Topic

Disability Rights

544 petitions

Update posted 10 hours ago

Petition to U.S. Senate, Dan Brown, Kathy J. Byron, Lee Ware, Mike Cunningham, Timothy Hugo, Bill Eigel, Jason Holsman, Daniel Marshall, III, Jacob W Hummel, Robert B. Bell, Israel D. O'Quinn, Jamilah Nasheed, Bob Onder, Ron Richard, David E. Yancey, John Joseph Rizzo, Caleb Rowden, Margaret B. Ransone, Dave Schatz, Scott Sifton, Wayne Wallingford, Michael J. Webert, Paul Wieland, Tony O. Wilt, Christopher T. Head, Jeion A. Ward, Mark L. Keam, Eileen Filler-Corn, Kaye Kory, Joseph C. Lindsey, Lamont Bagby, David J. Toscano, Steve E. Heretick, Michael P. Mullin, Jeffrey M. Bourne, President of the United States, Maria Chappelle-Nadal, U.S. House of Representatives

Stop Forcing Mail-Order Pharmacy as the Only Option of Coverage

Patients' lives depend on choice. **Since starting the petition, I have realized that there are many issues other than temperatures with forced mail-order pharmacy.  Mail-order pharmacy is very loosely regulated. There are life-threatening delays, lack of face-to-face relationships with pharmacists for people with chronic conditions, and rapid closures of our independent pharmacies; although, a recent study showed people prefer independent pharmacy (2018, Gill).  *************Our Story************* Our son received a life-saving liver transplant at the age of 2 from a 3-year-old little girl. His life depends on the potency and effectiveness of chemotherapy or immune suppression medications every 12 hours to prevent his body's immune system from fighting off his transplanted liver. In the past mail-order pharmacy delivered his liquid oral medications in nothing but a plastic envelope on a 102-degree day on a hot enclosed non-temperature controlled UPS truck. Shortly after, he went into liver rejection which could have resulted in complete liver failure or death. I speculated that the medication could have been too weak after the delivery of medications in high heat. I vowed to never again risk his life with mail-order pharmacy. Recently, we were mandated or forced to only use mail-order pharmacy in order to receive coverage for his life-saving medications.  The package arrived in only a bag on a hot day without an ice pack. I now know that the hot non-temperature controlled enclosed delivery truck and mailboxes can reach temperatures up to 120-170 degrees. His labs elevated again afterward. My son wants to know, "Why would they do that?" I contacted the manufacturer, who performs the testing, who informed me that both of my son's medications should be discarded and considered less potent once stored above 86 degrees as higher temperatures and freezing could both result in lower potency.  I contacted the mail-order pharmacy who refused to replace or take back the medication. They said the law & USP Pharmacopoeia allows them to ship up to 104 degrees, although the manufacturer states it is not proven safe at these temperatures. However, I have received communication from USP Pharmacopoeia who writes guidelines for storage, and they also said that the mail order pharmacy should follow the manufacturer's guidelines of 59-86 degrees for storage. Again, the trucks reach up to 170 degrees which is much hotter than 104.  I contacted the FDA, who states that the mail order pharmacy should be using the manufacturer's guidelines that have been proven safe. Since the mail-order pharmacies are regulated loosely by the State Board of Pharmacy, not the FDA, there was nothing that the FDA could do.  I made over 30 calls to the insurance company begging for them to please let us pick my son's medications up at the local pharmacy at which they are filled. My son's physician wrote an appeal and his transplant team has stated that they have tried to voice their concerns about this issue with their pediatric/child patients and no one is listening! The insurance company still denied the doctor's appeal for us to pick up my son's medications in the safest way. It was not until the Media became evolved that the insurance company budged.  I felt helpless and have united with many other pharmacists, physicians, patients, mothers and fathers, and caregivers who feel the same way. Helpless. Mail-order of prescription drugs should be a choice, not the only option of coverage.  Mail-order pharmacies may appear to save money, but when my son ended up in the hospital after taking medications that could have been compromised by having lower potency, the cost of the rejection was thousands of dollars. If his liver would have fully failed, the cost of his liver transplant for just 5 days (he was in the hospital for 5 weeks) was over $1,000,000. The lax regulation and oversight may save money on prescription drug plans but may come at an increased cost to the health plan itself. Also, keep in mind the endless waste of medications that automatically are sent regardless of whether or not patients need them. Also, people with chronic, complex conditions, should always have the option of face to face interaction with a pharmacist who knows their complex needs and medical history. The pharmacist and patient relationships are crucial to the successful outcome of the patient's overall health. Taking this away is harmful to patients and be more costly to our already stressed healthcare system. Only allowing mail-order pharmacy for coverage is unethical and irresponsible. I share stories on my social media sites every day of patients who are suffering from a lack of choice.  We need your help to make mandatory mail-order an option, not a mandate.  YOUR URGENT SUPPORT WILL SAVE LIVES! THANK YOU!! WE APPRECIATE ALL OF THE SUPPORTERS, CAREGIVERS, & PATIENTS.  Thank you,  Loretta Boesing, Founder of Unite for Safe Medications You may make a tax-deductible contribution to support our advocacy here Email: loretta@uniteforsafemeds.com Facebook Page: Issues with Mail Order Pharmacy @justamomwholovesherson Twitter: @BoesingLoretta The greatest way that you can help is by sharing this petition & gathering 2-3 people in your community who are having issues and speak to your legislatures.    Reference: Gill, Lisa L. “Consumers Still Prefer Independent Pharmacies, CR's Ratings Show.” Product Reviews and Ratings - Consumer Reports, 7 Dec. 2018, www.consumerreports.org/pharmacies/consumers-still-prefer-independent-pharmacies-consumer-reports-ratings-show/

