Disability social care to help autistic children and families, under 7’s in Newcastle.


Disability social care to help autistic children and families, under 7’s in Newcastle.
The Issue
Hi,
My name is Chantelle, I’m a 28 year old mum of two children.
My eldest son is 6 years old and is on the severe end of the autistic spectrum, he’s totally non verbal and has violent self injurious behaviours. My youngest is 2 with some traits too.
Disability social care have denied helping us many times, I’ve tried for years now to try and get some help with my son but time and time again we get denied.
There excuses were my sons not severe enough, his age and the last excuse was I’m not a single parent but now they’re simply saying he does not fit the criteria.
My sons one to one in school (specialised provision) and has to be one to one at all times, which he currently cannot get as I have two children at home.
Now please don’t think I’m doing this Because I blame my son because I don’t!
I love him with all my heart and soul, but we need some help, my anxiety is sky high at all times because I know how dangerous things can be for him.
He self harms and is covered in bruises and bite marks, he’s scared his hands through biting down that hard, he bites and attacks me when he’s scared and I don’t mind because I see the fear in his eyes, I’m there when his body goes stiff from fear I see and feel it. I’m scared one day he’ll hurt himself really badly and I cannot always keep him safe as I have two boys to look after not just my eldest son.
He’s split my sisters head open (not deliberately) he was scared and a group of teenagers were coming up the stairs in McDonald’s so he pushed my sisters head Against the wall and blood ended up squirting everywhere.
We were in a main road with moving cars and my eldest tried running out in front on the moving cars so I had to just dive on him to stop him leaving my 2 year old without a hand to hold! Imagine how scary that would be in that situation?
He split his head open yesterday in the back garden and I know things are only going to get worse.
I’m the only person who can handle my son but I’m struggling with that now he’s nearly the size of me and has super strength, anybody who has experience with a autistic child like mine will know.
He’s on medication but clearly it’s not working, we’re still waiting for cyps to get involved but I’m the meantime things are getting worse, I tried taking him to a family fun day today and he’s bit through all his arms and they were bleeding. I’ve got picture after picture of these to, but no body’s seems to be bothered about my sons safety especially disability social services so here I am trying to start a campaign for other parents who are struggling with a severe autistic who is under 7 in the North east.
I could go on and on about marks and bruises and incidents but I don’t want to paint him out the be a bad child Because he’s not, he just has no awareness of any danger to him.
I couldn’t imagine what it would be like to be non verbal in this world, I think it would be so terrifying and scary and I think he does amazing to cope the way he does but I’m a mum/carer and I need help and fast. My mental health has decreased dramatically as it takes a toll on my mental health too and I think it’s disgusting there’s no help for under 7’s who are autistic or their families but hopefully this will help change that.
Thank you for reading
lots of love
Chantelle xx
76
The Issue
Hi,
My name is Chantelle, I’m a 28 year old mum of two children.
My eldest son is 6 years old and is on the severe end of the autistic spectrum, he’s totally non verbal and has violent self injurious behaviours. My youngest is 2 with some traits too.
Disability social care have denied helping us many times, I’ve tried for years now to try and get some help with my son but time and time again we get denied.
There excuses were my sons not severe enough, his age and the last excuse was I’m not a single parent but now they’re simply saying he does not fit the criteria.
My sons one to one in school (specialised provision) and has to be one to one at all times, which he currently cannot get as I have two children at home.
Now please don’t think I’m doing this Because I blame my son because I don’t!
I love him with all my heart and soul, but we need some help, my anxiety is sky high at all times because I know how dangerous things can be for him.
He self harms and is covered in bruises and bite marks, he’s scared his hands through biting down that hard, he bites and attacks me when he’s scared and I don’t mind because I see the fear in his eyes, I’m there when his body goes stiff from fear I see and feel it. I’m scared one day he’ll hurt himself really badly and I cannot always keep him safe as I have two boys to look after not just my eldest son.
He’s split my sisters head open (not deliberately) he was scared and a group of teenagers were coming up the stairs in McDonald’s so he pushed my sisters head Against the wall and blood ended up squirting everywhere.
We were in a main road with moving cars and my eldest tried running out in front on the moving cars so I had to just dive on him to stop him leaving my 2 year old without a hand to hold! Imagine how scary that would be in that situation?
He split his head open yesterday in the back garden and I know things are only going to get worse.
I’m the only person who can handle my son but I’m struggling with that now he’s nearly the size of me and has super strength, anybody who has experience with a autistic child like mine will know.
He’s on medication but clearly it’s not working, we’re still waiting for cyps to get involved but I’m the meantime things are getting worse, I tried taking him to a family fun day today and he’s bit through all his arms and they were bleeding. I’ve got picture after picture of these to, but no body’s seems to be bothered about my sons safety especially disability social services so here I am trying to start a campaign for other parents who are struggling with a severe autistic who is under 7 in the North east.
I could go on and on about marks and bruises and incidents but I don’t want to paint him out the be a bad child Because he’s not, he just has no awareness of any danger to him.
I couldn’t imagine what it would be like to be non verbal in this world, I think it would be so terrifying and scary and I think he does amazing to cope the way he does but I’m a mum/carer and I need help and fast. My mental health has decreased dramatically as it takes a toll on my mental health too and I think it’s disgusting there’s no help for under 7’s who are autistic or their families but hopefully this will help change that.
Thank you for reading
lots of love
Chantelle xx
76
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Petition created on 11 August 2023