Petition for Immediate Removal of Age Cap for Denali Therapeutic Drug AVLAYAH for MPS II
United States
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As someone with severe allergies, I know how fast anaphylaxis can become deadly. EpiPens save lives, just like Narcan, and should be just as accessible. No one should die because they couldn’t afford or find one in time.
Marisa supported: Malakai’s Law - Ensure widespread access to EpiPens during emergenciesYears of adjustments on synthetics that left me lifeless before being transitioned to NDT. NDT has given me my life back. In 15 years I’ve NEVER had any of the proported negative issues the FDA has outlined. This decision should be left up to patients and their physicians. I’m terrified to go backwards in my treatment. Horrified actually. I beg of you to reconsider.
Jennifer supported: We, as thyroid patients, DO NOT AGREE with the FDA false claims against desiccated thyroidThe FDA IS WRONG! NDT medications saved my life, whereas synthroid destroyed my health. Our bodies are not meant for conversion alone. NDT medications contain T4, T3, T2, T1, and calcitonin, everything our thyroids produce.
My thyroid was removed. My best treatment results are with Armour Thyroid and Cytomel.
Please leave our meds alone!
Sharon supported: We, as thyroid patients, DO NOT AGREE with the FDA false claims against desiccated thyroidNDT made such a difference in my life. Not long ago it’s tier was changed and was no longer covered by insurance as it was. It is a lifesaving necessity like insulin and should be covered.
Denise supported: We, as thyroid patients, DO NOT AGREE with the FDA false claims against desiccated thyroidThis is the only medication that has ever worked for me. I've spent my entire life battling obesity-related complications/illnesses, and I can't take Wegovy due to the side effects. Please restore this to the formulary! It's a critical medication for many people.
Kara supported: Stop CVS Caremark’s Zepbound Ban — Restore Coverage of the Superior Obesity MedicationMy job at my smoke shop has been the best job I've ever had. I get paid better than I did in factories and my commission bonus is extremely helpful. Up until the ban I was looking at houses, now I'm looking at the reality of having to get a second job to afford where I am now. This isn't a ban for our health, otherwise the 3 remaining legal vapes would not be owned by big tobacco companies. This is our state government failing us so they can make a quick buck. Our representatives don't represent us, they represent the corruption in our government. Yes vapes need regulation, but there is a way to go about it that doesn't affect thousands of jobs.
Jacob supported: Stop the Wisconsin Vape Ban LawI was a homeless fentanyl and meth addict for years..I have literally died more times than i can count and Kratom and 7oh saved my life. I no longer have to worry about dying from trying to get pain relief. I have no health insurance because I cannot afford it. My job does not provide any benefits whatsoever and even if i did have a doctor to see i have been through this before they will not help with pain medication at all yet. They don't get their commission for prescribing pain medication anymore. So they'd rather you take a bunch of nasty meds that donnot work and then you'll soon be on the streets looking for heroin which is all fentanyl now to just relieve the pain. Well this is my testimony! 7OH SAVED MY LIFE!
Kasey supported: URGENT: STOP A NATIONAL 7-OH BAN & PROTECT CHRONIC PAIN PATIENTSPLEASE READ: "7OH Gave Me My Life Back" -Caleb Eichholz, A normal guy.. A single father a dude trying to live learn and grow just like you! I have chronic pain from autoimmune disorders life long effects from injury’s hell I even have autism, I’m a real prize! But I’m also a scared 28 year old in this big moving world with a daughter who relies solely on ME and let me tell you I wasn’t “me” for a long long time I was in and out of hospitals doctors etc being poked probed and pharmaceuticals shoved down my throat not to cure or treat but to mask my symptoms I was a doped up shell barely able to function or be present for my daughter by all means I was there but was I truly? No! I had a slew of horrid side effects from the countless medications that were supposed to help me! So here’s my story on how 7OH gave me my life back.
There was a time when I felt like my life was slipping away not just from me, but from the people who mattered most: my family, especially my kids. I struggled daily just to keep my head above water. My health, relationships, and sense of purpose were drowning under the weight of something I couldn’t control. I wasn't living… I was barely survivin!. Then came 7OH from the moment I began self treatment, everything changed. 7OH didn’t just mask symptoms it gave me clarity, control, and hope. For the first time in years, I could wake up in the morning and feel like myself again. I could show up for my kid not just physically, but emotionally — present, engaged, and consistent.
I’ve gone from barely holding on to thriving. I'm now a productive member of society working, contributing, and most importantly, being a real father. The kind of father my kids deserve. I can plan for the future instead of fearing it. 7OH didn’t just change my life it gave it back to me. And I’ll never stop advocating for it, because I know firsthand how powerful that kind of second chance can be.
-Sure there are people who abuse it and people who fear it but it is NOT dangerous and does far greater good than harm, Please for the love of god find your humanity find your morals and your reasoning don’t let scare tactics effect your decisions. Instead let science and first hand accounts of what it’s done for YOURA people sway you, We are supposed to be a FREE people who have choice we’re the ones you took that high ranking job to help and protect not punish! What would you really be keeping us safe from? A life finally free of pain addiction or mental illness.. this medication has saved people and given so many families their loved ones back children their mothers and fathers so on and so forth, It’s taken people from the clutches of real drugs and saved them! The only thing you’d accomplish by banning 7OH is harming your people, Pushing them back onto the streets into the clutches of real drugs and the pharmaceutical companies. This is medication this is harm reduction this is life saving and it’s FREEDOM, 7OH is so much more than a substance.
-Caleb E.
Caleb supported: URGENT: STOP A NATIONAL 7-OH BAN & PROTECT CHRONIC PAIN PATIENTSYou’re not alone — a community of supporters is ready to back you.
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