Petition to Suresh Prabhakar Prabhu, Mr. Narendra Modi, Maneka Gandhi, Suresh Prabhu
Implement disabled friendly measures in Indian railways
I've been groped and manhandled three separate times by porters. They were helping me board the train because Indian trains are not wheelchair accessible. I am a disabled woman living in Mumbai who loves to travel. I have had to wear a diaper because I couldn’t use the train bathroom. And when I needed to change that diaper, I had no privacy and had to wait for hours for the lights to go off at night The railways treat the disabled as a piece of luggage. This needs to stop! Sign my petition and join me in asking the railway minister and the Prime Minister to implement disabled friendly measures in Indian railways. According to The Disability Rights bill, there need to be facilities available for those with disabilities. The Railway Ministry has been talking of making trains disabled friendly but in reality, we are still humiliated every single time because of poor implementation. My fight is to ensure human dignity for the disabled. I am asking the authorities for some basic things everyone takes for granted- Accessible bathrooms with proper space inside the bathroom, clean and higher toilets, low sinks so we can easily wash our hands. Accessible coaches for the disabled in all trains, ideally one for each class. Enough space between berths so it is easy to fit a standard size wheelchair between the berths and we can shift onto our seats when needed. Curtains around the berths for when we need to change. Often, I've needed to change my clothes and the berths are too small for me to role around to change my clothes, as well as have no privacy. Proper infrastructure to cross railroads if needed to change platforms. Beside these infrastructure related demands, I also want an attitudinal shift in the way the disabled are treated: Sensitise people to let those with disabilities board first as the general public normally does not care about our well being. Everyone is in a rush to get to their seats. Sensitise abled-bodied persons to not board the handicapped compartment, especially in local trains. We often see that in the local train, those who are not disabled will climb in. That isn't fair. Train the drivers and TCs to halt the train till a handicapped passenger has finished boarding, especially for local trains. The local train only stops for two minutes and with all the crowd, it is very difficult to board. I want to sit down with PM Narendra Modi or the Railway Minister Mr. Suresh Prabhu and talk to them about the difficulties faced by those whom are disabled. Sign my petition and ask PM Modi and Railway Minister Suresh Prabhu to implement measures to make the Indian railways disabled friendly.
Petition to Francis Collins, Tom Price
Increase Funding For ME/CFS So We Can Find a Cure
I am only 31, and yet, simple tasks like taking a bath completely exhaust me. This is because I am one of millions of people worldwide who suffer from Myalgic Encephalomyelitis (ME/CFS), a complex, multisystemic disease that causes disabling symptoms like chronic pain, cognitive impairment, exertional intolerance, severe weakness and crippling fatigue. Many days I am too weak to do anything but walk to the bathroom and back to my bed. Before I became sick, I was able to attend LSU, study abroad, enjoy SEC football and earn a degree in Journalism. Now, just a trip to the grocery store can land me in bed for days. I've lost my independence and take 25 pills a day just to manage the pain and symptoms of the illness. I have lost my life as I knew it. Health Agencies have dismissed this disease for decades and failed to take the health of millions of sick people seriously. There are no FDA approved treatments or cures for the disease on the horizon, which is the direct result of a major lack in funding for biomedical research. In the 2016 federal budget, the NIH allocated $6 million toward studying ME/CFS. More than double that amount was spent on male-pattern baldness. Meanwhile we are suffering, some of us bed bound, with little hope and our futures up in the air. We can do better. Please stand with me and the millions suffering with this life-sucking disease in demanding that Francis Collins keep his promise and that the NIH drastically increase their allocated funding for ME/CFS research. The burden of this disease is huge, on families and the economy. It costs our country billions every year in lost productivity because more than half of us are too sick to work. Families savings are drained as most insurance fails to cover the high cost of longterm management. There are so many others like me; once living productive lives with families and promising careers. Now we're stuck with an orphaned disease and our pre-sick lives are just a memory. Some patients are so severely ill, they are confined to dark rooms, unable to tolerate sound, talking, or light. They cannot walk and some are unable to eat. They aren't "living" they are just hanging on. And it doesn't have to be this way. I started this petition because people suffering from ME/CFS just want our lives back, and that will only happen with an effective treatment and eventual cure. With your signature, we can hold the NIH and congress accountable for taking our disease seriously and honoring our request to increase the NIH research budget to $100 million for ME/CFS funding. We can also restore hope to millions world-wide that they may live again, including me and my dog Monty. Thank you. #WeCanDoBetter Let's do it now. Read about my weird sick life at 25pillsaday.com Visit millionsmissing.org for more information about upcoming protests.
Petition to Bernie Sanders, Vermont Governor, Vermont Dept. of Aging and Independent Living
Keep Martha in VT!
