health and safety
Petition to Jeremy Hunt MP, NHS England Commisioning Board, Rt Hon David Cameron MP
Approve treatment to save Matty's kidneys before it's too late
My son Matty, is a normal 15 year-old boy. He is intelligent, popular, loves to be active and has lots of friends. Unfortunately he has a very rare and life-threatening condition called Dense Deposit Disease (DDD) which is slowly eating away at his Kidneys. Conventional therapies such as steroids have no effect on the condition and there is no recommended treatment available on the NHS. Sometime soon Matty's Kidneys will fail and he will be forced on to dialysis and then he will need a kidney transplant. That's where the problems start though because - apart from the obvious risks of major surgery and organ rejection - the disease is likely to return and attack the new kidney. There is a light at the end of the tunnel. There is one drug available which can stop Matty's deterioration and allow him to live a normal life. Eculizumab is licensed for other rare diseases in the UK but doctors aren't allowed to prescribe this for Matty even though all the evidence is that it will stop this disease in it's tracks. The problem is that Matty is caught in a Catch-22. Doctors can't prescribe because there is no NHS policy for using Eculizumab for DDD. There is no policy because there are no clinical trials and there will never be any clinical trials because the condition is too rare. Now the NHS has a process for that - it's called an Individual Funding Request. Unfortunately the IFR process demands that patients are clinically exceptional and the assessment of that definition is made by a self-elected screening team without the right for clinicians to appeal and not subject to any external scrutiny or accountability. So because there are a handful of DDD patients they are all effectively banned from using the IFR route. So the disease is too rare for a policy but not rare enough for individual treatment. In case you are wondering whether the drug works consider this: 1) ALL - 100% - of the published case studies of patients with DDD with certain clinical markers (which Matty has) have responded to Eculizumab 2) Patients in Scotland (and many other patients in Europe) are being treated for DDD with Eculizumab. 3) Insurance companies in the US are paying for Eculizumab for DDD Please sign this petition today and tell Jeremy Hunt MP and the NHS to correct their policy NOW and let Matty have this life-saving drug before it's too late. You can follow Matty on Twitter: @Eculiz4matt and on Facebook: https://www.facebook.com/matty.jones.716970
Petition to The Rt Hon Jeremy Hunt MP, Prof Dame Sally Davies, Dr Duncan Selbie
Provide tests for Group B Strep to prevent any more avoidable deaths of newborn babies
My partner Scott and I should have been sharing our son Edward Gili’s first birthday last month. But instead of having that exciting first year to celebrate and many more to look forward to, we had just 9 precious days to spend with our beautiful son. Edward was cruelly taken from us as a result of contracting group B Strep infection at birth. On average, one newborn baby a day in the UK develops group B Strep infection. One baby a week dies from group B Strep infection. One baby a fortnight who survives the infection is left with long-term disabilities - physical, mental or both. It is the UK’s most common cause of severe bacterial infection in newborn babies, and of meningitis in babies under 3 months. Group B Strep is a normal bacterium carried by around 1/4 women, without symptoms and usually unknowingly. It can be passed from mother to baby around birth with potentially devastating consequences for the baby. But these consequences are usually preventable and that’s why I’ve started this petition with the charity Group B Strep Support. Unlike many other developed countries including Germany and Spain, the UK does not routinely offer tests to pregnant women specifically to check for Group B Strep carriage during late pregnancy. If doctors know a mum is carrying GBS, they can administer simple antibiotics during labour to prevent the infection - over 80% of these infections could be prevented. However the GBS-specific ECM (enriched culture medium) test is rarely available through the NHS. Since 2003, the UK has used ‘risk factors’ to guess which pregnant women might be at risk. Risk factors are poor at predicting which babies will develop the infection -- the number of babies infected is growing, we need to stop guessing and start testing. The ECM test costs the NHS £11 each and the antibiotics used in labour (usually penicillin) cost the NHS pennies. Had we had ECM tests in place, Edward Gili could be here today for us to see his first steps and hear his first words. We can’t afford to lose any more lives, we can’t afford not to do this.