Loretta Boesing
178,300 supporters
Update posted 5 days ago

Petition to Attorney Grievance Committee, Internal Affairs Bureau, Governor Kathy Hochul, Pamela Helming

Police Misconduct & Rights Denied: Overturn Unlawful Judgement in Lyons NY Traffic Matter

On the night of March 30 2022, my son was returning home from helping a friend who had car trouble and had given him a ride home to Lyons NY. On his way back to his apartment in Newark NY he was traveling west bound around a descending curve when his steering wheel locked & turned all the way to the left and his brakes failed leaving him incapable of turning or stopping his vehicle. He crossed the center line at full speed over an embankment & through a parking lot before flipping into a creek on the other side of that lot. He was driving alone with no other vehicles in either direction & there were no witnesses to the accident. After the accident he climbed out of the back passenger side door into the creek in 20-degree weather, climbed out of the ravine walked to an apartment building and knocked on doors trying to see if someone would let him use their phone but was unsuccessful. After about 20 minutes or so he returned to his car & used his phone to call 911 which was the only number he could call as his phone was not in service.  When the State Trooper arrived, he proceeded to write a deposition that completely conflicted with the actual events of the accident creating a scenario of his own that could’ve only played out in Hollywood. In this deposition he stated that he used radar to confirm the speed my son was going despite not actually having done so, lied about the speed limit & wrote that he was going in the wrong direction. The whole deposition was a lie. In addition to this he voiced his assumption to me that my son was distracted and lost control of his vehicle & ticketed my son with 4 tickets. 1 for speeding and 3 for changing lanes unsafely during a crisis that could have killed him. As a result of this conversation, I took several pictures of the scene all which corroborated my son's story and the evidence of the crash itself including the road and conditions.  In the Trooper's version of events, my son would have had to have drifted off the road going “East” while speeding at between 60-65 mph over the white line on his right, past guardrails over an embankment through ice and snow before making a U-turn, missing a telephone pole directly ahead of him as well as the building to the right in the lot and driving straight into the creek ahead at high speed. Making his assumption completely ludicrous. Several aspects of the accident including my son's statement of what occurred during the accident were distorted to justify ticketing him and the Trooper testified in court under oath to those lies.  On May 26 2022, my son and I appeared for trial to challenge the deposition & tickets he received as a result of the accident that he had on the night of March 30th 2022.  In court the Judge denied him an advocate, denied him council, denied his witness, denied his ability to present evidence and documents in his defense, & the District Attorney threatened him with jail time and additional charges despite the fact that he was in an accident due to mechanical failure of his vehicle. He did not receive a fair trial and the matter was already decided before we arrived in addition to intimidation in the court room. So much for being innocent until proven guilty.   This matter is a case of discrimination, abuse of power and a violation of my son's rights. He is a young hispanic male, with no record, that was driving through a small town in the country in Wayne County NY, in the middle of the night after helping a friend in need. He was sober, committed no crimes and was the only person harmed in the accident in addition to losing his vehicle. As a result of the actions of the Trooper, DA and Judge he is now facing almost $2000 of fines and DMV penalties on top of facing losing his job, his new vehicle & his license in addition to the future repercussions this is going to have on his insurance and driving record. He also is facing warrants if the fines are not paid but is being stripped of his ability to get to and from work in order to pay the penalties inflicted on him which appears to us like their ultimate goal. The court did nothing to preserve his rights and denied him the opportunity to defend himself and the DA tried to enforce jailtime and a permanent record on him in addition to blaming him for the failure of his brakes and steering AND threatening him with a misdemeanor. They treated him like a criminal instead of a young man that had been in a traumatic accident.  I am writing this petition to hold the Trooper accountable for his actions as well as the Judge and the District Attorney for their part in this miscarriage of justice. I am petitioning to overturn this ruling as it was not ”fair or just” on the basis that the Trooper misrepresented the facts of the accident causing a domino effect of punishments on a young man who had an accident that was out of his control.  Last but not least I am petitioning to ask that this case be investigated and that my son be able to present the evidence that will clear his name and prove his innocence so that he can recover from this accident without the penalties he is now facing looming over him. Thank you for your time & support in signing this petition to try to bring justice to this matter.   I am imploring our elected officials to do the same.  Sincerely  Jessica M Carrasquillo  Adrial A Santiago-Carrasquillo 