*** Please read 10/7/17 Update at BOTTOM of this page. I've been advocating for years, now Martha is out of state and deteriorating. Scroll down to bottom for update. Please help Martha stay home!! I'm Martha's mom. Martha is 16 years old and has autism. She is a smart, capable, sweet, hard working and complicated young lady. She wants to be a farmer when she grows up. I started a home-based business growing vegetables and raising chickens, so she could do just that (Martha Grows,llc). I also founded a non-profit organization that will provide opportunities for others with autism (Martha's Barn, Inc.) I have been preparing for Martha's future everyday. Every. Single. Day. I have not stopped advocating for her since the day she was diagnosed at age 2, and I will never stop, as she doesn't have the voice to do it on her own. I have worked tirelessly advocating for Martha's care and education her entire life. That's why I started a business for her to work at and a program for her and others to be involved in, once they 'age out' of high school services. I'm planning on bridging that cliff for Martha and her peers. I love our community and Vermont and I want to keep that an integral part of who Martha is, my little farmer. What I HAD NOT prepared for, was the day I would be told VT cannot fund what Martha needs to remain home. Martha's needs are complicated and require a skilled team. Her educational, psychiatric and therapeutic needs are complex, as well, but she is in a wonderful program, right here in our community, and supported by a team of doctors. The missing piece is that her program can't stop when school ends. Our home life is tumultuous, to say the least. Martha struggles daily to stay safe. She has needed a 'continuum of care' for years, and now, I am desperately advocating for one, as our other option is sending her out of state, giving her to DCF custody or to another family to care for. This is unacceptable. I have applied for an out of state residential school placement for Martha, with her team's support, as we know, time is running out for her. I have been pushed to that point. Her needs are great. I am being told her VT plan lacks a 'system' to fund it. What? Isn't it better to fix the system than to send Martha away? Martha's IEP team and I have created a cost effective solution to keep Martha home and learning in her current community environment and in her current school placement. We have extended her current services to created a 'full day and supported overnight' to meet her level of need. Our solution is to build Martha more living space, to meet her safety needs, paired with the services and educational supports she has already here in our community. This will allow her a therapeutic environment to learn and sustain life skills, provide overnight space for staff but most crucially, the safety modifications to allow medication changes, which can't happen currently, unless she were to spend months in and out of psychiatric hospitals, none appropriate for her exist in VT. Both the Agency of Education and the Agency of Human Services are failing Martha. And they are failing others with this level of need. The state of Vermont is afraid to set a precedent, that is the underlying reason that Martha's crisis is not being funded. How can sending Martha out of state be justified? It can't be. Vermont can do this. We CAN meet the needs of our most vulnerable, in a cost effective way, but not if the AOE and AHS don't work together. I hope VT builds residential schools and programs that provide state of the art care and education for our kids. Our kids are vulnerable, they need to be close to home. VT needs to keep VT dollars in VT, filling this need at home, keeping our families together, especially the 'Marthas'. We need to create this wheel. Why don't we have more options for our severely autistic children? We have the means, the resources and we certainly have the need. I hope the future includes a system to support the 'Marthas' in our state. It is fiscally irresponsible to keep sending our kids away. Here is the crux of the problem, as I understand it: VT's ACT 264 PLAN and The SYSTEM OF CARE PLAN FOR DEVELOPMENTAL DISABILITIES (the governing documents for Martha and the Marthas of VT) were created with the mission "to make Vermont the best state in which to grow old or to live with a disability; with dignity, respect and independence" and "that human services and public education work together, with parents, to coordinate services for better outcomes for children and families..." But they don't work together well. And our children don't have options. Act 264 can't help families, if VT lacks any infrastructure. Where does Martha fit in? Do I have to give her up to DCF custody to get her needs met? I'm confused. She won't be growing old here if she has to leave VT? Is this mission meant for the people with disabilities less severe than hers? Does her level of need fit into this plan? WHY are the most vulnerable VTers leaving VT? I am told there is 'no system to fund her home accommodations but there is a system to fund out of state residential'. I was told that when I called the Governor's hotline 2 weeks ago. I appreciate that option of out of state, I really do. But her needs can be met here (I have the ACT 264 and IEP notes to show that). If her plan can't be funded, than Martha has to move to MA, for many years, as she can't come back to VT with nothing in place for her? Is this Vermont's intention? I hope not. In the meantime, this is what Martha needs to avoid out of state residential placement... an addition off of