Petition to U.S. Senate, U.S. House of Representatives, Food and Drug Administration
Cancer nearly killed me because I was denied a mammogram!! Change the minimum age to 18+
Cancer can occur at any age. Early detection and prevention is the key to beating it. Mammograms should be available at any age, not just for women who are 40 years or older. Under current legislation, thousands of women could die because they are being denied this life saving medical Test. I know this because I personally was denied a mammogram four different times, WITH a family history of breast cancer and a medically declared breast lump, at the age of 32. The result of this allowed my cancer to spread and become more aggressive and require more treatment. It almost killed me and I am still struggling with fighting it. Younger women with breast cancer experience unique challenges. For women under 40, breast cancer is often diagnosed in its later stages, when it tends to be more aggressive. This means the survival rate is lower and the recurrence rate is higher. This is not ok. As of January 2019, there are more than 3.1 million women with a history of breast cancer in the U.S. This includes women currently being treated and women who have finished treatment. Early prevention should be a choice! We are considered adults at the age of 18. We are allowed to vote, and make adult decisions. If we feel something is wrong with our own bodies, we should NOT BE DENIED the right to be heard and checked. Please join me in spreading this petition and getting it heard!!! If I can make one good thing happen out of this horrible hand I’ve been dealt, it would be to spread awareness and help save others’ lives!!
Petition to Walmart
Walmart to Continue My Life Survivor Dolls Beyond the One Time Production
Walmart recently had a one time production of the My Life Survivor doll in two versions (Caucasian and African American) that were sold online and in select Walmart stores. Unfortunately these dolls did not include one that could be shared or given to boys that were in treatment and have been sold out in many of the stores along with being sold out on line. Additionally due to the fact that these dolls were a limited one time production, dolls were purchased by others to resell on sites such as eBay at a significant higher price. Hope that Walmart realizes that the doll production was greatly applauded by many individuals or organizations in the cancer community and especially the childhood cancer community. Walmart sold these dolls in select stores which allowed for increased awareness for childhood cancer and hair loss for other reasons. Hope that Walmart will reconsider the decision to have this doll be more than an one time production and will continue to manufacture the doll for children that still want one of these dolls and for children that are being diagnosed in the future. Additionally would like to see the dolls be sold in other countries that have Walmart stores and that there would be a third option created for boys that would benefit from a doll without hair. Continuing to sell these dolls would be huge and make a difference for so many children and adults. Thank you for supporting Lynne Stiefler (Retired Pediatric Oncology Nurse)
Petition to Anna G. Eshoo
Include Midwives in Medicare for All
Right now, midwives and midwifery consumers do not have a seat at the table in designing a new healthcare system. This is unacceptable and we must ensure that Americans have access to midwifery care nationwide by requesting that a representative of midwives and midwife consumers have a seat at the design table. On Tuesday, December 10th, the House of Representatives will be holding a hearing to hear from stakeholders as they examine universal healthcare/Medicare for All bills. We must demand that midwives are included in universal healthcare systems and that midwives are called as expert witnesses in Medicare for All hearings. Midwifery care is a family centered model of prenatal, childbirth, and postpartum care that is safe, cost-effective, and has high patient satisfaction. Midwives provide this care in community, clinic, and hospital settings across the United States. Midwives in the US include certified midwives, certified nurse midwives, and certified professional midwives. Midwifery care is universally implemented in most developed countries, but is not widely accessible in the US. Midwifery care is integral to any health care system that provides high quality, cost effective care. As Congress explores options in various Medicare for All bills, midwifery should be included as a key component of a lower cost, higher quality healthcare system. Midwives save lives. Care with midwives has been proven to lower infant preterm birth rates and maternal morbidity rates, particularly among people of color. In our current maternity care system we have high rates of unnecessary cesareans and exorbitantly high costs to consumers and taxpayers. Midwives lower unnecessary cesarean rates and improve outcomes for childbearing families while reducing costs. Of the bills currently introduced in the House of Representatives regarding universal health care coverage, none mandate coverage of midwifery care yet! The Subcommittee on Health of the Committee on Energy and Commerce will hold a legislative hearing on Tuesday, December 10, 2019, at 10:30 a.m. in room 2322 of the Rayburn House Office Building. The hearing is entitled, "Proposals to Achieve Universal Health Care Coverage." Please sign this petition today to join us in asking Representative Anna Eshoo, Chair of the House Energy and Commerce Subcommittee on Health, to include midwifery policy experts when designing a new healthcare system.
