Rarediseasematters

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DisabilityPatients' RightsHealth and Well-beingChild and Family Well-beingDrug and Medicine RegulationChildren's RightsAccess to HealthcareChildren

Stories and updates from petition starters

Require Mandatory Education on Vascular Compression Syndromes in Clinical Training
Thank you for 1280 Signatures and 40 comments!Hi friends! I wanted to let you know that we now have 1262 signatures on this petition. Thank you so much for your support! I am…
Thank you for 1280 Signatures and 40 comments!
January 14, 2026
FDA: Approve the First Targeted PDCD Treatment and Provide Hope for Our Kids
Thank you for standing with the PDCD communityThank you for standing with the PDCD community and adding your voice to this important petition. With more than 18,000 signatures,…
Thank you for standing with the PDCD community
December 9, 2025

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