her bedroom, approximately 500 square feet, as determined by her Psychiatrist and IEP team. It is much more cost effective than many years of out of state residential. Her IEP team and Act 264 notes reflect that we have been able to solve this issue, saving Martha and saving money. But the current system is not set up to support our children at home. This requires 'out of the box' thinking to save my daughter from leaving VT. I think VT can fix this problem. We should have a 'continuum of options' for our children, ranging from Least Restrictive to Residential. VT does not have a Residential Treatment School in VT. When Brandon Training School closed 20 years ago, VT changed its mission to include all VTers in their communities. What happens to the children who need the same amount of school based treatment to also keep their children safe and learning at home? These VT vulnerable children are leaving for out of state residential placements, that's what happens to them, and these numbers are increasing. Please provide a continuum of options in VT so that our families don't have to be separated, for all Vermont children, not just Martha. Currently, I am trying to amend Bill H.859 to include the needs of my daughter and others like her, so that may get their needs met in VT. We could access all of our VT resources and build our infrastructure from within our own state, I am hoping. I appreciate you reading this petition. Please sign, please share with everyone you can, I need as many signatures as possible to help my daughter. Please help Martha stay home. Time is running out for her. Thank you from the bottom of my heart, Kathleen Burke Kourebanas (Martha's mom) Essex, VT
Petition to United States Department of Transportation, Rick Scott, Florida State Senate, Florida State House, Marco Rubio, Bill Nelson, Debbie Wasserman Schultz, Patrick Murphy, Ileana Ros-Lehtinen, Alcee Hastings
For Local, Statewide & Nationwide Transportation Depart. To Install Special Needs Signage
Every person No Matter What There Disability Needs Protection. Under Autism Awareness Especially for me, My 3 Yr old Son, #TEAMGRAYSON Plays Everyday In a his Own Yard while Speeders Fly down the roads around our home even though the Speed Limit Is 25 mph. However When I Called the County and The State Transportation Dept there Response was " Sorry we Don't do those TYPES of Signage Only For Blind." My Heart Broke, knowing its only a matter of time that One Child Can Get Hurt or Even Worse Killed By A Speeder Unaware of Their Surroundings, Especially when it is a Child or Adult of Autism and/or Special Needs that is Non Verbal Or Non Understanding Of Verbal Commands. So We Made Our Own and It has Drawn a lot of Attention in our Neighborhood as well. So This made me want to push Forward and give the CHILDREN WITHOUT THE ABILITY TO SPEAK A VOICE! ALSO CHECK OUT OUR FB PAGE GRAYSON'S LAW https://www.facebook.com/Graysons-Law-1554944634536756/
Petition to Charlie Baker, Massachusetts State Senate, Massachusetts State House
Disability for Firefighters with Parkinson's Disease due to toxins on the job. (MA H.1455)
A fire can expose firefighters to millions of chemicals and toxins. We have become aware of the massive risks these toxins pose for first responders, who breathe them in, ingest them, and absorb them through the skin while putting their lives on the line. Most states have adopted “cancer presumptive laws,” meaning that if a firefighter gets cancer on the job, they are automatically awarded accidental disability to see them through their illness. But the increased rate of Parkinson’s Disease (PD), a degenerative brain disorder, in firefighters has mostly been ignored. I am a firefighter who was recently diagnosed with Parkinson’s. I am not alone -- while the rate of PD in the general population is 3 out of 1000, it is 30 out of 1000 for firefighters. I am young to be experiencing this disease, but that’s often how it works for emergency responders, and there is mounting evidence that our exposure to burning chemicals is the culprit. I have 12 years left until I reach retirement, and, unfortunately, I am not sure I'll be able to keep working that long. My state of Massachusetts has great presumptive laws for firefighters, not only for cancer, but for heart and lung disease as well. It is now time for our legislators to include Parkinson’s Disease among these illnesses. We cannot ignore the connection between toxic chemical exposure and PD anymore. While PD usually develops slowly among the general population, symptoms often hit firefighters fast, seemingly out of nowhere. Research now suggests that toxin-induced PD has a more rapid onset than genetic PD, another indicator that we are, indeed, contracting this illness on the job. For those of us struggling with Parkinson’s, walking, talking, grasping and even blinking become increasingly difficult tasks to accomplish. Needless to say, continuing to work as firefighters while battling this disease is most often not possible. Indiana recently became the first state to include Parkinson’s in its presumptive law. This has provided unimaginable relief to many firefighters, who were running out of sick time, and facing unemployment and massive medical bills due to their debilitating disease. We now must band together and demand that more states recognize the link between firefighting and PD, and include PD among the illnesses covered by their presumptive laws. Please sign this petition to include Parkinson's in Massachusetts’ presumptive law, which would allow firefighters with Parkinson's to retire on full accidental disability.
