BioMarin Pharmaceutical: Give Andrea Sloan (@andi_sloan) access to the cancer drug that could save her life
  • Petitioning Jean-Jacques Bienaime

This petition will be delivered to:

CEO, BioMarin
Jean-Jacques Bienaime
VP for Corporate Compliance and Ethics, BioMarin
Philip Lo Scalzo
Media Contact, BioMarin
Debra Charlesworth
Executive Vice President and Chief Medical Officer, BioMarin
Henry J. Fuchs, M.D.
Senior Vice President, Human Resources and Corporate Affairs, BioMarin
Richard Ranieri
Vice President and Chief Information Officer, BioMarin
Ed Von Pervieux

BioMarin Pharmaceutical: Give Andrea Sloan (@andi_sloan) access to the cancer drug that could save her life

    1. Carol Carter
    2. Petition by

      Carol Carter

      Lake Dallas, TX

Andrea Sloan has spent her life helping others every day, but now she needs our help in her fight against cancer, because BioMarin Pharmaceutical is refusing to give her the treatment that could save her life.

Andrea is a 45 year old attorney in Austin, Texas who serves as Executive Director of the Texas Advocacy Project -- and organization which provides free legal services for low income victims of domestic violence and sexual assault.

Seven years ago, Andrea was diagnosed with stage 3c ovarian cancer. She has responded well to treatment in the past, but traditional therapies are failing with the cancer’s return. There is one drug that Andrea’s doctors believe offers significant promise.

Andrea’s physicians have found a drug, PARP inhibitor BMN 673 that is manufacturer by pharmaceutical company named BioMarin, that is designed to treat women who have a particular type of genetic ovarian and breast cancer called BRCA1. The drug is not yet approved by the Food and Drug Administration (FDA), but Andrea has received indication that the FDA will provide a waiver for her “compassionate use” of the drug if BioMarin gives her permission to use it.

BioMarin’s response to Andrea so far is that while the company does embrace “compassionate use” policies, they do not have one for the particular drug that could save Andrea’s life.

This precious and brilliant young attorney has been fighting cancer for seven years. This drug is her last chance. The FDA has approved her use, pending approval by BioMarin. My prayer group has been praying for Andrea, but now we need your support to ask BioMarin to do the right thing and show compassion for Andrea.

To:
Jean-Jacques Bienaime, CEO, BioMarin
Philip Lo Scalzo, VP for Corporate Compliance and Ethics, BioMarin
Debra Charlesworth, Media Contact, BioMarin
Henry J. Fuchs, M.D., Executive Vice President and Chief Medical Officer, BioMarin
Richard Ranieri, Senior Vice President, Human Resources and Corporate Affairs, BioMarin
Ed Von Pervieux, Vice President and Chief Information Officer, BioMarin
Allow Andrea Sloan (@andi_sloan) to take your experimental drug, BMN673.

Sincerely,
[Your name]

Recent signatures

    News

    1. Reached 200,000 signatures
    2. Clarification on previous update! Study was for ovarian and breast cancer.

      Carol Carter
      Petition Organizer

      There was one clinical trial for four patient subtypes. Overall response rate 86%. This is stunning news. Great job, BioMarin - now give the drug to Andi! :-)

    3. Reached 150,000 signatures
    4. Reached 25,000 signatures
    5. Andi's TV interview! Great job, Andi!!!

      Carol Carter
      Petition Organizer

      Here is a lovely news story that Austin station, KXAN, did about Andi. This is a great place to get to know here a little better!

      http://www.kxan.com/web/kxan/news/investigations/advocate-for-others-needs-help-in-a-fight-or-her-life

      Advocate for others needs help in a fight for her life

      (1/4)Andrea Sloan has dedicated her life to helping others. And now she's fighting to save her own life. (2/4) (3/4) (4/4)Andrea Sloan talks about her battle with cancer. AUSTIN (KXAN) - Andrea Sloan has dedicated her life to helping others. And now she's fighting to save her own life.

    6. Andi has a FaceBook page where you can see what is happening!

      Carol Carter
      Petition Organizer

      We have some news to share. So much going on as you can see. By the time I'm done giving you an update, you will see 6000 signatures. Here is how to keep up with the latest on Andi on her: Andi's Army page on Facebook: https://www.facebook.com/OfficialAndisArmy. I will also post her news story and a letter and a couple of other things. Again, Thank you and God bless each one of you who are in support of this precious woman.

      Carol

      Andi's Army

      Andi's Army. 577 likes · 0 talking about this. This page is dedicated to "ANDI'S ARMY" - all those who love and adore our hero, Ms. Andrea Sloan, and want to see her live a powerful long life.

