Petition to Donald J. Trump, Bernie Sanders
Funds for families that have children with cancer.
Thousands of children are diagnosed with cancer a year. Their parents are the people who stick by their side day in and day out. We have to watch our child suffer and waste away. On top of that, Almost all of us are going through it with little to no help at all. Many parents go without meals, Showers, and are away from our families for months to years at a time. We are begging everyone for help to keep our lights on. To keep a roof over our heads. And, it all depends on how many kind friends we have on social media. My daughter has stage 4 brain cancer. We are doing everything we can to stay afloat while caring for our daughter in treatments. The costs of treatments alone is enough to completely sink a family into debt. I am just asking for our Government to set aside a little bit of funds to ease the burden from families like mine. So many of these parents are having to worry about even more. They have to figure out how to pay for burial and funeral costs after they just lost the most precious thing in their lives. It is too much on so many families. I know most that most people will never have to deal with this. But, Alot of families do. Whether it is in the form of a grant or a loan.. Please do something to ease the burden off of these families. We will not give up. We cant give up for our children. We are all they have. Please, Lets make a difference. Lets get our voices heard. #NaomiStrong #WeareFAMily
Petition to National Institute on Drug Abuse, Substance Abuse and Mental Health Servicies Administration
Opioid Epidemic Awareness
Our mission is to bring awareness to the opioid epidemic that has risen exponentially over the past couple of years and we have high hopes of making a change.
Petition to Patrick J. Foye MTA Chairman and CEO, Phillip Eng President LIRR
SAVE A LIFE! Help get AEDs on the LIRR
The Long Island Railroad has the highest ridership of all commuter rail systems in the US. During those minutes or hours on the LIRR, a rider's life is in the hands of the employees of that train. Recently, a man experienced a cardiac arrest while riding the LIRR to work. Through the quick thinking of fellow passengers, CPR was initiated and at the next stop, the passenger was rushed to the hospital. Surprisingly, the LIRR had no automatic external defibrillators (AEDs) on this train or any of their trains. This life saving device does what compressions and CPR cannot do, which is diagnose life threatening arrhythmias and deliver electric shock to stop the arrhythmia. This easy to use device is available in many public places such as gyms, schools, airplanes and Amtrak. It is unthinkable that a train responsible for thousands of lives does not have this life saving device. We should not have to hope that someone is on the train and steps forward to help us in a life threatening situation. Send a message to the MTA Chairman and CEO and the President of the LIRR and demand AEDs on all LIRR trains. Our lives are in their hands of the LIRR every time those doors close and we hold them accountable for our safety.
Petition to Utah State House, Utah State Senate, Rob Bishop, Chris Stewart, John R. Curtis, Ben McAdams, Gary Herbert
$100 Co-Pay Cap on Insulin in Utah!
Join the Utah #insulin4all Chapter in calling for action on having a co-pay cap on insulin in Utah! By signing this petition, we are asking the Utah legislators to raise legislation that requires a co-pay cap on insulin regardless of how much insulin a patient uses a month and for insurance companies to pay anything more than the $100 co-pay. We also want this to cover the insured and uninsured, too. Colorado Gov. Jared Polis signed a bill into law recently that places a $100 per month cap on insulin co-pays, regardless of how much insulin a patient uses. Insurance companies will pay anything more than the $100 co-pay, according to the new law. However, this bill doesn't cover the uninsured. It's time for Utah to join Colorado in passing a price co-pay cap on this life-saving medication, but let's make our law even better by covering those without insurance, too. I urge you to look into the legislation that Colorado passed as a potential example for Utah to follow. https://leg.colorado.gov/bills/hb19-1216 A co-pay cap on insulin in the state of Utah will help many people who wonder how they will get the one thing that they need to live. Many of us here in Utah are struggling with the cost of insulin. One vial of insulin costs on average $300. Many type 1 diabetics use 2 to 4 vials a month. ● The price of some decades-old