Petition to U.S. House of Representatives, U.S. Senate, Chuck Grassley
Pass the CARERS Act and protect medical marijuana patients
My six-year-old daughter Morgan suffers from Dravet Syndrome, a rare form of epilepsy that causes frequent and dangerous seizures. We’ve tried everything to help her. She’s taken more than 10 different anti-epilepsy medications but at best, she's gone only four weeks without a seizure. Based on our own research, advice from our doctors, and what we’ve heard from families living in other states, we would like Morgan to try cannabidiol oil -- a form of medical marijuana. For children with similar illnesses in other parts of the country, the results using medical marijuana have been life changing. Medical marijuana comes in many different preparations, and is prescribed accordingly to treat specific conditions. The treatment Morgan needs would not make her "high", and she wouldn't smoke it. It would come in a bottle just like her other medications, but with fewer side effects. The medications that Morgan has tried have devastating side effects. They gave her kidney stones, ulcerative colitis, and compromise her respiratory system. She should be able to try this much safer option. But medical marijuana is still illegal at the federal level. It’s currently a Schedule 1 drug, which means the federal government considers it just as dangerous as heroin and says there is no medicinal value. This means our family would have to move to a different state to get it, or obtain it illegally and risk arrest. I have decided that neither of those choices are good enough for my family. That’s why I’m supporting the Compassionate Access, Research Expansion and Respect States (CARERS) Act -- a bipartisan bill that will let states legalize medical marijuana without federal interference. It will also expand research into the health benefits of marijuana and allow Veterans Affairs doctors to recommend marijuana to ailing veterans. The CARERS Act would remove also CBD from scheduling under the Controlled Substances Act, affirming to the world that marijuana does have medical benefits. This bill will change the lives of so many sick and suffering people, like my daughter, around the country. Please sign my petition asking Congress to pass the CARERS Act.
Petition to U.S. Senate, U.S. House of Representatives, Paul Ryan, Bernie Sanders, Donald Trump
Remove health-care subsidies for Members of Congress and their families
Several years ago, my dad got the news that he had cancer. Sadly, he passed away. My dad had a job at the time, but his employer did not cover him, and without coverage, he avoided going to the doctor until it was too late. As Congress and President Trump try to pass a new healthcare law, I'm reminded of my father and whether he would have made it if he had early access to cost-effective health care. Affordable health care is in decline as premiums and health costs increase at exponential rates. Some politicians cannot relate to the cost burden experienced by families across the nation because they’ve historically received health benefits that most Americans have not. Like millions of people who are panicking about possible changes to their health insurance, I’m concerned the people elected to represent us won’t have to live with the consequences or expenses that the rest of us may have to face soon. I want lawmakers to commit to treating themselves just like those who will be impacted by ACA repeal or replacement. A lot of Members of Congress promote choice as an American value, which is all the more reason for them to have to continue to choose their own health coverage from the free marketplace. If private health care is good for the American citizen, it should also be good for the people that defend it. If Congress is willing to drastically cut healthcare subsidies for most people, are they willing to have the same rules apply to them and their families?
Petition to Food and Drug Administration, ALSA, Brainstorm Cell Therapeutics, Janet Woodcock, M.D., Peter Marks
ALS patient access to Brainstorm's treatment NurOwn
My name is Bobby Forster and I have ALS, also known as Lou Gehrig’s disease. Most people with ALS live 2-5 years after their first signs of disease and our treatment options are limited.Recently, I was a participant in the US trial of a new treatment called NurOwn. After two weeks of treatment I went from barely able to stand for more than ten seconds, to being able to walk with a walker, to being able to walk unassisted. I also saw significant improvements in my forced vital capacity (FVC) and speech. Other participants yielded great results as well.My improvements continued for a month, then my progression plateaued for a month before I began progressing again. This therapy is one that will require multiple treatments every couple months. Unfortunately, the company that makes NurOwn, Brainstorm, is hesitant to pursue accelerated approval of this treatment with the FDA and has opted to conduct a Phase III trial which could delay approval for another 5 years. Without accelerated approval thousands of ALS patients could die over the next several years waiting for the traditional process for approval to be completed. Another challenge Brainstorm faces is raising enough money to conduct an expensive Phase III trial. If the money is not raised then Brainstorm and NurOwn could be dead in the water and the treatment will never make it patients. This treatment has now been in multiple trials both in the US and Israel. It has been shown to be effective and has no significant side effects. It is time for all ALS patients to gain access to this ground breaking treatment. Please sign this petition and ask Brainstorm to pursue accelerated approval of NurOwn with the FDA. I am sick and tired of seeing my friends die while there exists a safe and effective treatment.
