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People are suffering. IMO, DP is a lazy dx. If it is DP, why are many doctors reportedly not going anywhere near patients during the exam? I showed my cardiologist a pic taken with my cell phone's macro lens; he SAID it was a mite and then bolted from the exam room. After viewing a few of my worst pics (and there are plenty, my pcp said, 'you could be in a horror show.' Neither doctor helped me. If not for my resourc3fulness, I am certain I would be dead by now. I also have severe heart failure because of a serious medical mistake wherein I ended up on a ventilator for 5 days fighting for my life. The doctors do not care as I am single and 'older' female, a marginalized group that ni one relly cares about in the USA. I planned on travelling after I retired, having worked hard for 45 years...instead, I suffer daily. This skin issue is the latest crappy thing (that I know of) to befall those least able to fight back.
Maureen supported: No One Should Suffer from Scabies: Fund a Vaccine & Drug-Resistance Research Now!I’ve dealt with this ungodly misery for 11 years. Haven’t been able to visit friends family or date in 11 years. Have poisoned myself beyond belief lost my gall bladder probably because of poisoning myself. The cures Don’t Work at all anymore. And if there is a successful case it is likely due to the person being young and having a powerful immune system to help. I had it at age 17 and used the leftover bottle of Permethrin my cousin gave me from treating her son which I got it from and on Thanksgiving! It was a quarter of a tube and she didn’t say anything about cleaning anything. Went home and took a bath and put a Little here and There maybe covered 10% of my body and that was it done itching gone completely by day 2. So I know Post Scabies some doctors tell people that itching for weeks after treatment is normal!! No it isn’t if they are Dead like in my case it will be gone in no more than 3 days. Having caught it again from my aunt which has been having it for around 30 years just doesn’t treat because she has no immune response so it doesn’t bother her. My life has been destroyed. If I had this and no cure being younger I’d have killed myself years ago. Since I’m old the symptoms aren’t as bad. But it still destroys a person’s life because of isolation. If I also wasn’t on Disability I would have killed myself jumping in front of a big rig because having a Job and suffering from scabies makes Working impossible. I have tried Throwing absolutely everything I owed away. No furniture no cookware no nothing just my phone which I’d disinfect constantly and still can’t beat them. I’ve tried wrapping myself in Duct tape suffering badly trying to suffocate them. I’ve injected animal medicine in my anus and eaten poison to try anything to live normal again. And so much more. I shouldn’t be alive. Why stay alive anyway? So I can exist to continue being a parasite’s breakfast lunch and dinner? Countless clueless doctors telling me and others that we are just crazy to make us suffer more so they can protect themselves from a Lawsuit by admitting us in a mental hospital so we can really suffer much much more because in there we can’t do anything to give ourselves any relief. I could go on and on. There is way more people infected in the world than what’s diagnosed and known because weak immune system people typically don’t suffer they just live with it like my aunt spreading it.
Tim supported: No One Should Suffer from Scabies: Fund a Vaccine & Drug-Resistance Research Now!I have been suffering for 3 years with endless trips to hospitals doctors specialists and they say I'm crazy this is a real disease and us people suffering need help and the doctors tried to lock me up in push wards for having a disease they choose to ignore please help us this is debilitating life altering and gets harder everyday to live please help us PLEASE HEAR US WE ARE CRYING OUT FOR HELP!!!!!
Cindy supported: No One Should Suffer from Scabies: Fund a Vaccine & Drug-Resistance Research Now!Doctors act like I’m crazy. I have gone in with horrible symptoms they referred me to a dermatologist. I’ve done countless hours of research trying to get rid of them spend 1,000s of dollars on everything possible to help get them out. I cant be around my family i lost my job. Its been going on 2 yrs i cannot get rid of these horrible disgusting parasites.
