Epilepsy Awareness

  • 6.504 Unterstützer:innen sind an diesem Thema aktiv dran.
  • 9 Petitionen wurden in dieser Community gestartet
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9 Petitionen in Epilepsy Awareness entdecken

Mit Epilepsy Awareness verbundene Themen

Health and Well-beingDisabilityDisability RightsEpilepsyDisabled Persons' RightsHealthPublic HealthGovernment and Politics

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Sudep epilepsy
Thank youThank you to each n everyone who has signed n shared , awareness really needs to be out there so please continue to sign n share y…
Thank you
10. Januar 2026
Sudep epilepsy
Please keep sharing & signingHello to all those that have signed n shared my petition.  If any of you are not aware , Last week parliament held talks on epile…
Please keep sharing & signing
10. Juni 2025
Demand Better Awareness and Disclosure About SUDEP Risks to Epilepsy Patients
Epilepsy week in parliamentHi everyone. Last week parliament held talks on epilepsy and achievement of what people can do living with epilepsy. Im angry beca…
Epilepsy week in parliament
10. Juni 2025

3 Unterstützer*innen unterhalten sich über Petitionen im Zusammenhang mit Epilepsy Awareness!

Our son Dylan endured seizures for 16 yrs. It is my opinion that our son was wrongly diagnosed , he had many medications pushed on him and the more he was given the worse the seizures became. I discovered SUDEP thru my research , but yet it was 12 yrs before any Dr ever mentioned SUDEP to us . I feel the sharing of medical records is NOT in the best interest of the patient due to the fact that Drs review those before seeing the patient and therefore they make a predetermined decision based on another's opinion before they evaluate the patient in their own. I have many many stories of how the medical field failed our son , if you send me a friend request I have each one posted on my FB page. Something has to be done to help these patients with seizure disorders .
don unterstützt: Demand Better Awareness and Disclosure About SUDEP Risks to Epilepsy Patients
It is so frustrating to me that loved ones of those lost to SUDEP are still not being informed about this fatal condition. My son Eitan passed from SUDEP 12 years ago on Valentine's Day. We had never heard of this. The Epilepsy Foundation started the SUDEP section a few weeks after Eitan passed (coincidentally). In 2014, The Boston Globe wrote an article about my son and SUDEP. And still, more than a decade later, this nonsharing of essential information persists! While knowledge does not necessarily prevent SUDEP from happening, it certainly helps. Thank you for creating this petition.
Lise unterstützt: Demand Better Awareness and Disclosure About SUDEP Risks to Epilepsy Patients
On December 28th, 2024, I found my 18 year old son dead in his bed. He was diagnosed with epilepsy only five years ago, and not once were we ever told about the risk of SUDEP. Awareness needs to be raised and physicians are responsible for informing patients and parents of all risks connected to epilepsy.
Latasha unterstützt: Demand Better Awareness and Disclosure About SUDEP Risks to Epilepsy Patients

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