Petition to Theresa may/uk goverment/secretary of state, chris leslie, vernon coaker, nick clegg deputy, Jeremy Hunt, Theresa May MP
CHANGE THE GUIDELINES USED AT HOSPITALS WHEN DEALING WITH AUTISTIC CHILDREN HARRY WAS LET DOWN THIS CANT HAPPEN AGAIN WE ASK THAT THESE CHANGES WILL FOREVER BE KNOWN AS HARRYS’ LAW
my 4 yr old autistic son lost his life this can never be allowed to happen again this petition is to run along side a paper petition and an epetition already in progress We were in a+e and the ward of the hospital for a combined time of just under 9 hours the dr in a+e said harry was 8% dehydrated and needed to be put on a drip and have blood tests taken and even prepared him with numbing cream and sent him to the ward we entered a+e at 8 mins after 12pm we were on the ward for just about 2pm and left just before 9 pm all this time we kept asking for the tests to be completed The heart murmur was detected on the ward at approx 4pm His blood tests taken after he passed away shows high levels of potassium high levels of sodium some liver and kidney problems and some other abnormalities when I asked if they would have been detected on the friday or saturday I was told yes I also asked if he could have been treated and again I was told yes So it seems the dr in a+e may have given the right diagnosis but the drs on theward just never followed through on the tests and treatment the full story is below my little boys story on the 18th June I attended the gp's with Harry as he had been ill for a few days and his mum and I were growing concerned as although the vomiting and diorreah had stopped he was getting no better within himself. We were seen by dr layzel who said that he had a tummy bug and a temperature and although he had lost some weight this was not much of a concern and advised that we should continue giving Harry paracetamol and she made a further appointment for the Friday so that harry could be checked again as the weekend was approaching. on the evening of the 19th June Harry's' mum and I were still concerned so we telephoned the 111 service and we were advised to take harry to the out of hours service at nems on derby road which we did we were seen by the doctor and again told that he had a temperature and a tummy bug and as we already had a gps' appointment the following morning we were advised to continue with the paracetamol and attend the appointment the following morning. on the 20th June we attended the gps' appointment and we were seen by Dr Holly Barret who checked harry over she also asked dr layzels' opinion as she had seen him previously and they both said they weren't too concerned but as the weekend was upon us she asked that I take harry to A+E at the QMC so that a paediatrician could check him over. we arrived at A+E at approx 12pm there was a short wait and then harry was seen. The nurse that saw harry took his obs and we explained about his severe autism which made him anxious and distressed when in unfamiliar environments she said that his temperature was a little high and his heart was racing his blood sugar was fairly high at 9.4 and harry was given the priority level of a category 2 to see the doctors. after the doctor had seen harry we were informed that they wished to tube feed him however harry started to take nutrition orally via a syringe and after a while harry was given a fairly large dosage of ibuprofen when I questioned this i was told that larger doses can be used within the hospital as they dose on weight. Harry had cream applied to both arms and legs as we were told blood tests were needed. harry was then sent up to the children's' assessment unit on arrival we again explained about the severity of his autism and also about his previous problems with his heart when he was a baby and again his obs were taken. we were told that his heart was again racing and that a murmur was heard along with a gushing noise and we were told that an ECG and blood tests were going to be undertaken. we were left sitting in the ward with a very distressed child (due to his autism) for hours we kept asking about the murmur and in total 3 doctors heard this so again we kept asking about the tests as harry was becoming more distressed and had the cream that numbs on both arms and both legs and were told that it was all in good hands, in total my son was left for over 8hours with nothing practical being done we also had to tell the Doctors on more than one occasion that he had thrush in his mouth. Harry was becoming more and more distressed and the test were not being undertaken so we asked again and again but nothing was done. eventually we asked if we could take Harry home for the evening as he was very distressed and would not settle this was agreed with the Doctors with the plan that we return Saturday morning which we did, when home Harry was asleep within 15minutes. on out return Saturday morning still no tests were