Petition to Donald J. Trump, BrainStorm Cell Theraputics, Augie Nieto, Steve Gleason, Ady Barkan, Pete Frates, Scott Gottlieb, Ralph Kern, Chaim Lebovits, Martha McSally, Dianne Feinstein, Kyrsten Sinema, Jeff Flake, Jeff Bezos, melinda gates, Mike Pence
FDA Approval for Life-Saving NurOwn for ALS Patients
Amyotrophic lateral sclerosis (ALS), also known as motor neuron disease (MND) or Lou Gehrig's disease, is a specific disease that causes the death of neurons controlling voluntary muscles. Some also use the term motor neuron disease for a group of conditions of which ALS is the most common. ALS is characterized by stiff muscles, muscle twitching, and gradually worsening weakness due to muscles decreasing in size. It may begin with weakness in the arms or legs, or with difficulty speaking or swallowing. About half of the people affected develop at least mild difficulties with thinking and behavior and most people experience pain. Most eventually lose the ability to walk, use their hands, speak, swallow, and breathe. ALS does not have to be a death sentence as patients are getting better with BrainStorm Cell Therapeutics stem cell driven therapy NurOwn which aims to help these nerve cells survive by fighting the neurodegeneration process that causes ALS symptoms. NurOwn uses MSCs harvested from the patient. MSCs are precursor cells that have the ability to differentiate into various cell types. NurOwn’s technology encourages MSCs to develop into cells that secrete neurotrophic factors (NTFs) that promote the growth of nervous tissue. NTFs can also help nerve cells survive through their own neuroprotective function. Below is a video of the amazing impact that NurOwn is having on ALS patients. Please sign this position to help get full FDA approval for NurOwn. To give people their lives back. Their futures back. Most importantly to give them a fighting chance at HOPE. Please share this petition on your social media and with family, friends, and co-workers. Thank you! Please View Videos Below: Thank you for your time (LATEST VIDEO UPDATE) https://www.facebook.com/6209609/posts/10107753561682093/ https://philadelphia.cbslocal.com/2019/03/11/als-patients-fighting-fda-for-experimental-drug-nurown/ https://www.bloomberg.com/news/articles/2019-02-05/right-to-try-law-namesake-gets-als-therapy-says-it-s-working
Petition to Utah Governor, Gary Herbert, Utah State House, Utah State Senate, Mike Lee, Mitt Romney, Todd Weiler
Cleaner air for Utah
As we all know the air quality in Utah is one of the worst in the nation. It is simply unsafe this time of year and is looking to just get worse over time if nothing is done about the problem and if we keep expanding like planned. Please take 1 minute to sign this and help us get cleaner air here!! There are definitely changes than can be made!! The health of our families are being affected by this problem!
Petition to Parents and all ski racers
Please let the FIS (International Ski Federation) know the safety value to children.
By signing this petition you are letting the FIS (International Ski Federation) know the value of eliminating sports injuries to children and adult ski racers. The presently used old, hard slalom gates cause untold injuries to ski racers of all ages. The new invention of iGates.us -the 'no-pain inflatable slalom gates'- will terminate this risk. The common practice of 'gate blocking' is also disposed of and a new elegant racing style is enabled. We have presented the gates at FIS headquarters as well as the world congress. The reception has been very positive. FIS has tasked us to create interest in the value of this new system which is why we ask for your support to get the system approved, worldwide. Stefan Dag, the inventor, will be introducing iGates at SNO OSLO, the world's largest indoor ski arena, home to international ski teams training facility in Norway. We are also present at the World championship youth races in Narvik. The Austrian ski federation is also a partner in testing. Ski Austria at St.Christoph camp participants can be seen on the www.iGates.us video demonstrating the new elegant and safe racing style made possible by this invention. We thank you for your time and be assured your support will greatly contribute to safety for our beloved sport. SD 2019
Petition to U.S. House of Representatives, U.S. Senate, New Hampshire State House, New Hampshire State Senate, New Hampshire Governor, The US Senate, Beth Bell, MD, Sylvia Burwell, Dr. Tom Frieden, Rima Khabbaz, Chris smith, Collin Peterson, Alex Azar, II
Calling for a Congressional investigation of the CDC, IDSA and ALDF