Jessica Carrasquillo
227 supporters
Update posted 1 week ago

Petition to Robert Greenberg, President of the United States, Tom Cotton, Rick Crawford

A change allowing people to buy one set of shoes when they need two sizes for each foot

To Whomever it May Concern, I’m not the most eloquent writer. I have an English degree, but no amount of writing could prepare me for this. I have a disability. I have been disabled my entire life, but the discovery wasn’t made until I was three years old. I have cerebral palsy. I’m writing this and it feels wrong to my very nature. I was raised with the belief that I shouldn’t see myself as such, that I shouldn’t see myself as less. Society still treats those with a disability as being less. I had to learn to grit my teeth and bear it. I played baseball and was a cheerleader, I did this mostly one handed. I had the word “crippled” chanted at me. Guys didn’t date me. I was told, “people are stupid, don’t listen”. I had to compromise and compensate for my disability. When I was younger, I wore jeans in the dead of summer because I didn’t want people to stare or ask, “What’s wrong poor little crippled girl?” This happened often, usually by people of an older generation, and it hurt every time. The word “crippled” makes me what to break everything in arm’s reach, but I don’t. I can’t change a society that doesn’t want to change. Society thrives on the less being made to be lesser. But that’s the reason why I’m writing this, because things need to change. I’m praying for the better. I have two different sized feet and because of my disability and unlike most consumers, if I want shoes to fit comfortably I am forced to buy two sets of the same pair of shoes in two different sizes. I’m limited to only being able to wear sneakers and on occasion boots, if I’m willing to wear a smaller size to compensate for my left foot. I have to wear shoes that support my ankle. I, and people in my situation, are forced to spend twice as much as anyone else. This should not be a thing, yet it is and people deal with this everywhere. Shoe companies profit off of the disabled more than they do the average customer. I usually can’t go shoe shopping or walk in a shoe store without wanting to cry. There have been a couple times that a retailer let me buy the one set with the two different sizes. However, I was told it was a one time thing with one retailer, because it was against policy and with the other I had to find one certain manager because they were the only one willing to do it. If they weren’t there, it wasn’t going to happen. This entire ordeal is upsetting and embarrassing and this should not be the case. I’ve already spoken to a corporation that I won’t name, but it seems nothing can be done. The woman I have been speaking to is lovely and I know she is trying to help, but I don’t feel anything can be done. I don’t want money. I just want to be able to buy shoes without a fight. I’m not alone in this and I know this is discrimination and possibly illegal, but I’m at a loss. I'm petitioning the shoe manufacturers to upgrade their websites to allow for split size buying. If they price my the shoe, instead of for the set, this would benefit people with different sized feet as well as amputees. When pricing the shoe, they can make it that when the split sized set is purchased we are being charged the same as those who buy the pair. I do not think this a big ask, shoes are a necessity and no one should be forced to pay extra. It feels like we should be past this in 2021. I hope retail policies change to help those like me. With a little faith and will, can change happen?   Danielle Joy Mitchell  

