Endometriosis affects 1 in 10 women, yet diagnosis is delayed an average of 7 - 10 years.

By the time many women are finally diagnosed, the disease has already progressed—leading to chronic pain, infertility, and damage to vital reproductive organs.

This delay is not because patients aren’t seeking care.

It’s because we are not being screened.

Routine annual gynecologic exams do not include standardized screening for endometriosis. Patients reporting symptoms like painful periods, pelvic pain, or pain with intercourse are often told these experiences are “normal” or dismissed entirely.

Without early recognition, endometriosis can progress silently—sometimes until advanced disease develops, including large ovarian cysts (endometriomas) or fertility complications.

Endometriosis is also significantly under-researched and underfunded. Despite affecting millions, there is still no reliable non-invasive screening test, and many providers receive limited training in recognizing the condition early.

Until better diagnostic tools exist, early symptom recognition is our most effective tool—and it is currently being underutilized.

Earlier detection means:
• Reduced disease progression
• Fewer invasive surgeries
• Better fertility outcomes
• Improved quality of life

No patient should have to wait until their condition becomes severe to be taken seriously.

I am advocating for this change after a sudden onset of extreme pain led to my diagnosis of advanced endometriosis requiring surgery to remove large ovarian cysts. This was not identified during routine care. There was no screening, no early intervention—only a diagnosis once the disease had already progressed.

Earlier detection could have made a significant difference in my health, possible fertility implications, and my overall well-being.

My story is not unique—and that’s exactly the problem.

If you’ve ever been told your pain was “normal,” this is for you.

If you’ve ever felt like your concerns weren’t taken seriously, this is for you.

If you care about the health of the women in your life, this is for you.

If you believe women deserve better care, sign and share.