We are experiencing a health crisis here in New Hampshire and across the country with the growing epidemic of Lyme disease. A number of legislators have personally been affected and have introduced legislation to address this problem. Here are just a few recent examples. Massachusetts Representative David Linsky: “The occurrence of Lyme disease has reached near epidemic proportions in Massachusetts. Virtually every family in Massachusetts has been affected by Lyme disease in some way. Lyme disease is a public health crisis in the Commonwealth.” Read more… Connecticut, Rhode Island, New York Senator Richard Blumenthal: "Today for me culminates more than a decade of work and probably a decade more, because I've seen firsthand the devastating, absolutely unacceptable damage done by Lyme disease to individual human beings, Connecticut children and residents whose lives have been changed forever as a result of Lyme disease” Read more…. New Jersey, Pennsylvania Congressman Chris Smith: "It seems everywhere I go, someone comes up to me to talk about how Lyme disease has severely impacted their lives or someone they know," Read more… Virginia Virginia Governor’s Task Force Chair Michael P Farris, Esq: "Doctors here in Virginia are committing malpractice by saying the ELISA test is sufficient." Read more… Texas Sen. Harris says he was severely affected by the disease, but “got a lucky break.” His doctor, constrained by a disciplinary board that limited antibiotic use for tick-borne illness to 1 month or less, arranged for 17 physicians to take turns writing prescriptions for Sen. Harris’s treatment. Read more… Two HoustonTexas physicians tested their chronically ill patients for Lyme disease via CDC Western blot criteria finding all patients positive for the infection in a state where the prevalence of Lyme infected ticks is only about 1-2%. “No history of bull’s-eye rash or illness following tick bite was reported by these patients.” The CDC defines “Lyme disease” exclusively as a zoonotic illness. Congenital and gestational transfer cases have been disregarded for reasons not evident to us”. Read more… Congenital Transmission of Lyme: 28 Peer-Reviewed Studies After spending four years on this subject the following statement from a physician on the front lines treating the late stage Lyme epidemic for a quarter century rings true: “In the fullness of time, the mainstream handling of chronic Lyme disease will be viewed as one of the most shameful episodes in the history of medicine because elements of academic medicine, elements of government and virtually the entire insurance industry have colluded to deny a disease.” We have studies proving persistent infection after antibiotic treatment for mice, dogs, ponies, monkeys, cows, iris biopsy, and ligamentous tissue but if you perform a simple Yahoo search for the following statement, “There is no convincing scientific evidence that chronic Lyme exists” you will find the top search results are connected to “elements of academic medicine” involved in the denial of the late stage Lyme epidemic. Persistent Lyme infection: 273 Peer-Reviewed Studies Circular reasoning: "Suppress all evidence and then proclaim there is no evidence" “One way to stop an epidemic is to redefine it by narrowing the disease's diagnostic criteria so tightly that it's hard for any chronically ill Lyme patient to fit the profile and obtain insurance reimbursement.” Read more… The following CDC letter (Dec 1996) addressed to former Senator Alfonse D’Amato promising to inform the medical community that the CDC’s Lyme case definition was created for reporting purposes only and not intended for clinical diagnosis is yet another failure on the part of the CDC to follow up on their responsibilities. Countless numbers of Lyme patients have been denied treatment and insurance reimbursement as a result of the restrictive case definition. Read more… Jan 2004 testimony from Paul Mead, M.D., M.P.H. Medical Epidemiologist from the CDC’s Division of Vector-Borne Infectious Diseases: “No surveillance case definition is 100% accurate. There will always be some patients with Lyme disease whose illness does not meet the national surveillance case definition.” Read more… Seronegativity in Lyme borreliosis: 103 Peer-Reviewed Studies There has been a combined effort on the part of the CDC, IDSA and ALDF to use the media for propagating the Lyme disease disinformation campaign following Chomsky's propaganda model. They have used Medscape, Family Practice News, The New England Journal of Medicine, The Lancet Infectious Diseases and now The American Heart Association to spread the disinformation. This deliberate campaign is aimed at purposely confusing our medical community to keep case numbers artificially low by omitting the late stage of the disease entirely as there is absolutely no medical training whatsoever for the later stages of this disease (Willful Ignorance) so patients are often ping ponged though the medical community for years or decades before obtaining a late stage Lyme diagnosis. Nine Steps to Deny an Epidemic on a National Level 101 Letter to the editor of Clinical Infectious Diseases questioning the validity of Dr Alan Steere’s research. Read more…. Letter to the editor of Clinical Infectious Diseases questioning the validity of Dr Gary Wormser’s research. Read more…. Dr Alan MacDonald’s letter to the editor of Clinical Infectious Diseases questioning the reality of the abstract by Lantos, Auwaerter, and Wormser: Read more….. Agenda-driven bias: “People with these types of agendas may be more likely to abuse meta-analysis due to personal bias” NEJM editor: “No longer possible to believe much of clinical research published” When “evidence based medicine” has been spun to fit bias agendas and the patient voice has been intentionally ignored who investigates the dishonest science? Email message sent to the editors of the publications listed above announcing this petition. Read more… It’s all about the VACCINE It has