    7. Reached 5,000 signatures

    Supporters

    @MelissaEGilbert

    Oct 01, 2013

    #CompassionateUse is not a Word Its a Life, @andi_sloan"s Life pls sign http://t.co/95obrlUIRZ @reallorraine http://t.co/vMNo5HakKM

    Melissa Gilbert
    134k followers

    @Chris_Meloni

    Sep 28, 2013

    Need UR help to save Domestic Violence Advocate @andi_sloan's life. Sign & share pls: http://t.co/vHtTE99V8U Vid: http://t.co/rwOtqhuyye

    Chris Meloni
    22.6k followers

    @joshuagates

    Sep 29, 2013

    Hey #Syfy fans! Help a brave woman fight cancer. 1) Read: http://t.co/Yl5wKjCoe3 2) Sign: http://t.co/5ZmLuADcxZ 3) RT/Follow: @andi_sloan

    Josh Gates
    205k followers

    @Martina

    Sep 24, 2013

    @DeeceX :), hope it helps…

    Martina Navratilova
    58.1k followers

    @KarlRove

    Sep 06, 2013

    #FF @andi_sloan A courageous Texan fighting to save her life. Read more about her story: http://t.co/VlBGYqtkW8

    Karl Rove
    545k followers

    @kaybaileyhutch

    Sep 12, 2013

    Please help survivor @andi_sloan get #SinglePatientAccess to #BioMarin's cancer drug #BMN673 Sign & RT https://t.co/ld5dbXv47A

    Kay Bailey Hutchison
    17.5k followers

    @PaulBegala

    Sep 20, 2013

    Why won't corporate bigshots at #BioMarin save @andi_sloan's life? Sign this petition for compassionate use: http://t.co/A9NCwGbGjE

    Paul Begala
    74.6k followers

    @realjonlovitz

    Sep 18, 2013

    Join me in asking #BioMarin to provide @Andi_Sloan with cancer medication that could save her life. Petition:http://t.co/TzG8JYpuG3

    Jon Lovitz
    68.9k followers

    @Rosie

    Sep 13, 2013

    @MelodieStegall @andi_sloan - i did

    Rosie
    689k followers

    @MiaFarrow

    Sep 17, 2013

    Sign petition: #BioMarin is denying @andi_sloan the med for her ovarian cancer that cd save her life. http://t.co/JSjnJbhrla $BMRN @change

    mia farrow
    234k followers

    @chefspike

    Sep 10, 2013

    Please take a look at @andi_sloan and support Andi's Army!

    Spike Mendelsohn
    41.8k followers

    @MsKathyBates

    Sep 10, 2013

    I just signed a petition urging #biomarin to save @andi_sloan. They have a drug that might help her. Please help!!http://t.co/Mqqcne54ra.

    Kathy Bates
    30.7k followers

    @BartMillard

    Sep 08, 2013

    Please sign, share and retweet this petition. Time matters!!! http://t.co/v100GqXyUE

    Bart Millard
    64.1k followers

    @NatalieGrant

    Sep 08, 2013

    “@BartMillard: Please sign, share and retweet this petition. Time matters!!! http://t.co/EQygKlXW9V”

    Natalie Grant
    180k followers

    @DiemBrownMTV

    Sep 05, 2013

    Join me in asking #BioMarin to provide @Andi_Sloan with cancer medication that could save her life. Petition: http://t.co/vwEsfskFu8 #help

    Diem Brown
    142k followers

    @allysheedy1

    Sep 04, 2013

    @WVFeministArmy @andi_sloan done!

    ally sheedy
    614 followers

    @johnlapuma

    Sep 04, 2013

    @carolbcarter: done! http://t.co/Yk7z2OxDkv

    Dr John La Puma
    10.7k followers

    @squeaky_johnson

    Aug 27, 2013

    @LeilaDAquin @biomarin @andi_sloan @change will do

    squeaky johnson
    2.76k followers

    @WynonnaMusic

    Sep 03, 2013

    @alaszik I signed the petition.

    Wynonna Judd
    55.8k followers

    Reasons for signing

    • Cynthia Molina THE WOODLANDS, TX
      • 1 day ago

      I understand. My mother is also trying to get access to an investigational drug.

      REPORT THIS COMMENT:
    • Diane Green WHELLEY WIGAN, UNITED KINGDOM
      • 1 day ago

      This amazing, young attorney must be given a chance of life with this drug. I realise that it is still to be approved by the FDA but, surely if she is willing to try it, it will not only hopefully benefit her, but will also be useful in the treatment of other ovarian cancer sufferers. Having suffered with this disease myself, I am well aware of the sooner it is discovered the better chance of survival. Help save this young woman with this drug and then it could maybe be used on other sufferers of ovarian cancer.

      REPORT THIS COMMENT:
    • Angela powell GRESHAM, OR
      • 3 days ago

      Do whats right people

      REPORT THIS COMMENT:
      • 3 days ago

      I lost my sister to colon cancer,my brother in law to brain cancer and my cousin to breast cancer all in 2012. My sister was in agony the last weeks of her life. What reason is there to hestitate one second to relieve anyone from this battle? Help this young woman survive the fight of her life.

      REPORT THIS COMMENT:
    • Tara Wirkuty SWEET HOME, OR
      • 3 days ago

      We should not keep a medical or medicine from saving someone's life, for any reason at all ever!

      REPORT THIS COMMENT:

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