Petition to U.S. House of Representatives, U.S. Senate, New Hampshire State House, New Hampshire State Senate, New Hampshire Governor, The US Senate, Beth Bell, MD, Sylvia Burwell, Dr. Tom Frieden, Rima Khabbaz
Calling for a Congressional investigation of the CDC, IDSA and ALDF
We are experiencing a health crisis here in New Hampshire and across the country with the growing epidemic of Lyme disease. A number of legislators have personally been affected and have introduced legislation to address this problem. Here are just a few recent examples. Massachusetts Representative David Linsky: “The occurrence of Lyme disease has reached near epidemic proportions in Massachusetts. Virtually every family in Massachusetts has been affected by Lyme disease in some way. Lyme disease is a public health crisis in the Commonwealth.” Read more… Connecticut, Rhode Island, New York Senator Richard Blumenthal: "Today for me culminates more than a decade of work and probably a decade more, because I've seen firsthand the devastating, absolutely unacceptable damage done by Lyme disease to individual human beings, Connecticut children and residents whose lives have been changed forever as a result of Lyme disease” Read more…. New Jersey, Pennsylvania Congressman Chris Smith: "It seems everywhere I go, someone comes up to me to talk about how Lyme disease has severely impacted their lives or someone they know," Read more… Virginia Virginia Governor’s Task Force Chair Michael P Farris, Esq: "Doctors here in Virginia are committing malpractice by saying the ELISA test is sufficient." Read more… Texas Sen. Harris says he was severely affected by the disease, but “got a lucky break.” His doctor, constrained by a disciplinary board that limited antibiotic use for tick-borne illness to 1 month or less, arranged for 17 physicians to take turns writing prescriptions for Sen. Harris’s treatment. Read more… Two HoustonTexas physicians tested their chronically ill patients for Lyme disease via CDC Western blot criteria finding all patients positive for the infection in a state where the prevalence of Lyme infected ticks is only about 1-2%. “No history of bull’s-eye rash or illness following tick bite was reported by these patients.” The CDC defines “Lyme disease” exclusively as a zoonotic illness. Congenital and gestational transfer cases have been disregarded for reasons not evident to us”. Read more… Congenital Transmission of Lyme: 28 Peer-Reviewed Studies After spending four years on this subject the following statement from a physician on the front lines treating the late stage Lyme epidemic for a quarter century rings true: “In the fullness of time, the mainstream handling of chronic Lyme disease will be viewed as one of the most shameful episodes in the history of medicine because elements of academic medicine, elements of government and virtually the entire insurance industry have colluded to deny a disease.” We have studies proving persistent infection after antibiotic treatment for mice, dogs, ponies, monkeys, cows, iris biopsy, and ligamentous tissue but if you perform a simple Yahoo search for the following statement, “There is no convincing scientific evidence that chronic Lyme exists” you will find the top search results are connected to “elements of academic medicine” involved in the denial of the late stage Lyme epidemic. Persistent Lyme infection: 273 Peer-Reviewed Studies Circular reasoning: "Suppress all evidence and then proclaim there is no evidence" “One way to stop an epidemic is to redefine it by narrowing the disease's diagnostic criteria so tightly that it's hard for any chronically ill Lyme patient to fit the profile and obtain insurance reimbursement.” Read more… The following CDC letter (Dec 1996) addressed to former Senator Alfonse D’Amato promising to inform the medical community that the CDC’s Lyme case definition was created for reporting purposes only and not intended for clinical diagnosis is yet another failure on the part of the CDC to follow up on their responsibilities. Countless numbers of Lyme patients have been denied treatment and insurance reimbursement as a result of the restrictive case definition. Read more… Jan 2004 testimony from Paul Mead, M.D., M.P.H. Medical Epidemiologist