murmur and about his heart and repeatedly asked about the ECG and blood-tests they had said were needed yet these tests were not carried out despite all of our questions nothing was being done. all the above is why we feel that his care while in the hospital was highly inadequate and that the hospital didn't listen and take our concerns seriously instead they did very little for over 8 hours if they had listened to us and had done the tests that we were told were needed i truly believe that my son harry would have received the correct treatment and would still be with us today. we have also received a discharge letter which mentions a diagnosis of gastroenteritis we were never told this also no medications listed although a prescription was given for harry by the doctor on the ward. the system needs changing and we are eager to make sure that it does so this can never happen again with a different system my son would still be alive today. Harrys law 1: On arrival to A&E status elevated to level 2 so less waiting time to cut down stress levels 2: Each childrens department to have atleast one Dr and nurse trained in autism awareness on duty at all times and they be assigned to specific children with special needs and that they have periodic updated training 3: Experienced play workers to be made more readily available 4: Quicker transitions from one department to the next 5: Side rooms made available to cut stress levels 6: Notes and identity bracelets coloured as a clear indicator of special needs 7: Parents always to be approached first 8: Any treatments or tests needed to be done swiftly 9: Do not leave autistic children unattended at any time 10: Make sure any appropriate treatments or issues are dealt with before discharge 11: Make sure parents have all relevant information during the stay in hospital and on after care on discharge 12: Make Drs aware and accountable for their own actions 13: Give any willing parents a questionnaire so that the hospitals can learn from them
Petition to Secretary Of State for Health
Lower the age for bowel cancer screening in England to 50
Exactly a year ago today, my family was dealt an earth shattering blow when my mum was diagnosed with bowel cancer. She was 55 at the time, and we were told soon after, that the cancer was terminal. She started chemotherapy immediately after diagnosis, but it was unfortunately too little, too late, and she passed away in March this year, a week after her 56th birthday. Screening for bowel cancer is available on the NHS, but only from the age of 60. However, in Scotland they start screening from the age of 50. Finding this out was quite a bitter blow. If we lived in Scotland my mum would have already been screened three times before she was finally diagnosed, increasing her chance of being diagnosed earlier and increasing her chance of survival. Screening isn’t foolproof, but Bowel Cancer is the second biggest cancer killer in the UK and if caught in its earliest stages it’s curable. Cancer research published earlier this year found that if bowel cancer is caught in its earliest stages, there is a 97% chance of surviving 5 years. But if the cancer is caught in its later stages there is a 7% chance of survival. From figures I have found through research, I've estimated that up to 6000 people a year are being diagnosed with bowel cancer in their 50's. Considering they have had no screening available to them at all, I wonder how many of those like my mum are being diagnosed too late. My Mum was the kind of person who would do anything for anyone. She was utterly selfless, loving and wonderful. Unfortunately nothing can change what has happened to my family, and we are having to live with our grief and heartbreak. But if by fighting for this change, even one family are spared this kind of loss then I think it's worth it.
Petition to The Rt Hon Jeremy Hunt MP, Prof Dame Sally Davies, Dr Duncan Selbie
Provide tests for Group B Strep to prevent any more avoidable deaths of newborn babies
My partner Scott and I should have been sharing our son Edward Gili’s first birthday last month. But instead of having that exciting first year to celebrate and many more to look forward to, we had just 9 precious days to spend with our beautiful son. Edward was cruelly taken from us as a result of contracting group B Strep infection at birth. On average, one newborn baby a day in the UK develops group B Strep infection. One baby a week dies from group B Strep infection. One baby a fortnight who survives the infection is left with long-term disabilities - physical, mental or both. It is the UK’s most common cause of severe bacterial infection in newborn babies, and of meningitis in babies under 3 months. Group B Strep is a normal bacterium carried by around 1/4 women, without symptoms and usually unknowingly. It can be passed from mother to baby around birth with potentially devastating consequences for the baby. But these consequences are usually preventable and that’s why I’ve started this petition with the charity Group B Strep Support. Unlike many other developed countries including Germany and Spain, the UK does not routinely offer tests to pregnant women specifically to check for Group B Strep carriage during late pregnancy. If doctors know a mum is carrying GBS, they can administer simple antibiotics during labour to prevent the infection - over 80% of these infections could be prevented. However the GBS-specific ECM (enriched culture medium) test is rarely available through the NHS. Since 2003, the UK has used ‘risk factors’ to guess which pregnant women might be at risk. Risk factors are poor at predicting which babies will develop the infection -- the number of babies infected is growing, we need to stop guessing and start testing. The ECM test costs the NHS £11 each and the antibiotics used in labour (usually penicillin) cost the NHS pennies. Had we had ECM tests in place, Edward Gili could be here today for us to see his first steps and hear his first words. We can’t afford to lose any more lives, we can’t afford not to do this.
