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I am a DES daughter and had complications from it. This is an important issue.
Pamela supported: Justice for DES Families: Pass House Resolution 342 (IH)I am a DES daughter, my sister passed away from adenocarcinoma. Why can't we Sue pharmaceutical company for our exposure. We shouldn't have to donate anything.
Christine supported: Justice for DES Families: Pass House Resolution 342 (IH)I am a DES baby and I have lost 10 babies because of it. I have multiple autoimmune disorders, cardiac issues, gi issues, muscular issues, connective tissue problems all can link to disease caused by DES. My older sister is a DES child also. My mother took a slightly different formula with her and she has significant cardiac, muscular, skeletal and gi issues. Every decade of life for both of us the problems we have amplify. What starts as a minor issue in your 20's turns into a moderate issue in your 40's and an major issue in your 60's. We are both in our 60's now and neither of us were able to carry babies to term. We wanted children but because of DES we were denied that possibility. The muscular and skeletal issues are slowly crippling us. The cardiac issues are eventually going to kill us. Lupus has gotten me and the pain is hard to live with daily. My sister can't afford all the testing but I am sure she has it also. We both have other autoimmune disorders. The manufacturers and the doctors that prescribed this drug need to be held accountable.
ann supported: Justice for DES Families: Pass House Resolution 342 (IH)Life long health struggles....mom injected DES through out pregnancy.
Deb supported: Justice for DES Families: Pass House Resolution 342 (IH)I am a DES daughter, nearly 71yrs old. I have Hospital records that my mother was injected with DES while carrying me, potentially having a miscarriage. The Hospital in Australia concerned sent out warnings about DES effects by letter to the mothers to pass on to their daughters in the 1970's. I was born a non-thriving baby, 'premmy' & low birth weight. I remained small during childhood & during my teens, having 'delayed puberty' & development, later very heavy & irregular periods that s'times lasted a month. I was born with bi-lateral talipes, bowed legs & some form of arm abnormality of my elbows which face upwards. My eyesight was poor frm birth & has been deteriorating all my life to date. I had probs with conceiving. I miscarried due to a 'tilted uterus' but had 2 children with perseverance. After the 2nd child, I had no periods but hemorrhaged for 5yrs, becoming thin, sick, mentally distressed, suffered abuse by my then husband due to having multiple curettes & diathermies over those yrs. & being constantly ill. I had a hysterectomy finally at 29yrs old which found a uterus full of polyps. I have 'sensitivities' to many 'everyday' medications, suffer frm Diverticulosis, asthma, Osteopenia, arthritis, am Lactose & Gluten intolerant, have a bi-lateral Mitral Valve prolapse which has caused arrythmias since my teens & required medication since, have Polycystic Breast Disease & cysts on both kidneys. I have Immune System issues: It seems it does not matter WHAT I get vaccinated for, I still get the diseases! Measles, mumps, chickenpox, rubella & an UNIDENTIFIED 'Mega-Virus' as a child. Whooping Cough, Glandular Fever, Scarlet Fever, plus Q-Fever as an adult! I have been told that DES is a major Endocrine disruptor & have spent yrs of my life trying to get Drs. to note I AM a DES Daughter & FIND OUT WHY I have been sick all my life! My youngest son & his partners 1st child was severely deformed with a Barr 'short arm' genetic condition & terminated when it was discovered just prior to full term. Was this also a DES result? My late mother blamed herself for my health issues all her life until she passed away, I blame myself about the loss of my son's son .. the anguish is real; the health & mental torture has always been real! Its time responsibility be taken by those THAT ARE responsible!
Dianne supported: Justice for DES Families: Pass House Resolution 342 (IH)I'm a 70 year old DES daughter who still undergoes annual investigations and testing for cancer - that is 50 years of regular medical visits, tests and surgeries. My mother was made aware of the effects of DES when I was 20 - she lived her life with this. My 3 pregnancies resulted in an ectopic, losing a boy at 20 weeks gestation and another at 22 weeks. This was incredibly traumatic in oh so many ways and never leaves me. In Australia, we have not been awarded a single cent of compensation due to the ridiculous requirements of the drug companies. The fact that this drug was known to cause problems, even before it was released, is a total injustice. It is time for the drug companies to stand up and apologise to all, no matter what country, and compensate us for the unnecessary mental, physical and financial trauma that they have caused.