insulin has increased over 1200% since 1996. ● Even with insurance, people are paying an average of $1400 per month out-of-pocket for insulin alone and up to 50% of their annual income on diabetes costs. ● Between 2001 and 2015 the price of Humalog insulin increased by 585%. ● One vial of insulin can be manufactured for as little as $3.00. ● 1 in 4 people with type 1 diabetes are forced to ration their insulin due to its ever climbing price. The insulin Co-Pay cap in Colorado has shown that it’s possible for states to take control of outrageous insulin pricing, and as a result, to save lives. It’s time for Utah to join them in protecting Utahns with diabetes from avoidable health risks. Because of the incredibly high cost of insulin and other expensive supplies to handle their diabetes, many diabetics are forced into dire situations. Many diabetics have resorted to rationing insulin. They are risking their lives every day because they can’t afford to pay for their next vial. People are forced to choose between the insulin they need to survive, keep a roof over their head and food on the table for their families. People’s lives shouldn’t be put at risk because the insulin they require to live isn’t affordable. As an example, my type 1 diabetic son, who was 17 at the time, rationed his insulin because we struggled to afford it. We were paying $800 a month just for insulin until we reached our $5500 deductible because NO insulin AT ALL was covered until we reached our high deductible. We lost cars, lost our home, struggled to buy food and went into medical debt trying to keep him alive. My son has a long life ahead of him with this disease and I'm going to do everything I can to make sure he'll be able to afford his life sustaining insulin in the future. Please help all diabetics live long and healthy lives with affordable insulin. Please sign and share and let's save lives in Utah!
Petition to University of Utah School of Medicine
INTERSTITIAL CYSTITIS/IC : Needs Cause-Treatment-Cure! HELP US FIND THE ANSWERS!
Interstitial Cystitis/IC/Painful Bladder Syndrome are all REAL diagnoses. Thousands of people are suffering and the symptoms range from mild to “end stage.” I have created this Petition not to ask for donations, rather for your support by signing and commenting as to why you support this Petition!❤️ We feel we are going in circles with doctor after doctor, clinicians, and specialists. Telling us to change diet, exercise, don’t eat this, take this, do this procedure. Yet the reality of it all is how we are treated when searching for help. We need more research! We need more studies conducted on real people diagnosed with this disease! The only drug approved and known to “help” with treatment does not even come in Generic so Elmiron ends up costing $800-$1200 without insurance and with insurance is pretty high for some individuals. This is a chronic painful disease that is debilitating and we need answers, help. Our quality of life has been depleted. We need the U of U School of Medicine to please help us and invest in the sole focus of research on why we have this? Where does it come from? How can we get relief and get our lives back! Please help us live again!
Petition to Lauren Davis, Chris Corry, Brad Klippert, Jeremie Dufault, Christine Kilduff, Paul Harris, Lisa Callan, Mari Leavitt, My-Linh Thai, Tana Senn, Sherry Appleton, Tina Orwall, Sharon Wylie, Laurie Dolan, Luanne Van Werven, Amy Walen, Kelly Chambers, Jenny Graham, Bill Ramos, Shelley Kloba, Gerry Pollet, Debra Lekanoff, Jay Inslee, Patty Murray, Washington State Senate, Washington State House, Cathy McMorris Rodgers, Maria Cantwell
STOP HB 2546 ( WA State propasal to ban all concentrate above 10%Thc )
STOP HOUSE BILL 2546 Citing concerns about a suspected connection between cannabis and psychosis, a group of Washington state lawmakers wants to slash the allowed potency of all non-medical cannabis concentrates, limiting THC levels to no more than 10%. (Adlin, Paragraph 1) The bill would force thousands of legal consumers into the illegal market, which has killed dozens with tainted vape cartridges.The new proposal, House Bill 2546, would dramatically alter the face of Washington’s legal cannabis landscape by outlawing the vast majority of state-licensed vape cartridges, dabbable extracts, and other concentrated products. Such products are increasingly popular with consumers, lawmakers noted in the bill, accounting for nearly 40% of the state’s legal cannabis sales in 2019. ( Adlin, Paragraph 2) This is an attack on consumers and cannabis enthusiast, it would have no measurable affect except for less