Petition to Theresa May MP
Bereavement Leave to be given to all Grieving Families
Did you know that if a loved one dies your employer doesn't have to give you time off from work? 3 days seems to be the normal time given. My son Jack died suddenly just before his 2nd birthday and I was to discover the lack of entitlement . Please sign this petition to ask the government to Create Bereavement leave to protect other families. While many good employers offer compassionate leave, there is no statutory right to leave and this campaign aims to introduce two weeks of paid bereavement leave for the death of a Child and members of the immediate family. In the immediate aftermath of the death families have to cope with their individual loss, the grief of their wider family, including other children, as well as a vast amount of administrative and other arrangements such as the funeral and in some cases a post Mortem. Just three days off for a family death is an anomaly and I ask for your help to have this amended. I am supported in my campaign by many organisations who feel the same as I do. Grief can effect us at different times, it's something that we learn to cope with but it never leaves us #talkingishealing
Petition to Department of Health
To ensure a coordinated package of aftercare for all families following the loss of a baby/child, which will involve Midwives, GPs and full support networks.
In December 2012 we lost Charlie Arthur Curtis to Potters Syndrome after 19 minutes of life. Whilst in hospital the care we received was excellent, however once we stepped outside the hospital doors we found that there was little or no support out there for bereaved/grieving families. The support we received fell well below any standard a grieving family should receive. We want our experience to help improve the support available to other parents and families in the future. In Leeds alone there are 32,000 people awaiting bereavement counselling. The wait for counselling can be anything from 6 - 18 months. Surely this cannot be right. Bereaved families need support as soon as they leave the hospital. If each family were to be given a carefully coordinated personalised aftercare package their journey through grief could be made easier. We need your support to help get the Health Department to change their bereavement services throughout the UK. We know we can make a difference with your support. Already we have been able to generate much discussion within the NHS in Leeds.
Petition to Bromley council
Create a safe road crossing on Eden Park Avenue
Everyday my family cross Eden Park Avenue to drop the kids off at school and preschool.There is no safe place to cross, there are cars parked on both sides and people using it as a short cut can drive pretty quickly.I think there should be a crossing created so that the many people who cross the road to get to Unicorn school, Happy Days Nursery, St Johns Church and Langley schools feel safe.Many elderly people cross the road to get to the church. Many children cross the road to get to school or play on the fields.I would propose the crossing to be near to St John's Church. However, this would obviously be discussed.A safe place to cross is needed.
Petition to Theresa May PM, Gavin Barwell, Sajid Javid, Eoghan Murphy MP, Jeremy Corbyn MP, Andrew Gwynne MP, John Healey MP, Amber Rudd MP, Damian Green MP, Phillip Hammond MP, Boris Johnson MP, Jeremy Hunt MP, David Lidington MP, Peter Holland CBE, Brandon Holland MP, Greg Hunt MP, David Cameron MP, Theresa May MP, Rt Hon David Cameron MP, Nicky Morgan MP, Nick Clegg MP, Mary Macleod MP, The Hon. Sussan Ley MP, David Laws MP, Vince Cable MP, George Eustice MP, Gabrielle Upton MP, Nicola Blackwood MP, James Morris MP, Stella Creasy MP, Karl McCartney MP, James Wharton MP, Paul Uppal MP, Marcus Jones MP, Kris Hopkins MP, Ed Davey MP, Sadiq Khan, Caroline Lucas MP, Steve Lucas MP
Bill of safety - RISK ASSESMENTS FOR ALL HMO BLOCKS & TOWERS - residential homes at risk.