carried out only his obs and weight we were then discharged by the Doctor and told to take him home and given prescription and told to carry on feeding fluids orally via a syringe which we did. On Sunday he was much the same and then on the Monday he passed away. during his short stay in hospital we were left for hours with a very distressed autistic boy and very little was done we repeatedly asked about the murmur and about his heart and repeatedly asked about the ECG and blood-tests they had said were needed yet these tests were not carried out despite all of our questions nothing was being done. all the above is why we feel that his care while in the hospital was highly inadequate and that the hospital didn't listen and take our concerns seriously instead they did very little for over 8 hours if they had listened to us and had done the tests that we were told were needed i truly believe that my son harry would have received the correct treatment and would still be with us today. we have also received a discharge letter which mentions a diagnosis of gastroenteritis we were never told this also no medications listed although a prescription was given for harry by the doctor on the ward. the system needs changing and we are eager to make sure that it does so this can never happen again with a different system my son would still be alive today. Harrys law 1: On arrival to A&E status elevated to level 2 so less waiting time to cut down stress levels 2: Each childrens department to have atleast one Dr and nurse trained in autism awareness on duty at all times and they be assigned to specific children with special needs and that they have periodic updated training 3: Experienced play workers to be made more readily available 4: Quicker transitions from one department to the next 5: Side rooms made available to cut stress levels 6: Notes and identity bracelets coloured as a clear indicator of special needs 7: Parents always to be approached first 8: Any treatments or tests needed to be done swiftly 9: Do not leave autistic children unattended at any time 10: Make sure any appropriate treatments or issues are dealt with before discharge 11: Make sure parents have all relevant information during the stay in hospital and on after care on discharge 12: Make Drs aware and accountable for their own actions 13: Give any willing parents a questionnaire so that the hospitals can learn from them
Petition to Sunray Day Care Nursery
Reduce Nercwys Road from National Speed limit to 40MPH before another fatality happens!
Attention all local residents of Mold, Nerwcys and Treuddyn. We need your help to reduce the speed limit of Nercwys Road (Main road passing Sunray Day Care Nursery) from National Speed limit to 40MPH. How many more road traffic accidents will there be before this speed limit is reduced. Please support this petition before another tragic accident happens.
Petition to Woodlands Health Centre, Sarah Baker
Keep East Peckham Branch Surgery Open
In view of the impending decision of an NHS England Panel regarding the proposed closure of the East Peckham Branch Surgery, Woodlands Health Centre has received nearly 200 representations from local patients and highlight the strength of feeling in the village. East Peckham Parish Council has also received many letters from residents expressing disappointment that this decision may be taken and this view has been echoed by Tom Tugendhat MP, Parish Councillors, Borough Councillors and our County Councillor. as well as many other village groups. East Peckham is a rural community which relies on its local services. It is three miles to the nearest rural service centre, it is not served by a rail connection and has only one bus an hour travelling through the village. furthermore over 600 residents in East Peckham are not in good health and rely on having a local surgery the most. Taking this facility away will damage the lives of those patients who rely on a local surgery the most, particularly with transport to nearby alternatives difficult. We have estimated that it could take up to two and a half hours to attend an appointment in Paddock Wood and that is if buses and appointments run on time. Not everyone in our rural community have their own transport or can rely on lifts into Paddock Wood. Taxis could also be cost prohibitive. I urge you to sign the petition so that East Peckham Parish Council can put pressure on the NHS England Panel to make the best decision in the interests of patients. The short timescale between the announcement of consultation and possible closure has left no time for patients to find alternatives. East Peckham Parish Council is also yet to be satisfied that every possible avenue has been explored to keep the branch surgery open. In light of the short timescale, any decision to close East Peckham branch surgery will be premature and will satisfy neither the Parish Council or patients.