from the CDC’s Division of Vector-Borne Infectious Diseases: “No surveillance case definition is 100% accurate. There will always be some patients with Lyme disease whose illness does not meet the national surveillance case definition.” Read more… Seronegativity in Lyme borreliosis: 103 Peer-Reviewed Studies There has been a combined effort on the part of the CDC, IDSA and ALDF to use the media for propagating the Lyme disease disinformation campaign following Chomsky's propaganda model. They have used Medscape, Family Practice News, The New England Journal of Medicine, The Lancet Infectious Diseases and now The American Heart Association to spread the disinformation. This deliberate campaign is aimed at purposely confusing our medical community to keep case numbers artificially low by omitting the late stage of the disease entirely as there is absolutely no medical training whatsoever for the later stages of this disease (Willful Ignorance) so patients are often ping ponged though the medical community for years or decades before obtaining a late stage Lyme diagnosis. Nine Steps to Deny an Epidemic on a National Level 101 Letter to the editor of Clinical Infectious Diseases questioning the validity of Dr Alan Steere’s research. Read more…. Letter to the editor of Clinical Infectious Diseases questioning the validity of Dr Gary Wormser’s research. Read more…. Dr Alan MacDonald’s letter to the editor of Clinical Infectious Diseases questioning the reality of the abstract by Lantos, Auwaerter, and Wormser: Read more….. Agenda-driven bias: “People with these types of agendas may be more likely to abuse meta-analysis due to personal bias” NEJM editor: “No longer possible to believe much of clinical research published” When “evidence based medicine” has been spun to fit bias agendas and the patient voice has been intentionally ignored who investigates the dishonest science? Email message sent to the editors of the publications listed above announcing this petition. Read more… It’s all about the VACCINE It has become blatantly obvious that the CDC will go to great lengths to insure that Lyme disease remains within its narrow definition in order to fit the vaccine model. Chronic Lyme does not fit any vaccine model. The CDC has long known about the virulence and persistence of this spirochete focusing on a vaccine as the cure-all to this world wide epidemic. The late stage/chronic Lyme community has become collateral damage for a vaccine market in the course of a government sponsored initiative as Baxter’s phase III clinical trials are underway. The CDC has aligned itself with institutions/researchers with a bias against persistent infection and has misused its authority by inappropriately allotting government funds to Mass General Hospital (Dr Alan Steere) and New York Medical College (Dr Gary Wormser) as identified in the following communications. Read more…. The Principle Investigators of the two previous Lyme vaccines: Allen C. Steere for SmithKlineBeecham's LymeRix and Gary Wormser for Connaught's vaccine (which never made it to market) have conceptualized a disease that would enable vaccine development. The one-size-fits-all Lyme treatment guideline (lead author: Gary Wormser) matches the conceptualized disease. A preventive vaccine for Lyme disease would not satisfy the FDA if a chronic persistent infection and seronegative disease exist. Post-treatment Lyme disease syndrome is simply a fabricated medical condition disguising treatment failure. Seronegativity in Lyme borreliosis: 103 Peer-Reviewed Studies It remains questionable that a Lyme disease vaccine is practical for an infection that produces a lack of immunological memory (unlike Measles, Mumps etc.) so the Wormser study fabricating a six year strain-specific immunity makes perfect sense for the marketing/acceptance of such vaccine as identified in a letter to Editor in Chief, Ferric C. Fang, M.D. Infection and Immunity. Read more… The producers of the documentary, “Under Our Skin,” submitted a Freedom of Information Act (FOIA) request to investigate possible conflicts-of-interest of three Centers for Disease Control (CDC) employees who control public health policy for Lyme disease. (Barbara Johnson, Paul Mead and David