Topic

health and safety

560 petitions

Update posted 12 hours ago

Petition to Rt Hon Jeremy Hunt Secretary of State for Health, Theresa May MP

Automatically become a UK Organ & Tissue Donor with the option to Opt Out

My name is Lucy Ryan and was incredibly lucky to receive a life saving heart transplant 23 years ago aged 2 years-old.  I am also fortunate enough to have a lot of fellow transplantees as friends due to someone somewhere being generous, selfless and brave enough to donate either their own organs & tissue, or those of a relative at an unimaginably difficult time.  But heartbreakingly I have lost friends along the way who waited for a transplant they never received. 96% of the UK population have expressed a desire to donate their organs yet only 33% are signed up to the current Opt-in system.  (The Opt-in system is where to become an organ and/or tissue donor those of us living in Scotland, Ireland and England must make the effort to sign up to the organ donor register.)  This is all well and good, but despite it being so simple and fast to sign-up by for example spending two minutes online, many of us still have not “opted-in”! This is even with all the amazing work charities and organisations do to raise awareness of the need for more donors.  I know from my own experience it is often something we keep meaning to do, but it never quite reaches the top of the “To-do” list! In the past few years I have been becoming increasingly frustrated with the growing organ donation crisis and  decided it was about time I took some action.  I researched the best way to try to improve the situation and consequently I passionately believe the introduction of the “Soft Opt-out” system in all of the UK (alike Wales did in December 2015) is what we need (Scotland & Northern Ireland have already proposed the same idea).  Once the system is reformed we will wonder why on earth it took us so long to do it like banning smoking in restaurants! The Soft Opt-Out system would be a massive leap forward, because everyone is automatically signed up as an organ & tissue donor unless they decide to “opt-out”. Also, if no objection was registered during their life their relatives are consulted at the time of death, and if there is still no objection raised it is only then any organs and tissue would be used for donation. II believe the majority of those whom do not wish to become organ donors are far more likely to make the effort to opt out, than the 63% of the current UK population who would like to become organ donors but have not yet "opted-in". By becoming a donor you can save almost as many lives as cats apparently have, and that is not including the fantastic life enhancing effects donating your tissue and corneas can have on recipients.   3 people die Every day waiting for a transplant—Let’s all Opt in to Opt out and end the donor crisis! Thank you for taking the time to consider my proposal and hopefully sign up. With your support we can make this happen. Yours Sincerely Lucy Ryan

Lucy Ryan
2,937 supporters
Update posted 4 days ago

Petition to Highways England, Herefordshire Highways Authority

Safety Petition to prevent more serious accidents on A49

Safety petition A49 south of Hereford city (SO 50060 35852) 20.03.16. This petition aims to achieve changes to the signage and road layout on the A49, a road that has been the site of many accidents, injuries and fatalities throughout its whole length. Specifically this is a response to a serious accident that occurred on a stretch of road between the Grafton Garages and the relief road roundabout on Wednesday 16th March when a Landrover and sheep trailer hit the back of a car in which a mother and her child were trying to turn right into Norton Brook Lane. The trailer overturned onto the top of the car; another car was also involved in which the pregnant mother and child were thankfully unhurt, but the father suffered a serious leg fracture. He had to be cut out of his car. Norton Brook Lane is in constant use as it is the turn to a day nursery. Traffic needing to turn right into the lane are highly vulnerable as the turning is hidden, narrow and poorly signed, and cars that have gathered speed down the Callow Hill are often driving too fast to stop behind cars turning right. This problem has been present for many years and the recent accident has highlighted the danger of this stretch of road, and the fact that it is young children and babies who are regularly at risk. The petition will go to Highways England, local councillors and MPs, and the members of the Highways and Transport cabinet of Herefordshire Council. Your signature on this petition will help to improve the safety of everyone using this road and highlight the dangers of black spots on the A49. Following a major accident at this site on Wednesday 16th March 2016, we the undersigned request the following:  1. A 40 mph speed limit on the A49 from SO 50451 36583 to SO 49802 35447   2. The creation of a wide splay at the bottom of Norton Brook Lane to alert drivers on the A49 to the presence of this turning and make it clear why there are Reduce Speed signs. A wide splay would also improve visibility and leave more space for two cars or tractors to pass easily when one is entering and the other leaving.  3 Installation of school warning signs in both directions on the A49.  4. Improvement of the visibility of the Reduce Speed warning signs.

Caroline Slough
2,645 supporters
Update posted 4 days ago

Petition to National institute of health care excellence

Approve the Enzyme Replacement Therapy on the NHS for my Sons rare genetic disease (LALD)

My 8 yr old son Connor was recently diagnosed with an incurable rare genetic disease, called Cholesteryl Ester Storage Disease or LALD; (Background- Lysosomal acid lipase (LAL) deficiency is an inherited autosomal recessive lysosomal storage disorder. It is caused by a deficiency of the LAL enzyme resulting in abnormal accumulation of lipids in cells, organs and tissues, primarily in the gastrointestinal, hepatic and cardiovascular systems. LAL deficiency in infants is known as early onset LAL deficiency or Wolman disease. This is the most severe form of the disease normally resulting in death in the first 6 months of life, mainly due to growth failure. LAL deficiency in children and adults is known as late onset LAL deficiency or cholesteryl ester storage disease. It is typically diagnosed in childhood or adolescence and involves hepatic and cardiovascular problems including hepatomegaly, cirrhosis, liver failure, dyslipidemia and accelerated atherosclerosis, normally resulting in death before the age of 30. The prevalence of LAL deficiency in England is unknown. It is estimated that there are approximately 3 to 4 people with early onset LAL deficiency, and approximately 20 to 40 people with late onset LAL deficiency in England. There were 36 admissions for LAL deficiency during 2010-11. LAL deficiency affects men and women equally. There is currently no treatment for LAL deficiency. Although enzyme replacement therapies are used for treating people with lysosomal storage disorders characterised by specific lysosomal enzyme deficiencies, none are currently available for treating people with LAL deficiency. Medical management is aimed at controlling symptoms and managing complications. Bone marrow transplantation, with intravenous nutritional support, has been used on an experimental basis for treating people with early onset LAL deficiency. A low-fat diet and cholesterol-lowering drugs such as statins are used to lower high levels of cholesterol and other fats in the blood in people with late onset LAL deficiency. These treatments have limited efficacy and have not been shown to improve the underlying disease.) There is a new trialled, effective, & licensed treatment called "enzyme replacement therapy" which is the only known effective treatment to give Connor, to slow down & manage this progressive disease, however it is currently sat with the "national institution of health care excellence board" who have not yet reached a decision on whether to market this treatment on the NHS due to the cost & other factors. Without this treatment Connors condition will just continue to worsen. Please help us so we can make the N.I.C.E board make the right decision to release this treatment for Connor & any others out there suffering from this disease xx

Helen Marsden
1,774 supporters