Danielle Mitchell
15,023 supporters
Started 2 weeks ago

Petition to

Stop abuse and misuse of restraint and/or seclusion in Arizona schools

NO HARM! NO HIDING! "THEIR DOORS WERE SOUND PROOF. WHEN THEY WENT TO RESTRAIN SOMEONE. THEY SHUT THE DOOR FIRST."                                                          - FORMER STUDENT OF THE ACES​ -Restraint and Seclusion in the state of Arizona is not being implemented as intended, incidents of abuse are not being reported, and consequences for abuse do not exist. -Children are being left in small dark rooms alone for hours. -Children are coming home from school with horrific wounds inflicted on them by ADULTS: teachers, principals, and staff. -A place where all students should feel safe, they are wishing they would die instead of return for another day of abuse. - Abusive practices are leading to suicidal thoughts.  At school, a place where children should feel safe, some say they wish they would die rather than return for another day of abuse.   -Statistical correlation between abused students, who carry this PTSD for the rest of their lives, and becoming homeless, imprisoned, or dead. NO HARM! NO HIDING! We call on the Arizona Department of Education to: Train and adopt non-aversive interventions that are working in schools across the nation. Eliminate seclusion rooms that look like prisons. If needed, make a safe sensory room, with no lock on door and always have an adult present inside the room and another adult right outside the window. Room must have a light and window. Develop a required, uniformed reporting mechanism for all Arizona schools to report each incident of restraint and/or seclusion. Compile the reports into a public report Enforce remediation, training, and consequences for abuse or misuse of restraint and/or seclusion. Criminally prosecute findings of abuse. No Harm! No Hiding! According to Adam Lodestone, A brief history of restrain and seclusion in our schools, published June 2, 2021-  The types of restraints used have included, but are not limited to: Rope Cables Duct tape over limbs and mouths Gags (store bought or improvised) The child’s own belt or tie or sash Electronic appliance cables and cords Seclusion spaces in schools have taken the form of: Locked and windowless room  Wooden crates place in a corner of the classroom Completely darkened broom closets which have been locked from the outside Foot lockers Large band instrument cases Other unthinkable spaces of containment Seclude, isolated children are often not allowed access to a bathroom and denied access to food and water. All of the practices described come from recent and current reports, testimonies, and news headlines. You can find countless news articles, lawsuits, and wrongful death claims from harm caused by restraint and seclusion in our classrooms. In Arizona, families and victims are sharing alarming accounts of abuse of restraint and seclusion.  Is this happening at the school your child attends? It is far more common than any of us what to believe.  Here is part of some of their stories: “My son was coming home every day with many marks on his body: armpits, back, arms as a result of their interventions when he was having negative behaviors.​ My son came back home hurt with an awful wound on his back and I just found when I removed his shirt at home… again they didn't notify he had been hurt. They repeat often the phrase "parents shouldn't know that".​” -San Tan Valley Family​   “I was outside and I was placed in a physical restraint by a behavioral coach… I had dislocated my shoulder recently and told him as much. Without a care for that he forced my elbows up behind my back as high as he could and proceeded to grind my face into the outdoor stucco walls like a cheese grater​…some of the staff took joy from that part of the job…Several of my classmates are either homeless, in prison or dead now…two of them are in prison for murder”  –Autistic adult recalls his abuse from when he was a student at a ‘state certified special education school for K-12’   “The elementary side of the school, they put you up against the wall and apply a ton of pressure on your diaphragm. It is extremely hard to breath. You simply lose air as you try to breathe… What they do is real actual torture. If given the opportunity, I would have died to get out of what they did… they openly talked about us getting restrained over petty things, like a kid picking their scabs… Two kids in my class went to the mental hospital the day after they went to the timeout room” -Another former student of the same school   "I resigned after 3 school years and sent an anonymous email reporting abuse I had witnessed. The response from the owner was not taking accountable for actions I KNOW she knew happens in her schools. She then turned the blame on me for being a witness. And deflected it from herself and supervisors." – Para who resigned in 2021 from a ‘intensive special education school’ where vulnerable child are placed from their home schools.   “The staff are NOT trained to deal with behaviors. They have something called a "recovery room" where kids are taken if they are engaging in SIB or aggression towards others but it eventually got to the point where they were just thrown in there for any little thing.​ Certain kids were isolated for no reason. No one tried to do anything to improve these behaviors.” -Former BT at ‘a private special education day school specifically designed to support students with social/emotional disabilities’ According to the biennial Civil Rights Data Collection (CRDC), by the U.S. Department of Education’s Office for Civil Rights from the 2017-2018 school year, a total of 101,990 students were subjected to restraint or seclusion during that school year.  Of the 101,990 students, 79% of the students restrained were students with disabilities. Of the 101,990 students, 77% of the students secluded were students with disabilities. Also noteworthy from this data collection, restraint and seclusion rates are increasing. According to this report, the 2015-2016 school year national data shows that 71% of students subjected to restraints had disabilities and 66% of students subjected to seclusion had disabilities In 2019, The Government Accountability Office (GAO) urged the U.S. Department of Education to take “immediate action” to address the underreporting of restraint and seclusion in schools. The GAO says the Education Department has repeatedly and knowingly published inaccurate data in the civil rights data collection. WHY IS THIS STILL HAPPENING IN ARIZONA AND NOT BEING REPORTED? Please sign this petition to show lawmakers and educators that we will not tolerate abuse or misuse of restraint or seclusion in our schools! PRISONERS ARE TREATED BETTER THAN OUR CHILDREN AT SCHOOL!!!  NO HARM! NO HIDING!

Callie Walling
132 supporters