Petition Closed

Sponsor Arbaclofen/STX 209 Study for children with Autism and Fragile X.

Please read Holly Roo's Story about her son (Holly and Parker pictured above) and you will see how a trial drug, Arbaclofen, has changed her life and has impacted so many others living with autism and Fragile X. Arbaclofen has had amazing results for many participants yet Seaside Therapeutics has had to immediately terminate this trial without gaining FDA approval due to lack of funding. We hope that this story, and there are thousands more, can inspire pharmaceutical companies to see that it has been a lifesaver for so many families and can definitely be profitable!!

This petition was delivered to:
  • Corporate / Financial Media Relations
    Joan Campion, Pfizer
  • UC Davis, Sacramento
    Randi Hagerman, MD
  • WLS Chicago
    ABC News
  • FRAXA
    Katie Clapp
  • National Institutes of Health
    Charlotte Armstrong
  • National Dessemination Center for Children with Disabilities
  • Emory University School of Medicine, The Department of Human Genetics
    Mika Nakamoto Kinoshita, M.D., Ph.D.
  • Rush University
    Dr. Elizabeth Berry-Kravis
  • U.S. House of Representatives
  • U.S. Senate
  • Illinois State House
  • Illinois State Senate
  • President of the United States
  • LaRoche Clinical Trials
    Genentech Clinical Trials
  • Office of Good Clinical Practice Food and Drug Administration
    FDA
  • Corporate, Financial and Global Public Health
    Mary Anne Rhyne, Glaxo Smith Kline
  • US Media Relations
    Julie Masow, Novartis
  • Associate Director, Public Affairs
    Chris Clark, Bristol Meyers Squibb
  • Head Media Relations, ROCHE
    Alexander Klauser
  • Sanofi, US
    Jack Cox, Head Media Relations
  • Director, Corporate Media Relations
    Johnson & Johnson, Carol Goodrich
  • Abbott Laboratories, External Communications
    Scott Davies
  • Corporate Media Relations (Tony Jewell):
    Tony Jewell, AstraZeneca
  • Sr. Director Global Corporate Communications
    Ed Sagebiel, Eli Lilly & Co
  • Corporate Communications
    Jeff LeRoy, Proctor & Gamble
  • PR, Corporate Communications
    All Pharmaceutical Companies -
  • MacDougall Biomedical Communications / Seaside Therapeutics PR
    Kari Watson
  • Illinois Governor


FX MOM Rogers started this petition with a single signature, and now has 4,992 supporters. Start a petition today to change something you care about.