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Infectious Diseases
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I’ve lived with Lyme for decades and to a point now it’s debilitating, I’m having seizures, fainting, my feet turn blue constantly, and traditional medicine does not care. In fact an independent internist actually told me as a patient I am ‘flagged’. Lyme patients are constantly ignored, gaslit, and not given the help they need and it HAS TO CHANGE!
rosa supported: Request for Senate Hearing on Inequities With Chronic Lyme DiseaseI've had lyme for the past year and a half and no doctor will believe that it's what causing my body to shut down. It should have never taken this long. I was gaslighted into believing it was anxiety and all in my head.
Aja supported: Request for Senate Hearing on Inequities With Chronic Lyme DiseaseTickborne diseases can be life-altering and devastating especially when treatment is delayed. The lifelong suffering they can cause-- physically, mentally, psychologically, and spiritually--is unimaginable. Something must be done now to save the lives and the quality of lives of millions of sufferers.
M.A. supported: Request for Senate Hearing on Inequities With Chronic Lyme DiseaseJust two years ago, I was working 75 hours a week, building a future I was proud of. Today, at 27, I’m bedridden—my life shattered by chronic Lyme disease and co-infections long ignored by the IDSA.
I’ve been dismissed, misdiagnosed, and denied proper care. Like so many others, I was labeled with conditions like ME/CFS, MS, ALS, fibromyalgia, or lupus—while the underlying infections were missed. Yet many of us improve, even reach remission, under ILADS-guided treatment. So why are we still being ignored?
Imagine how many people on disability could reclaim their lives if this disease were taken seriously. Please sign this petition. We need recognition, research, and real treatment—before more lives are lost in silence.
Zachary supported: Request for Senate Hearing on Inequities With Chronic Lyme DiseaseAlmost two years of Lymes here. We’re simply looking to put health and true healing first. Not politics.
Cheyenne supported: Request for Senate Hearing on Inequities With Chronic Lyme DiseaseI was officially diagnosed in 2022 after 10 years of chasing symptoms without a root cause. Better testing is fundamental and better treatment protocols are paramount! We are suffering with disabling conditions, little to no knowledgeable physicians and bankrupt from losing ability to work and trying anything to alleviate our pain. This is an epidemic that has been ignored for too long. Please listen to us!
Sarah supported: Request for Senate Hearing on Inequities With Chronic Lyme DiseaseI have a dear friend who has Lyme disease and has had it for about 30 years. When she went to get tested, she was told there was no Lyme in TN so by the time she was able to get tested she had Lyme and 4 of the co-infections! This is a deadly disease!!!
Karen supported: Request for Senate Hearing on Inequities With Chronic Lyme DiseaseI contracted Lyme in 1988 and was not diagnosed until 2001. I suffered terrible debilitating symptoms until Dr Richard Horowitz was able to get my Lyme and 5 sssociated diseases under control. Let’s get this horrible life changing disease under control. Sincerely,
Margaret Massad
Margaret supported: Request for Senate Hearing on Inequities With Chronic Lyme DiseaseYou’re not alone — a community of supporters is ready to back you.
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