One way to stop an epidemic is to redefine it by narrowing the disease's diagnostic criteria so tightly that it's hard for any chronically ill Lyme patient to fit the profile.
A complaint was filed with WebMD regarding the following Medscape news post on Mar 5th 2012,
“Testing for Lyme Disease: Follow the Steps by Barbara J.B. Johnson, PhD”
The following statement by Barbara Johnson regarding the Western blot Lyme test is the issue:
“To be considered positive, the serum should react with at least 5 of 10 scored bands on the IgG assay and with 2 of 3 scored bands on the IgM assay.”
This set of Western blot criteria was established for surveillance purposes only and if the patient does not meet these strict criteria then the case is not reported to the CDC. Those who treat Lyme disease exclusively recognize that it is not necessary to have five positive Western blot IgG bands or two IgM bands in order to diagnose Lyme disease.
(Sample Western blot)
The CDC has confused a nation of intelligent physicians by not including the disclaimer that the national surveillance case definition is for reporting purposes only and not to be used in clinical diagnosis.
Misinterpretation of laboratory results is the main reason why physicians across the nation are dismissive of Lyme patients and their symptoms.
Medscape must not blur the lines between surveillance & diagnostic criteria, suggesting that all Lyme patients will test positive by the CDC's strict ELISA and Western Blot criteria. Substantial research evidence, including that from institutions such as Johns Hopkins, shows this is not true.
WebMD claims to be; “The leading source for trustworthy and timely health and medical news and information” but in this example we question the integrity of Medscape’s services and those who are in charge.
Sign this petition and insist Medscape remove or correct Barbara Johnson’s misleading presentation.
First complaint letter Mar 3, 2012
Second complaint letter Mar 25, 2012
Third complaint letter Apr 9, 2012
Fourth complaint letter Apr 12, 2012
Jim Wilson’s complaint letter Mar 25, 2012
Follow up letter Apr 16, 2012
Website: New Hampshire Lyme Misdiagnosis
Additional petition site: http://www.change.org/petitions/subjective-symptoms-after-treatment-of-lyme-disease
- Medscape Member Services
- Medical Editor, WebMD
Louise Chang (Medical Editor, WebMD)
- VP Channel Services
Laura Greiner (VP Channel Services)
- VP Best Practices
John Hopkins (VP Best Practices)
- State Representative
- Attorney General of the United States
Eric H. Holder, Jr.
- Citizen Complaint Center
DOJ Antitrust Division
- VP Programing and Content Strategy
- Senior VP, General Manager
- Medical Editor, WebMD
- WebMD's Editor
- WebMD's Executive Vice President, Professional Services
- WebMD's Executive Vice President, General Counsel and Secretary
Douglas W. Wamsley
- WebMD's Executive Vice President
Gregory A. Mason
- WebMD's Interim Chief Executive Officer
- WebMD's Executive Vice President and Chief Technology Officer
William Pence (WebMD's Executive Vice President and Chief Technology Officer)
I just signed the following petition addressed to: Medscape.
Medscape remove or correct Barbara Johnson’s misleading Lyme disease presentation
When you or a loved one falls victim to the Lyme disease epidemic (and it’s only a matter of time) you will wish that you took the time to read and fully understand the purpose of this petition.
The CDC has confused a nation of intelligent physicians by not including the disclaimer that the national surveillance case definition is for reporting purposes only and not to be used in clinical diagnosis. The presentation by the CDC’s Barbara Johnson on Medscape’s website is a continuation of the disinformation campaign.
Misinterpretation of laboratory results is the main reason why physicians across the nation are dismissive of Lyme patients and their symptoms. The confusion causes misdiagnosis while the patient misses the narrow window of opportunity for successful short term treatment ultimately progressing to late stage and disability.
Please read the entire petition and all complaint letters to educate yourself and protect your loved ones and insist Medscape remove or correct Barbara Johnson’s misleading presentation.
Carl Tuttle started this petition with a single signature, and now has 300 supporters. Start a petition today to change something you care about.