Lisa supported: No One Should Suffer from Scabies: Fund a Vaccine & Drug-Resistance Research Now!I have been suffering from scabies for 2 years now. I bought my home 14 years ago on the country outside a City that I was involved in, my neighbor was wonderful and I knew everyone in town
.Then I got scabies. Went to the Dr. Said I had a fungal infection and everything else was in my head. Had an ER visit said I was feeling delusional parasites gave me a therapist paper to check into. Next thing I know I refuse Dr.s of any type because that once stand up and speak your mind woman I was was gone, I was getting too sick to fight for myself. I gave up. Today I can't finish any job I start, I can't ride my Harley, I can't keep up with my acres or my home. I can't pay my bills on time even if the money is there, I can't make a correct decision to save my life. I've lost my 27 year relationship, the boy, now a man that I adopted 37 years ago and gave up my life at 26 to do it, I have no friends left they have all passed, and a sister I haven't seen in 20 years. That's all them and this is me fighting for my life in a war that this side has one. I can't go into town they think I'm nuts. I would like to say your right now I am fucking delusional with the infections ECT.. I fight alone. So here I am, once a business owner, I had a good name, great job, everything I ever needed debt free on my own. I would of traded it all for a cure for this but now I've lost everything except my home. I can't explain how much money I've been through trying to get rid of these little bastards. Someone said there's started when they parked by a tree. Mine started when I parked in a tight single place between two old railroad ties that I put down 14 years ago.. My truck first, then my home. I can't fight anymore. I've chosen to stop fighting them and try to get where it's the least painful and let my life end whenever they've chewed enough on me or I decide enough is enough. I want to say "Shame The Hell On You" Public workers who aren't knowledgeable enough on most anything so the patient who suffers had to suffer more from the name you so called medical providers put on us, because your not very bright and need an escape goat for your lack of knowledge or lack of intelligence to learn anything outside the common cold. We suffer. I can only hope something happens soon and I have little, hope left because the last money I have will be for an autopsy and maybe then they will do something big, like care about the people and stop making up excuses. I'm living proof of how it changes your life completely and everyone is equal and everyone deserves a chance in life to not suffer on a daily basis, day on day out. Think about it if your a medical provider, what are you going to do when you, your family, Someone close to you get scabies? You going to sell them out too. I believe that.. Peace and prayers go out to each and every one of you that has scabies, or will get scabies, a parasite or something else, fight hard. If your young keep up the fight for those who can't fight anymore. Be kind!! Thanks for reading.
Robin supported: No One Should Suffer from Scabies: Fund a Vaccine & Drug-Resistance Research Now!No child just disappears. One of her siblings told police that her mother said Oakley was gone. She would not be coming back. She was eaten by the wolves!! Oakley was in a loving caring home with her foster family and yet the state came and took her back to the bio family. The drug house! This family had already been reported for child abuse and drug use. They had a fire but didn't report it until ten months later. Neither parent say they know what happened to Oakley. I hope with all my heart she was sold to a family and is still alive. But I also want her to be returned to her foster family who love her SO MUCH!! Please, make these bio parents speak up so Oakley can be found and brought home. #JusticeFor Oakley
Susan supported: Justice For Missing Child Oakley CarlsonOakley deserves justice. Both DCYF and her parents failed her. That foster family who wanted to adopt her would have loved her and given her a wonderful life. Shame on those who did her wrong! I live in Washington, so I am familiar with this case. But I just heard it again on detective perspective podcast. I think his idea of charging the parents with manslaughter is the least that the courts could do. They either need to find that little girl alive or deceased so they can have closure and get that little girl justice. Please do the right thing.
Dana supported: Justice For Missing Child Oakley CarlsonThe system has failed many families and children. Oakley had a loving family with her foster parents. She knew she was loved. They returned her to her biolgical parents after being taken away. How did this happen? Her foster parents continue to advocate and search for baby Oakley while its been almost 4 years now and those monsters still aren't talking #JusticeForOakley
Sarah supported: Justice For Missing Child Oakley CarlsonMr. Hiles, Oakley's former foster father, is my high school teacher, when I heard that, I was pretty shocked. Because even before knowing him, I knew of Oakley's case, seeing her missing poster in passing everyday when on the bus. It's not fair that this poor girl was sent back to a horrible house with horrible parents, when she had amazing and loving foster parents. She should have been celebrating the holidays, she should have been at a loving home, she should have been safe. But she wasn't, and was betrayed by the system that swore her safety.
Carlin supported: Justice For Missing Child Oakley CarlsonThankful for these type of resources. This is the second time signing change.org petition for Oakley and will continue signing. Advocacy isn't only for one person it is for the plural form ---all people. There is definitely a consistent problem within DCYF and it needs to change. Public service is in place for the families of the state of WA --accountability of all public service workers is imperative for WA state resident to thrive, there is no room for incompetence---seems to be a pattern. It is awesome to see these resources and people coming together for justice! #justiceforoakley 🎀💟🎀
Janelle supported: Justice For Missing Child Oakley CarlsonYou’re not alone — a community of supporters is ready to back you.
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