Sue supported: Justice for DES Families: Pass House Resolution 342 (IH)Because of DES, my grandmother and my mother both died a slow, painful, cancerous death too soon. As a DES granddaughter I’ve experienced a lot of strange symptoms, but no healthcare provider has ever taken my concern about this issue seriously. They call it healthcare but they don’t care about our health- only their profits. Never an apology, never any justice, never the level of care that any of us should have received. It’s time that changed.
Amber supported: Justice for DES Families: Pass House Resolution 342 (IH)Absolute disaster. Apparently born with T shape uterus. Miscarried 5 times. Specialist finally investigated - had operation to try and fix DES T shaped uterus - two more disaster miscarriages and then gave up trying to have a baby. what a terrible 15 years and this has had a huge impact on me. Just had hysterectomy at 74 at Chris Obrien Lifehouse and annual checkups for DES cancer
Margaret supported: Justice for DES Families: Pass House Resolution 342 (IH)I’m a 64-year-old DES daughter who - like millions of other DES babies - was permanently damaged from my DES exposure in utero. I was born missing a kidney, and with several reproductive tract malformations that required numerous painful surgeries, exploratory procedures, and traumatizing gynecological exams from the time I was a very small child through my twenties. And I have lived my entire life with the specter of gynecological and breast cancer hanging over my head. There are many other impacts as well that aren’t even mentioned in this bill, but which many DES daughters and sons (including myself) suffer. And these impacts are lifelong. The researchers and drug companies KNEW - long before DES was ever given to a single pregnant woman - that this drug was not only ineffective, but that it was actually harmful. The urogenital malformations seen in DES daughters and sons were seen in the animal test subjects from the very beginning. That this drug was ever given to a single woman is not only unethical and irresponsible - it’s CRIMINAL. And the drug companies should be held accountable for pushing this drug for nearly FOUR decades, despite knowing that it was damaging women and their babies. THEY all profited, while WE all suffered. It’s time to make it right.
Dyan supported: Justice for DES Families: Pass House Resolution 342 (IH)My Mom was prescribed Diethylstilbestrol (DES) while pregnant with my twin brother and me. I have suffered from a number of health issues that have been linked to DES exposure some of which required surgery to correct and some of which are endocrine related chronic conditions . I have recently (at age 57) been diagnosed with Multiple Sclerosis (MS) and Chronic Inflammatory Demyelinating Polyneuropathy (CIDP). I began experiencing symptoms of these diseases 13 years ago and it took 11 years of diagnostic activity including stays at Emory (Atlanta), Baylor (Dallas) and Mayo (Rochester, MN) to arrive at the MS and CIDP diagnoses. Some research has indicated that neurological autoimmune conditions like MS and CIDP might also be linked to DES exposure. However, additional research was cited as being necessary because of the small sample size in the original research. I am willing to participate in and help fundraise for such research to occur.
I gave up driving at age 48 for safety reasons because of MS/CIDP balance, spatial orientation, and response speed deficits. I required special considerations from my employer beginning at age 51 and was ultimately forced to retire early on disability because of MS/CIDP related pain, fatigue, cognitive decline (including the inability to concentrate and reduced ability to process complex information / problems and processes, blurry vision and inconsistent work schedule resulting from the variable nature of MS/CIDP flare ups and complications. I will spend the rest of my life dealing with the menaces that are MS and CIDP all while not knowing for sure whether or not it would have been preventable had the FDA not bowed to pressure from the Pharmaceutical industry in the late 1930s and again in the 1950s (when credible research from the University of Chicago showed that DES was a carcinogenic endocrine disrupting chemical (EDC) with teratogenic properties). The DES tragedy that includes increased incidence of multi-generational reproductive organ cancers and physical deformities, fertility issues, bone/cartilage issues, cardiac disease and endocrine related diseases (such as hyperlipidemia, obesity, diabetes and hypertension) should have been prevented or at least shortened. Our government needs to focus more on the toxic exposure to DES because many chronic conditions and cancers that are increasingly in frequency and cost to the Medicare and Medicaid programs may have their root cause in the DES exposure and related epigenetic alterations it has caused. Perhaps modern science and medicine can find a way to reverse the damage so that future generations of my family (my children and grandchild have already undergone corrective surgeries tied to DES exposure) do not need to continue suffering from the toxic effects of DES.
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