Dennis) That request was finally fulfilled (May 2012) from the Department of Health and Human Services (five years later!). The information received is highly redacted with approximately half the information cut. What does the CDC know about Lyme disease that requires hiding from the public? The Centers for Disease Control has betrayed the public trust. For more on the FOIA see Poughkeepsie Journal article # 1 article # 2 By Mary Beth Pfeiffer Mary Beth Pfeiffer of the Poughkeepsie Journal highlighted the worst conflicts of interests between federal officials and a core group of researchers receiving government grants in the “ties that bind” page. Read more… Who is responsible for the “highly pathogenic” clone of the Lyme disease bacteria, (Borrelia burgdorferi) found in Europe and North America as reported by the journal Emerging Infectious Diseases? Read more… The following list establishes who knew what and when identifying their contribution to the disinformation campaign aimed at denying persistent Borrelia infection. When subpoenas are issued CDC officials cannot claim conflicts of scheduling issues and must attend to testify under oath regarding the mishandling of Lyme disease. Congressional Investigation Subpoena List 1. CDC Officials DAVID DENNIS (1) (2) (3), C. Ben Beard, Barbara Johnson (1), Paul Mead (1), Joseph Breen Former NIH Lyme Program Officers Phillip Baker, Edward McSweegan (1)(2) 2. IDSA Lyme Treatment Guideline Authors (1) (2) (3) (4) Gary P Wormser (1), Raymond J. Dattwyler (1), Eugene D. Shapiro, John J Halperin (1), Allen C. Steere (1), Mark S Klempner (1), Peter J. Krause, Johan S. Bakken, Franc Strle, Gerold Stanek, Linda Bockenstedt (1), Durland Fish (1) (2), J. Stephen Dumler, Robert B. Nadelman Academic Medicine Paul Auwaerter, Arthur Weinstein (1) 3. The American Lyme Disease Foundation Phillip Baker, (1) (2) Executive Director Please call your legislator and respectfully urge immediate action from the U.S. Senate and U.S. House of Representatives to fully investigate the facts surrounding the failures of leadership and management deficiencies by requesting a Congressional investigation of the CDC, IDSA and ALDF (Find your Senator) (Find your Representative) Yolanda Foster on Lyme disease, one of the "Real Housewives of Beverly Hills” Dr Alan MacDonald on Alzheimer's and Lyme disease, “The Biology of Lyme Disease: An Expert's Perspective” Remarks: World Wide Lyme Rally & Protest Kenneth B. Liegner, M.D. Lyme disease testing flaws and conflicts of interests The Barry Marshall affect on chronic disease Inconvenient truths Bullying of Lyme patients List of abbreviations CDC: Centers for Disease ControlIDSA: Infectious Disease Society of AmericaALDF: American Lyme Disease Foundation Carl TuttleHudson, NH03051 Website: New Hampshire Lyme Misdiagnosis Letter to the Editor, The Lancet Infectious Diseases Published May 2012 The Tuttle family was featured on New Hampshire Chronicle’s “Living with Lyme” with the program archived on their site in six small segments for viewing on the computer Part 1, Part 2, Part 3, Part 4, Part 5, Part 6
Petition to Donald Trump
Fight For Those Who Fought For You
As federal patients, Veterans are being prescribed extremely addictive pharmaceuticals linked to widespread death across the country. Despite this fact, these pills remain at a lower classification within the Controlled Substances Act (CSA) than cannabis. Cannabis has helped many people suffering from debilitating conditions such as PTSD, cancer, chronic pain, addiction withdrawal and has statistically lowered the suicide rate in states where it is “legal.” Veterans Health Administration (VA) primary care teams should be educated on how to best implement cannabis into a veterans treatment plan. When a patient is a legal medical cannabis card holder as well as a veteran, they should be afforded the freedom to use cannabis within the VA system as a recognized medical alternative to psychiatric drugs without any discrimination or unjust actions against them. Do you agree: Should veterans be able to treat themselves with medical marijuana? If you do, please join us in the fight to provide veterans safe access and compassionate care within the Veterans Health Administration.