Petition to Irish Government
Equal Pay Scales for Irish Front-Line Public Sector Workers
Petition to abolish unequal two-tiered public sector pay scales in Ireland. Recently qualified Front-Line Public Sector Workers (including teachers, gardaí and healthcare workers) deserve to be paid in accordance with our country's Equal Pay for Equal Work values. **********Please sign and SHARE if you agree********** Women getting paid less or being treated like they are worth less is WRONG. People of different races or creeds getting paid less or being treated like they are worth less is WRONG. Yet, for some reason, in Ireland today, people who began work in 2011 as opposed to 2010 getting paid less or being treated like they are worth less is OK? Starting at the bottom of a single pay scale system is the way the public sector had operated fairly and justly for years. But recently, for the past 5 or so years there has been a significant split, with newly qualified Front Line workers being placed on a completely different and far inferior pay scale that will never reach the original. It means they lose out on well-deserved earnings over their careers while fulfilling the exact same roles as those who earn significantly more. This needs to end now. **********Please sign and SHARE if you agree********** These two-tier pay scales are damaging the quality of future workers in these vital Front-Line Public Sectors. A brain-drain from Ireland is under way. Many new nurses and teachers, educated and trained in Ireland, go to work abroad in order to secure fair and equal pay with their colleagues. This waste of resources and loss of talent is a direct result of a policy which discriminates against new entrants. Those of us who remain, struggle to make ends meet which leads to low morale. After 5+ years of this lower pay, we have had enough of this unjust disparity. These pay cuts, which only target recently qualified Front-Line Public Sector Workers, will have a detrimental effect on the future quality of each of these sectors in Ireland. These sectors are being seriously devalued, making them a less attractive prospect for capable young people who are considering their future career choices. Whether you personally know a young garda, teacher, healthcare worker or not, the chances are you will know someone who has been well protected, educated or cared-for by one. Please sign this petition and share it with whoever you possibly can! Hopefully it can help these Front-Line Public Sector Workers to get back to earning a just and fair salary and help strengthen our key public sectors for the future. **********Please sign and SHARE if you agree********** Thanks, Colm ************************************************************** Please follow and tweet unions, politicians and media using #PAYEQUALITYIRELAND @INTONews for primary teachers @ASTIunion and @TUIunion for secondary teachers @INMO_IRL for nurses @gardarep for gardaí @endakennyTD for the Taoiseach @paschald for the minister for public expenditure @richardbrutonTD for minister for education @michaelnoonanTD for minister for finance Please contact your local TDs, the new government ministers and their opposition counterparts to ask your questions and make your opinions heard: http://www.oireachtas.ie/parliament/tdssenators/ Facebook: Please follow Equal Pay For NQTs, Gregor Kerr Teaching Council, Voice For Teachers, Fightback and Carbery ASTI for information on future meetings and planned protests. INTO meetings are happening in your local branches as we speak, even if you're not a member, please attend and make your voice heard or just your presence felt by filling a seat. The INTO have only just been pressured into treating this as a priority, if you sit back and wait it simply won't get sorted. Here are the list of branch meetings and dates: http://www.into.ie/calendar/t4.do?pid=p1 Bring a colleague or two if you can, but please attend. Please contact me at firstname.lastname@example.org if you have any contacts or have any suggestions to grow this petition.
Petition to Ministry of HRD in India
Ministry of HRD to instruct schools for NOT burdening kids with over weight school bags.
School bags carried by kids are too heavy and it can cause damage their spine if the bag weight is more than 15% of the student weight as per a very well known spine surgeon in Hyderabad, India. Carrying such heavy weight bags to 4-5 floors could also seriously damage the spine as most of the private school buildings are vertical now a days and without elevators obviously so, the ministry of HRD to act on it with top priority and implement necessary steps immediately to limit the number of floors for school buildings to max two and also the weight of the books/bags as per doctors' advise.
Petition to Department of Health
To ensure a coordinated package of aftercare for all families following the loss of a baby/child, which will involve Midwives, GPs and full support networks.
In December 2012 we lost Charlie Arthur Curtis to Potters Syndrome after 19 minutes of life. Whilst in hospital the care we received was excellent, however once we stepped outside the hospital doors we found that there was little or no support out there for bereaved/grieving families. The support we received fell well below any standard a grieving family should receive. We want our experience to help improve the support available to other parents and families in the future. In Leeds alone there are 32,000 people awaiting bereavement counselling. The wait for counselling can be anything from 6 - 18 months. Surely this cannot be right. Bereaved families need support as soon as they leave the hospital. If each family were to be given a carefully coordinated personalised aftercare package their journey through grief could be made easier. We need your support to help get the Health Department to change their bereavement services throughout the UK. We know we can make a difference with your support. Already we have been able to generate much discussion within the NHS in Leeds.