Illuminate Australian Skylines Purple on April 13th for Sarcoidosis Awareness in Australia

Illuminate Australian Skylines Purple on April 13th for Sarcoidosis Awareness in Australia

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Leon Fleming started this petition to Clover Moore (Sydney Lord Mayor) and

19/04/2020 Update: Received an amazing  letter of support from the Victorian Deputy Premier The Hon James Merlino MP! Thank you for your fantastic support!

25/03/2020UPDATE: Thank you to the Cranbourne Leader Newspaper for running a story on this petition! Please Find Transcript at the end of this page! Thank you to Suzan Delibasic and Valeriu Campan. http://leader.smedia.com.au/cranbourne/

UPDATE: I’m pleased to announce that Warwick, Queensland is the first on board! They will allocate their iconic and historic clock from April 10th to 13th to help shine a light!

Dear Australian Leaders and Media,

I am a young male with Multi Organ Sarcoidosis, a rare and relatively unknown disease to the public. 

Since my diagnosis, I have come across many other Australians with the same debilitating condition who would love for there to be greater awareness!

Such awarenesses already is in action overseas in North America and happens annually with the city skyscrapers lighting up purple on April the 13th, during April which is Sarcoidosis month!

I humbly ask the powers that be to please consider this request and bring Australia in line with North America and help those of us who live the daily struggle with this disease to help get conversations started.

As you will see in the signed comments, many Sarcoidosis sufferers have given very in-depth accounts of their illness and the happiness this petition gives them in hope awareness will be raised! 

I believe living in Australia, the greatest country on earth and with the support the petition is now getting that this could be a very successful event!

I want to do my best for those in similar shoes as me who feel alone in their battle.

Often people fight this debilitating disease in silence and live many years going undiagnosed. This is why we need awareness!

I humbly request you sincerely consider April 13th for lighting a landmark purple in as many towns and cities in Australia as possible for Sarcoidosis awareness!

Making us another country front runner with North America in starting the trend that grows bigger and brighter every year.

Thank you again kindly for your time.

Kindest Regards,

Leon Fleming from Melbourne, Australia 

#LitForSarc #LitForSarcAustralia

About Sarcoidosis: Sarcoidosis is an inflammatory disease that can occur in any demographic regardless of age, gender or race. It often strikes people between 20-40 years of age with a wide array of mysterious symptoms. It occurs when an individual's immune system goes into overdrive and they develop granulomas, tiny clumps of inflammatory cells, in one or more organ of their body. When too many granulomas form, they can interfere with an organ's function and lead to permanent damage. The cause of this disease is unknown. While the organs involved and progression of the disease vary widely, 90% of patients have lung involvement. Spontaneous remission is common; however, 30-40% of patients develop major organ involvement which can lead to organ failure and death. Others face reduced quality of life due to the symptoms of the disease which include chronic pain and uncontrollable fatigue and/or side effects from treatment. Despite progress in research, sarcoidosis remains hard to diagnose with few reliable treatment options and no known cure.

25/03/2020 Cranbourne Leader Page 12 25/03/2020 edition:

”Leon battles for disease recognition
Cranbourne’s Leon Fleming would like to raise awareness for his rare disease sarcoidosis.

A Cranbourne man with a rare debilitating condition is calling for national awareness of the disease.

Leon Fleming, 34, has sarcoidosis, in which small nodules appear in the body’s tissues, said he and others were “suffering in silence”.

Mr Fleming, who has had it for more than a year, said the disease was “invisible” and left him bedridden most of the time.

“Sufferers deserve support and awareness for this debilitating disease, which can be fatal at times,” he said.

He said he hoped Australia could recognise a national day for the disease.

“In the US and Canada each April they have Sarcoidosis Month and every April 13 they light up the city skylines in purple for recognition of it.

Mr Fleming has a change.org petition for his campaign.“

Details: change.org/Sarcoidosis 

0 have signed. Let’s get to 500!
At 500 signatures, this petition is more likely to be featured in recommendations!