Petition to NHTSA, Jerry Brown
Investigate blinding headlights and soaring death rate among bike-riders
According to a recent report by the Governors Highway Safety Assn. death among bicyclists in the state of California is up a dramatic 23% in 2012. This trend is not adequately explained by new ridership or by an increase in overall miles ridden. In addition, with steady and consistent technological improvements to cars, bikes and roadway lighting we should be witnessing a dramatic decline in fatalities and not a sharp increase. So what is driving this fatal trend?At Lightmare.org we believe that the rise in ultra-bright HID and LED headlights is responsible for this increase in cyclist deaths. Anyone who drives, walks or bikes the roads has experienced this problem first hand: harsh, blinding light from the new HID and LED headlights. These technologies produce light that is up to three times more intense than standard halogen headlights and operate at the eye-damaging, blue-light end of the spectrum.By temporarily blinding oncoming traffic, flooding rear and side view mirrors, increasing visual noise and creating an environment of intimidation and aggression, HID and LED headlights may be claiming the lives of the most vulnerable road users.We call upon Jerry Brown, Governor of California to order an investigation into the possible link between HID and LED headlights and the increase in cyclist deaths. We ask that independent tests be conducted to determine the effect that these headlights have on drivers' ability to see and react to cyclists on the road. In addition, we ask that public opinion polling be conducted to determine the effect that these headlights are having on the populace at large.
Petition to U.S. House of Representatives, U.S. Senate, President of the United States, Senator Amy Klobuchar, Congressman Greg Walden, Secretary Tom Price M.D., Senator Mike Lee, Congressman Jason Chaffetz, Senator Charles Grassley, Senator Patrick Leahy, Senator Lamar Alexander, Senator Elizabeth Warren, Senator Bernie Sanders, Senator Al Franken
STOP artificial shortages and skyrocketing prices of generic prescription drugs
Physicians Against Drug Shortages (PADS) Dear Friends, Colleagues, Patients & Fellow Citizens: As medical practitioners and concerned citizens, we're deeply anguished that millions of patients are suffering needlessly, and in many cases dying, because of unprecedented shortages of generic prescription drugs. Most are sterile injectables administered in hospitals, outpatient facilities, and clinics. They include chemotherapy agents for ovarian, colon, and breast cancer, leukemia and Hodgkin's disease; anesthetics and pain medications; antibiotics; IV nutrients for malnourished infants, and many other generics that have been saving lives for decades. Patients are being forced to use substitutes that are less effective or more expensive, or both. This is an inexcusable and entirely preventable public health emergency. These chronic artificial shortages are simply unacceptable in our market economy. They were caused by the anticompetitive contracting practices, kickbacks, self-dealing, and other abuses of giant hospital group purchasing organizations (GPOs), which control the purchasing of more than $300 billion annually in drugs, devices and supplies for some 5,000 hospitals and thousands of non-acute care facilities. It is a "pay-to-play" scheme in which these cartels award exclusive contracts to favored suppliers in return for exorbitant administrative, marketing, and other "fees" (a/k/a kickbacks). As a result of these dubious practices, there are now only one or two suppliers for many of these drugs, and in some instances, none at all. The GPOs have virtually destroyed this once-robust American industry by undermining the time-tested laws of supply and demand that govern virtually every other industry, from autos to zucchini. Indeed, they have stifled competition in the entire hospital supplies marketplace, inflating annual healthcare costs by as much as $100 billion. What's more, no one seems to know where all the billions are going, because there is virtually no disclosure, regulation, or government oversight. That