tax revenue and more health issues with black-market, unregulated products as well as the potential for deadly fires as individuals may try to make there own product. The High Potency numbers used were for any concentrate above 10% and it seems lawmakers have chosen such numbers arbitrarily than anything based on science, (Aldin) The creation of a black market and the problems it would create for not only for cannabis manufactures and dispensaries but those consumers who use concentrate is as medicine is down right unethical, even if you smoke recreational it is still an attack on our civil liberties. SAY NO TO HB 2546, Demand our politicians stop this unjust crusade. We can make the change View HB 2546 at http://lawfilesext.leg.wa.gov/biennium/2019-20/Pdf/Bills/House%20Bills/2546.pdf These following politicians sponsored the bill Lauren Davis (D-32), Chris Corry (R-14), Brad Klippert (R-8), Jeremie Dufault (R-15), Christine Kilduff (D-28), Paul Harris (R-17), Lisa Callan (D-5), Mari Leavitt (D-28), My-Linh Thai (D-41), Tana Senn (D-41), Sherry Appleton (D-23), Tina Orwall (D-33), Sharon Wylie (D-49), Laurie Dolan (D-22), Luanne Van Werven (R-42), Amy Walen (D-48), Kelly Chambers (R-25), Jenny Graham (R-6), Bill Ramos (D-5), Shelley Kloba (D-1), Gerry Pollet (D-46), and Debra Lekanoff (D-40). Adlin, Ben. “Washington State Lawmakers Bring Bill to Ban Most Cannabis Concentrates.” Leafly, 18 Jan. 2020, www.leafly.com/news/politics/washington-state-lawmakers-bring-bill-to-eliminate-cannabis-concentrates
Petition to U.S. Senate, Dan Brown, Kathy J. Byron, Lee Ware, Mike Cunningham, Timothy Hugo, Bill Eigel, Jason Holsman, Daniel Marshall, III, Jacob W Hummel, Robert B. Bell, Israel D. O'Quinn, Jamilah Nasheed, Bob Onder, Ron Richard, David E. Yancey, John Joseph Rizzo, Caleb Rowden, Margaret B. Ransone, Dave Schatz, Scott Sifton, Wayne Wallingford, Michael J. Webert, Paul Wieland, Tony O. Wilt, Christopher T. Head, Jeion A. Ward, Mark L. Keam, Eileen Filler-Corn, Kaye Kory, Joseph C. Lindsey, Lamont Bagby, David J. Toscano, Steve E. Heretick, Michael P. Mullin, Jeffrey M. Bourne, President of the United States, Maria Chappelle-Nadal, U.S. House of Representatives
Stop Forcing Mail-Order Pharmacy as the Only Option of Coverage
Patients' lives depend on choice. **Since starting the petition, I have realized that there are many issues other than temperatures with forced mail-order pharmacy. Mail-order pharmacy is very loosely regulated. There are life-threatening delays, lack of face-to-face relationships with pharmacists for people with chronic conditions, and rapid closures of our independent pharmacies; although, a recent study showed people prefer independent pharmacy (2018, Gill). *************Our Story************* Our son received a life-saving liver transplant at the age of 2 from a 3-year-old little girl. His life depends on the potency and effectiveness of chemotherapy or immune suppression medications every 12 hours to prevent his body's immune system from fighting off his transplanted liver. In the past mail-order pharmacy delivered his liquid oral medications in nothing but a plastic envelope on a 102-degree day on a hot enclosed non-temperature controlled UPS truck. Shortly after, he went into liver rejection which could have resulted in complete liver failure or death. I speculated that the medication could have been too weak after the delivery of medications in high heat. I vowed to never again risk his life with mail-order pharmacy. Recently, we were mandated or forced to only use mail-order pharmacy in order to receive coverage for his life-saving medications. The package arrived in only a bag on a hot day without an ice pack. I now know that the hot non-temperature controlled enclosed delivery truck and mailboxes can reach temperatures up to 120-170 degrees. His labs elevated again afterward. My son wants to know, "Why would they do that?" I contacted the manufacturer, who performs the testing, who informed me that both of my son's medications should be discarded and considered less potent once stored above 86 degrees as higher temperatures and freezing could both result in lower potency. I contacted the mail-order pharmacy who refused to replace or take back the medication. They said the law & USP Pharmacopoeia allows them to ship up to 104 degrees, although the manufacturer states it is not proven safe at these temperatures. However, I have received communication from USP Pharmacopoeia who writes guidelines for storage, and they also said that the mail order pharmacy should follow the manufacturer's guidelines of 59-86 degrees for storage. Again, the trucks