Post note IMmediate action to unlock Twyford House N15 fire escape - it has been locked from the outside - tenant on top floor (16th) fears dying ! Dear Prime minister, fire service , councils , government, minister of health, health & safety executive, and dear Media LMPS UK government Daily Mail The Telegraph TheTimes.co.uk TheMirror.gr Sky News BBC News ITV News ( please add to this list and repost) The Minister of Health, LLC Justice for Grenfell! @tradingstandardsdepartment I am appalled by the fact that in 2017 the British public services provided by our council taxes have failed 600 people in 120 homes. I am appalled that current conditions leave many other homes and humans at risk. I demand an immediate response and action taken to ensure that every home ( with priority given to those above 10 stories) has fire extinguishers/hoses/fire blankets/sprinklers and working alarms in place. That risk assessments are done immediately on all HMO's. I am unable to petition this action on your government led sight as it is closed due to general elections. furthermore I request a reason why the BritishArmy HMForces.co.uk were not called upon to search and rescue at the Grenfell Tower residents at RPT I am calling on my Prime Minister to take responsibility for ensuring a new bill is immediately drawn up to ensure this negligence never happens again. Please find below a list of you and your governments departments failings that need immediate review and changes; 1. Emergency services must ensure they can access all residential buildings. 2. Installation of smoke alarms, fire hydrants, hoses , foam or extinguishers on all floors of residential buildings. With immediate action on all tower block accommodation as priority. 3. Designated fire officers to councils who are accountable for risk assessments and implementing changes and ensuring EAP & EVACS are drawn up and posted for the general public s access on council websites. 4. All flammable and coated with flammable or potentially flammable exterior surfaces / coating/ cladding is removed from blocks of flats. Everywhere. 5. Emergency exits are totally reviewed and where necessary external cradles or stairs are fitted. 6. A national audit of tower blocks and fire safety is published 7. A national apology is given for the above failings. 8. The public are given truthful facts of how many people have survived Grenfell Towers fire 9. British government immediately re-home adequately and safely all families previously living at Grenfell tower and meet deposits and rent indefinitely 10. provide all survivors access to health care and mental health care providers as a priority. 11. Ensure every survivor is given a new photographic identity in order to assist their legal requirements. This includes adequate support for completing forms signing of photos and payments 12. Fund and all funeral costs 13. Immediately release the requested Muslim bodies for Islamic burial & those of other faiths 14. Provide assistance for translation document filling, compensation trust funds and compensation advances ( Intrim payments no less than 1 years rent and income ) in Lou of legal action. 15. Provide support to community led groups i.e. Locations, finances and impartial legal assistance 16. provide private medical assessments and urgent NHS federal to all in need be that victims survivors Neighbour extended families or local residence for physical and mental health 17. Public address by HRH Queen Or her next relative available, to address her people who are beginning to rise up against her failing government Kind regards Nicolette Del gallo W5 1BQ London
Petition to Minister Eoghan Murphy, Joe MacGrath
Finish Glencree, Newport, Tipperary
https://goo.gl/maps/EKmLeLog2Aq Residents in Glencree Newport are left angry and frustrated due to unfinished Estate. Glencree housing estate was originally built in 2003 where the majority of properties were sold off-plan. Such plans portrayed an idyllic setting displaying manicured green spaces, driveways, roads and street lighting. Plans to include 18 townhouses and a state of the art crèche at the entrance to the estate have never materialised. For those residents who have purchased homes, their reality is an entirely different picture. A number of residents have young families and said that it is fast becoming a nightmare scenario. To date there has been no satisfactory action taken by Singland Homes Ltd., to finish the Glencree Estate. Residents are appealing to Eoghan Murphy, T.D. Minister for Housing, Planning, Community and Local Government to take action as the appalling, unfinished condition of the housing estate is putting lives at risk and hampering the social development of the local community. One resident described it as an absolute eyesore and is affecting normal daily living for young families. Another described the metal fencing surrounding the housing estate as unsightly and unacceptable. Residents are infuriated by the dilapidated Porto cabins, unused building materials and an out-building which remain inside the fencing. Many expressed concern that the footpath surfaces to the main Newport to Thurles road are unfinished and hazardous, forcing people off the paths onto the main road, particularly during heavy rainfall. Residents explained that traffic coming from the Thurles direction is immediately met with what now looks like a run-down estate and are outraged by the fact that their homes are becoming inequitable and say this is having a serious effect on their lives. Residents have been let-down by local T.D.s and Counsellors and feel strongly that Tipperary County Council and politicians have failed them. Residents are seeking support from local business owners and the local community as the unfinished entrance devalues the locality of Newport and not just the estate of Glencree. Residents are now appealing to Minister Eoghan Murphy, to take swift action. They are demanding that their quality of life is restored and say that this is not what they bought into and is not what they envisaged for their family lives in Glencree 14 years later. Please sign and share our petition and help give us a voice. This petition is run independently of Glencree Residents Association