Secure funding for endometriosis research and improve healthcare access


Secure funding for endometriosis research and improve healthcare access
The issue
At the age of 12, I began suffering with endometriosis, a chronic and debilitating condition that affects one in seven women in Australia, that is approximately 14% of the population. For years, I have battled relentless pain, found it challenging to participate in everyday activities, and struggled through my teenage years without quality of life. Now, at 18, I've tried numerous medications and sought answers from the healthcare system, only to be left without adequate solutions or hope for a cure. I am not alone in this frustrating journey; countless women across Australia face the same struggle.
Endometriosis has an average diagnosis time between 6 to 8 years. This delay reflects a significant gap in awareness, education, and healthcare prioritisation. This prolonged diagnostic period forces patients to navigate years of pain, ineffective treatments, and repeated dismissal, placing unnecessary strain on both individuals and the healthcare system.
Endometriosis is a condition that, despite affecting so many, receives insufficient funding for research into effective treatments and a much-needed cure.
The financial burden for those of us suffering from this condition is overwhelming. It is estimated that each individual with endometriosis incurs a cost of $31,000 annually due to high specialist fees, and private health insurance coverage which is extremely out of reach for most Australians. To further this, a report released in 2019 estimated that endometriosis costs Australian society $9.7 billion annually. Two-thirds of those costs are attributed to a loss in productivity with the rest, approximately $2.5 billion, due to direct healthcare costs.
Public hospitals, while an option, have waitlists for essential procedures like laparoscopic surgery that can stretch on for years, prolonging the agony we endure daily.
I implore the Australian government and the Minister for Health, Mark Butler to take immediate action. We need increased funding for endometriosis research to discover better treatments and ultimately a cure. Furthermore, to support those currently suffering, there must be a higher Medicare rebate for specialist gynecologist appointments, making them more affordable and accessible to everyone. Additionally, addressing the public hospital waitlists for crucial surgeries will alleviate the prolonged suffering endured by so many.
Sign this petition to demand real change for the nearly 1 million endometriosis sufferers across Australia. Let us push for the healthcare system we deserve. Our fight is not just for survival but for dignity and the quality of life we deserve. Let's push for a future where endometriosis no longer defines our lives.

24
The issue
At the age of 12, I began suffering with endometriosis, a chronic and debilitating condition that affects one in seven women in Australia, that is approximately 14% of the population. For years, I have battled relentless pain, found it challenging to participate in everyday activities, and struggled through my teenage years without quality of life. Now, at 18, I've tried numerous medications and sought answers from the healthcare system, only to be left without adequate solutions or hope for a cure. I am not alone in this frustrating journey; countless women across Australia face the same struggle.
Endometriosis has an average diagnosis time between 6 to 8 years. This delay reflects a significant gap in awareness, education, and healthcare prioritisation. This prolonged diagnostic period forces patients to navigate years of pain, ineffective treatments, and repeated dismissal, placing unnecessary strain on both individuals and the healthcare system.
Endometriosis is a condition that, despite affecting so many, receives insufficient funding for research into effective treatments and a much-needed cure.
The financial burden for those of us suffering from this condition is overwhelming. It is estimated that each individual with endometriosis incurs a cost of $31,000 annually due to high specialist fees, and private health insurance coverage which is extremely out of reach for most Australians. To further this, a report released in 2019 estimated that endometriosis costs Australian society $9.7 billion annually. Two-thirds of those costs are attributed to a loss in productivity with the rest, approximately $2.5 billion, due to direct healthcare costs.
Public hospitals, while an option, have waitlists for essential procedures like laparoscopic surgery that can stretch on for years, prolonging the agony we endure daily.
I implore the Australian government and the Minister for Health, Mark Butler to take immediate action. We need increased funding for endometriosis research to discover better treatments and ultimately a cure. Furthermore, to support those currently suffering, there must be a higher Medicare rebate for specialist gynecologist appointments, making them more affordable and accessible to everyone. Additionally, addressing the public hospital waitlists for crucial surgeries will alleviate the prolonged suffering endured by so many.
Sign this petition to demand real change for the nearly 1 million endometriosis sufferers across Australia. Let us push for the healthcare system we deserve. Our fight is not just for survival but for dignity and the quality of life we deserve. Let's push for a future where endometriosis no longer defines our lives.

24
The Decision Makers

Petition created on 2 April 2026