reach up to 170 degrees which is much hotter than 104. I contacted the FDA, who states that the mail order pharmacy should be using the manufacturer's guidelines that have been proven safe. Since the mail-order pharmacies are regulated loosely by the State Board of Pharmacy, not the FDA, there was nothing that the FDA could do. I made over 30 calls to the insurance company begging for them to please let us pick my son's medications up at the local pharmacy at which they are filled. My son's physician wrote an appeal and his transplant team has stated that they have tried to voice their concerns about this issue with their pediatric/child patients and no one is listening! The insurance company still denied the doctor's appeal for us to pick up my son's medications in the safest way. It was not until the Media became evolved that the insurance company budged. I felt helpless and have united with many other pharmacists, physicians, patients, mothers and fathers, and caregivers who feel the same way. Helpless. Mail-order of prescription drugs should be a choice, not the only option of coverage. Mail-order pharmacies may appear to save money, but when my son ended up in the hospital after taking medications that could have been compromised by having lower potency, the cost of the rejection was thousands of dollars. If his liver would have fully failed, the cost of his liver transplant for just 5 days (he was in the hospital for 5 weeks) was over $1,000,000. The lax regulation and oversight may save money on prescription drug plans but may come at an increased cost to the health plan itself. Also, keep in mind the endless waste of medications that automatically are sent regardless of whether or not patients need them. Also, people with chronic, complex conditions, should always have the option of face to face interaction with a pharmacist who knows their complex needs and medical history. The pharmacist and patient relationships are crucial to the successful outcome of the patient's overall health. Taking this away is harmful to patients and be more costly to our already stressed healthcare system. Only allowing mail-order pharmacy for coverage is unethical and irresponsible. I share stories on my social media sites every day of patients who are suffering from a lack of choice. We need your help to make mandatory mail-order an option, not a mandate. YOUR URGENT SUPPORT WILL SAVE LIVES! THANK YOU!! WE APPRECIATE ALL OF THE SUPPORTERS, CAREGIVERS, & PATIENTS. Thank you, Loretta Boesing, Founder of Unite for Safe Medications You may make a tax-deductible contribution to support our advocacy here Email: firstname.lastname@example.org Facebook Page: Issues with Mail Order Pharmacy @justamomwholovesherson Twitter: @BoesingLoretta The greatest way that you can help is by sharing this petition & gathering 2-3 people in your community who are having issues and speak to your legislatures. Reference: Gill, Lisa L. “Consumers Still Prefer Independent Pharmacies, CR's Ratings Show.” Product Reviews and Ratings - Consumer Reports, 7 Dec. 2018, www.consumerreports.org/pharmacies/consumers-still-prefer-independent-pharmacies-consumer-reports-ratings-show/
Petition to Spokane City Council
Baby changing stations in ALL public restrooms
My son is 4 months old and multiple times I’ve had to change his diaper on the floor of a public restroom. It’s colder on him and more inconvenient for me. He just screams the whole time. (I have a little changing mat that I put down but it’s still SO cold). Babies are humans too and should have a place to be able to get changed comfortably no matter where they are at! this is why I am petitioning to have baby changing stations in EVERY public restroom, yes that includes schools, theaters, parks, grocery stores, auto pet stores, car dealerships, arenas, restaurants, sporting events, and any other public place where children are welcome. It’s already hard enough to bring babies out in public but having to change them on the floor makes it so much more difficult. My biggest problem is that babies really are humans too, they deserve to be comfortable and parents shouldn’t feel like it’s an inconvenience when they bring their children to a public establishment. Men and women both change babies diapers in public places, so both restrooms should have baby changing stations. Not only for the comfort of the child but for the comfort of the parent/guardian/caregiver as well. I believe that the best way to go about this is making it a law that if an establishment has a public restroom, there needs to be a baby changing station in both the men’s and the women’s bathroom!