Topic

organ donation

9 petitions

Update posted 1 week ago

Petition to Maryland State House, Maryland State Senate, Larry Hogan, Maryland Governor, Thomas Miller, Angela Angel, Alonzo Washington, Katherine Klausmeier, Bobby Zirkin, Pam Queen, Craig Zucker, Jamie Raskin, Mary Washington, Michael Busch, Jay Jacobs, Michael Jackson, C. Anthony Muse, Nathaniel McFadden, Maggie McIntosh

Grant emergency vehicle status to blood, organ and tissue transport vehicles in Maryland

Currently there is no provision within Maryland Law to allow organ, blood and tissue transport vehicles to be recognized as emergency vehicles. Most states already have provisions for blood, tissue and organ transport vehicles to operate as emergency vehicles, IL, PA, WI, NJ, AZ, FL, MI among others. In 2016 MD HB662 was introduced to allow for these vehicles to be recognized but was introduced too late in the session and ultimately died in committee. No bill was introduced in 2017 however several members of the House and Senate have pledged their support for this measure when it is reintroduced. Blood, tissue and organ transport is currently handled in Maryland by EMS agencies and commercial ambulance services, just one organ recovery call can tie up an ambulance crew for 8-10 hours preventing them from being able to fulfill their primary mission of transporting the sick and injured. There are two major transplant centers in the State of Maryland, University of Maryland Medical Center and John’s Hopkins both of which require transport services on almost a daily basis. There is support of both hospitals transplant divisions as well as that of The Living Legacy Foundation and The Washington Regional Transplant Community which are the organ procurement organizations that services most of Maryland to begin this service as soon as possible. By allowing these vehicles to begin service within the State of Maryland not only will more ambulances be available for those who require them, it will allow both transplant teams and organ procurement organizations to fulfill their missions in a timelier fashion by giving them a dedicated means of emergency transportation. There are agencies prepared to begin service within Maryland immediately and have all the necessary logistics in place, currently they are asking for your assistance in gaining authorization to begin service in MD with vehicles from their current fleets. We are asking for assistance with legislative support to reintroduce the bill in the 2018 legislative session. Your help would be greatly appreciated and success in this endeavor will benefit everyone in the Maryland in the transplant community.

Pat Nadeau
820 supporters
Update posted 3 weeks ago

Petition to U.S. House of Representatives, U.S. Senate

SUPPORT HR 4616 & S 2584 THE LIVING DONOR PROTECTION ACT

The National Kidney Foundation (NKF) is calling on members of Congress to support the Living Donor Protection Act introduced in the House and Senate today.The bill is designed to protect the rights of living donors and remove barriers to living organ donation. Specifically, the bill would end many forms of insurance discrimination facing living donors and extend job security through the Family and Medical Leave Act (FMLA) to those who donate an organ. “It’s unfortunate that even today we still see our nation’s living donors being denied insurance or having their premiums increased because they made a selfless decision to donate an organ to someone in need,” said Kevin Longino, CEO of the National Kidney Foundation. “This bill is an important first step to increase access to transplantation by removing the appalling barriers facing living kidney and liver donors. The National Kidney Foundation urges all members of Congress to support this bi-partisan legislation.” In 2014, 17,108 kidney transplants were performed in the United States; however, more than 100,000 Americans are on a wait list for a kidney. An integral part of the nation’s organ donation system is living, altruistic donors, who account for approximately one-third of all the kidneys transplanted each year. Organizations like the National Kidney Foundation believe it is a priority to protect the rights of these donors. The Living Donor Protection Act (H.R. 4616) was introduced in the House of Representatives on February 25, 2016, by Representative Jerrold Nadler (D-NY) along with Representative Michael Burgess, MD (R-TX). An identical bill (S. 2584) was introduced in the Senate by Senator Mark Kirk (R-IL) and Senator Kirsten Gillibrand (D-NY). The bill prohibits insurance companies from denying or limiting life, disability and long-term care insurance and from charging higher premiums to living organ donors.  The bill also clarifies that living organ donors may use time granted through the Family and Medical Leave Act (FMLA) to recover from transplant surgery. The bill also directs the Department of Health and Human Services to add information on these new protections to its materials to encourage more Americans to consider living donation. “The National Kidney Foundation believes that donors should not bear any financial costs or hardships related to donation, nor should they suffer any discrimination as a result of their donation,” Longino said. “We look forward to continuing to work with Congress to address the issues that threaten our nation’s organ donors.” All Americans can support the Living Donor Protection Act by contacting their representatives through NKF’s Advocacy Center. Urge your Senators and Representatives to cosponsor H.R. 4616 and S. 2584 to help protect the rights of living donors. The National Kidney Foundation is the leading organization in the U.S. dedicated to the awareness, prevention and treatment of kidney disease. For more information, visit www.kidney.org Publication DateThursday, February 25, 2016    

James Myers
56,537 supporters
Started 3 weeks ago

Petition to Shannon Buttermore

Organ Opt-Out aka Implied Consent USA

 "As of August 1, 2016, there were 120,004 people waiting for life-saving organ transplants in the USA.  Of these, 96,645 were awaiting kidney transplants."                                                                 (compliments of Wikipedia/Organ donation)  I was diagnosed at 5 with deformed ureters which grew into the sides of my bladder, in turn causing reflux pushing the waste from my bladder back up into my kidneys.  By the age of 7 I had an operation to connect my ureters the correct way.  Although this has worked with some people diagnosed sooner then myself it was not enough to keep my kidneys.  By the Age of 16 I was looking into which kind of dialysis would best fit my needs, I was put on the transplant list and had 10% function of both kidneys.     I had just become a sophomore in high school, was a cheerleader, felt tired at times but felt what I knew at "normal healthy". It was a typical day at school when my dad picked me up saying he received notice that I was going to be the proud recipient of a kidney!  But this wasn't just any kidney, this was someone who had taken the time to talk to his family, checked the box on his driver's license or a person who's family chose to remember his life by saving many other lives!   Looking back now 18 years out, I am happily married, we have 3 healthy happy children,  life is lived it to its fullest!  My kidney function is doing great although we hit a few road bumps I still look to many more happy healthy years.  In the back of my mind I know that no matter the transplant we are all on barrowed time.  I WILL eventually need another life saving transplant. This selfless act  from my donors family saved up to 8 lives that day!  Not only did these organs save lives but they also helped to save families from watching there loved ones go under life saving treatments just to wait for an organ, treatments that can make you bedridden, sick, tired all the time and are a last resort for those on the waiting list. On average 20 people die each day while waiting for a life saving organ transplant.    As of 2010, 24 European countries have some form of presumed consent (opt-out) system, with the most prominent and limited opt-out systems in Spain, Austria and Belgium yielding high donor rates.  Donations may be for research, or more commonly healthy transplantable organs and tissues my be donated to be transplanted into another person. This petition is for an "Opt-out" law.  This means that you will automatically be registered as an organ donor.  While views of organ donation are positive there is a large gap between the numbers of registered donors compared to those awaiting organ donation on a global level.  Right now about 15% of people in the US have "opt-in", this means that you have given consent to become an organ donor. Other things to consider putting into such a law would be that if you have religious or personal preference, clear wording with an explanation of what this "opt-out" law would involve. I am extremely grateful for this amazing gift that I received.  If you choose to sign my petition you choose to save lives.  I know that this isn't for everyone and I accept that.  There are many reasons to choose either way, signing this doesn't mean you cant opt-out if you choose. This allows an easier way for those to give consent and to save lives!  Thank you for reading this.   ~Shannon Buttermore (18 year deceased doner kidney recipient)       

shannon Buttermore
345 supporters