Petition to Kansas City Authority Transportation Authority
Switching Blue Springs Express buses back to original route
I’ve been riding the KCATA Blue Springs buses for several years. They have never dropped us off and made us walk across dangerous Pershing Road by Union Station. All 3 busses have riders in Wheelchairs getting off/on at the IRS stop. That is 3 Wheelchair Employees. That is dangerous. It is even dangerous to have them go to the stop light to get across. My wheelchair doesn’t go fast enough to beat a car that is not obeying traffic rules.
Petition to U.S. Senate, U.S. House of Representatives, President of the United States, Tennessee State Senate, Tennessee State House, Donald Trump, Orrin Hatch, Alabama State House, Alabama State Senate, Richard Shelby, Texas Governor, Texas State Senate, Georgia State House, Georgia Governor, Georgia State Senate, Johnny Isakson, New York State House, New York State Senate, Kirsten Gillibrand, New Jersey State House, New Jersey Governor, Charles Schumer, Cory Booker, California Governor, California State House, Arizona Governor, Arizona State House, Jeff Flake, Arkansas Governor, Mississippi State House, Mike Moon, Michigan State House, Michigan State Senate, Michigan Governor, Rick Snyder, Missouri Governor, Al Franken, Missouri State House, Missouri State Senate, Amy Klobuchar
Remove the Marriage penalty against couples
People with disabilities may have to do things differently than non disabled people, and may look and act differently, but we are alike in so many ways . We all want to have love and our own families. We want to experience life and how it feels to fall in love . We want to experience how it feels to love someone who loves us in return. Finding love with someone that understands our medical needs can be challenging at times but not impossible. But a lot people with disabilities depend on financial support from the supplemental security for income and getting married makes things more challenging for people with disabilities because they would lose so much by getting married .Like for a couple who are both disabled and both receive help from one of the government programs, they will receive 25% less income (than two individuals living together or separately) if they get married . There is another problem that both disabled and non disabled couples are fighting to change and that is the fact that people are not always allowed to see their loved ones in the hospital for surgery if we are not legally related to the patient . If you get married in order to have those rights, if you are also disabled, you could be giving up necessary financial help. When rules prevent people with disabilities from having normal couple and life relationships, those rules need to be changed. We just want to have the same rights as our other non disabled friends and family. Please take a look at this petition and Please consider signing and sharing this petition . This is a problem that needs to be corrected. We can't do this alone . We need all the support we can get . Thank you
Petition to Richard Burr, President of the United States, Donald Trump, Thom Tillis
Approve my Social Security Disability
I WANT TO PERSONALLY THANK EVERY ONE OF YOU FOR YOUR SUPPORT DURING THIS DIFFICULT JOURNEY IN MY LIFE. YOUR SUPPORT, PRAYERS, ADVICE, AND FRIENDSHIPS HAVE PUSHED ME THROUGH THIS PAST Year. (I changed my main photo because some said it was too brutal to look at) MY STORY: Raleigh News and Observer article Three years ago, I was in a car wreck that left me with a traumatic brain injury. I now suffer from seizures: I simply black out, with no warning, several times a week. Because of this, I can never drive again; I can’t work. I can’t even shower alone, and I’m running out of hope. Before my injury, I was an electrician by trade. I always worked and supported my three children. I tried going back to work after the wreck, but my seizures forced me to stop. My multiple attempts to get on disability have been denied even though my medical history is well documented by hospitals, neurologists, doctors, and psychiatrists. I have given the Social Security office all the medical and financial records they have asked for. I have had a couple doctor's notes since 2014 that said I could not work because of my condition. The health coverage I have from the county is not enough. It doesn’t pay for rehab or the weeks I’ve spent in the hospital due to further brain injury caused by falls during seizures. I have lost everything I worked for all of my life. I feel so helpless. We’re looking at homelessness as a very real possibility, and all because the Social Security contract I entered into when I started paying in at 16 years old, has failed me. Please, I am not looking for handouts. Simply for the money I have paid into the system in my time of great need. Please call on the Social Security Administration (SSA) to grant me disability insurance, so that I may have a fighting chance to get better. I know I am not alone in this. I’ve talked to so many people going through similar hardships. My condition is getting progressively worse. I want so badly to live to raise my children to adulthood, to be a good role model for them, and teach them that it is possible to overcome any obstacle in this country. I can only do that with some help. Please help me call on the SSA to grant me disability insurance. I have earned it, and I would not take it if I didn’t really need it. Thank you for your time, God Bless, Christopher E Layne My life as I know it (click here) Every signature under here is probably going through the same hell or loves someone going through the same thing, fighting for their lives. Something has to change fast. One wrong fall and I will not be here any longer to see my chosen grow. Please help me by signing this petition. It truly could mean life or death. A message from my daughter