become blatantly obvious that the CDC will go to great lengths to insure that Lyme disease remains within its narrow definition in order to fit the vaccine model. Chronic Lyme does not fit any vaccine model. The CDC has long known about the virulence and persistence of this spirochete focusing on a vaccine as the cure-all to this world wide epidemic. The late stage/chronic Lyme community has become collateral damage for a vaccine market in the course of a government sponsored initiative as Baxter’s phase III clinical trials are underway. The CDC has aligned itself with institutions/researchers with a bias against persistent infection and has misused its authority by inappropriately allotting government funds to Mass General Hospital (Dr Alan Steere) and New York Medical College (Dr Gary Wormser) as identified in the following communications. Read more…. The Principle Investigators of the two previous Lyme vaccines: Allen C. Steere for SmithKlineBeecham's LymeRix and Gary Wormser for Connaught's vaccine (which never made it to market) have conceptualized a disease that would enable vaccine development. The one-size-fits-all Lyme treatment guideline (lead author: Gary Wormser) matches the conceptualized disease. A preventive vaccine for Lyme disease would not satisfy the FDA if a chronic persistent infection and seronegative disease exist. Post-treatment Lyme disease syndrome is simply a fabricated medical condition disguising treatment failure. Seronegativity in Lyme borreliosis: 103 Peer-Reviewed Studies It remains questionable that a Lyme disease vaccine is practical for an infection that produces a lack of immunological memory (unlike Measles, Mumps etc.) so the Wormser study fabricating a six year strain-specific immunity makes perfect sense for the marketing/acceptance of such vaccine as identified in a letter to Editor in Chief, Ferric C. Fang, M.D. Infection and Immunity. Read more… The producers of the documentary, “Under Our Skin,” submitted a Freedom of Information Act (FOIA) request to investigate possible conflicts-of-interest of three Centers for Disease Control (CDC) employees who control public health policy for Lyme disease. (Barbara Johnson, Paul Mead and David Dennis) That request was finally fulfilled (May 2012) from the Department of Health and Human Services (five years later!). The information received is highly redacted with approximately half the information cut. What does the CDC know about Lyme disease that requires hiding from the public? The Centers for Disease Control has betrayed the public trust. For more on the FOIA see Poughkeepsie Journal article # 1 article # 2 By Mary Beth Pfeiffer Mary Beth Pfeiffer of the Poughkeepsie Journal highlighted the worst conflicts of interests between federal officials and a core group of researchers receiving government grants in the “ties that bind” page. Read more… Who is responsible for the “highly pathogenic” clone of the Lyme disease bacteria, (Borrelia burgdorferi) found in Europe and North America as reported by the journal Emerging Infectious Diseases? Read more… The following list establishes who knew what and when identifying their contribution to the disinformation campaign aimed at denying persistent Borrelia infection. When subpoenas are issued CDC officials cannot claim conflicts of scheduling issues and must attend to testify under oath regarding the mishandling of Lyme disease. Congressional Investigation Subpoena List 1. CDC Officials DAVID DENNIS (1) (2) (3), C. Ben Beard, Barbara Johnson (1), Paul Mead (1), Joseph Breen Former NIH Lyme Program Officers Phillip Baker, Edward McSweegan (1)(2) 2. IDSA Lyme Treatment Guideline Authors (1) (2) (3) (4) Gary P Wormser (1), Raymond J. Dattwyler (1), Eugene D. Shapiro, John J Halperin (1), Allen C. Steere (1), Mark S Klempner (1), Peter J. Krause, Johan S. Bakken, Franc Strle, Gerold Stanek, Linda Bockenstedt (1), Durland Fish (1) (2), J. Stephen Dumler, Robert B. Nadelman Academic Medicine Paul Auwaerter, Arthur Weinstein (1) 3. The American Lyme Disease Foundation Phillip Baker, (1) (2) Executive Director Please call your legislator and respectfully urge immediate action from the U.S. Senate and U.S. House of Representatives to fully investigate the facts surrounding the failures of leadership and management deficiencies by requesting a Congressional investigation of the CDC, IDSA and ALDF (Find your Senator) (Find your Representative) Yolanda Foster on Lyme disease, one of the "Real Housewives of Beverly Hills” Dr Alan MacDonald on Alzheimer's and Lyme disease, “The Biology of Lyme Disease: An Expert's Perspective” Remarks: World Wide Lyme Rally & Protest Kenneth B. Liegner, M.D. Lyme disease testing flaws and conflicts of interests The Barry Marshall affect on chronic disease Inconvenient truths Bullying of Lyme patients List of abbreviations CDC: Centers for Disease ControlIDSA: Infectious Disease Society of AmericaALDF: American Lyme Disease Foundation Carl TuttleHudson, NH03051 Website: New Hampshire Lyme Misdiagnosis Letter to the Editor, The Lancet Infectious Diseases Published May 2012 The Tuttle family was featured on New Hampshire Chronicle’s “Living with Lyme” with the program archived on their site in six small segments for viewing on the computer Part 1, Part 2, Part 3, Part 4, Part 5, Part 6