is no accident. To replenish our generic drug supplies, market competition must be restored to the broken generic injectable drug and hospital purchasing industries. To accomplish that, Congress must repeal the misguided 1987 Medicare anti-kickback safe harbor provision, which gave rise to this crisis by exempting GPOs from criminal prosecution for taking kickbacks from suppliers. Congress created this debacle, and now Congress must stop it. For a primer on this issue, read our Op-Ed in The New York Times of 9/3/13, "How a Cabal Keeps Generics Scarce": http://www.nytimes.com/2013/09/03/opinion/how-a-cabal-keeps-generics-scarce.html. For more information on how GPOs hurt patients and healthcare workers and inflate healthcare costs, visit our website: www.physiciansagainstdrugshortages.com. Physicians Against Drug Shortages (PADS) is a grassroots coalition of physicians, attorneys, pharmacists, a journalist and other concerned individuals. We're all working on this project pro bono and covering expenses out of our own pockets. We organized PADS, and started this petition, for one reason and one reason only: doctors are no longer able to get the drugs they need to properly treat their patients. If you share our outrage over this travesty, please sign our petition and DEMAND that President Trump and Congress repeal the anti-kickback safe harbor IMMEDIATELY. Thank you for your attention. Robert A. Campbell M.D. Chairman Physicians Against Drug Shortages (PADS) Contact: email@example.com Phillip L. Zweig M.B.A Executive Director Contact: firstname.lastname@example.org
Petition to Philippine Congress, President Rodrigo Roa Duterte
KALAYAAN MULA SA KANSER : PASS AN INTEGRATED NATIONAL CANCER ACT NOW!
Cancer is a growing and serious public health concern. It is inextricably linked with the achievement of the country’s poverty reduction and development goals. Cancer incidence is increasing and is ranked as one of the leading causes of death among adults and children. As of 2012, 189 out of 100,000 Filipinos are afflicted with cancer every year. At least 3,900 children are diagnosed with cancer every year. A recent report of the Philippine Statistical Authority (PSA) states that one in every ten registered deaths in the country is attributable to cancer. Since 2004, cancers have been the third leading cause of death following cardiovascular diseases; for child mortality and morbidity, cancer ranked 4th. Experts opine that the actual cancer burden and cancer mortality in the Philippine is in fact very much higher than what is currently being reported. Many more remain uncounted, unrecorded and unreported due to the absence of national cancer registries. Survival rates for the most common adult cancers (i.e. lung, breast, colon, cervical, prostate, liver) are relatively low compared to other countries in Asia and the world. For females, all cancer mortality rate, the Philippines ranks second highest among 15 countries in Asia, with 124 deaths per 100,000 population. Compared to Asian countries, the Philippines has the highest mortality rate for 2 types of cancer: breast (27 per 100,000 population) and prostate cancer (13 per 100,000 population. Lung cancer mortality rates are also high exceeding 40 per 100,000 population. For breast cancer, the Philippines also has the lowest survival (.58 mortality to incidence ratio. For childhood cancers, which now has an average survival rate of 84% in high income countries and a growing number of middle income countries, average survival rate in the Philippines is at a low 30%. Cancer is a catastrophic disease which pushes families deeper into poverty. It debilitates not only patients, but also their families and loved ones. The financial burden can be overwhelming, given that financial risk protection mechanisms are limited and patients often need to shell out money from their own pockets to pay for treatment and other costs, such as medical supplies, food, and transportation. Evidence shows that in a cohort of cancer patients, the mean out-of-pocket expenditure for cancer treatment, far exceeded the mean household income; 117 percent at baseline to 253 percent twelve months after, leading more than 56 percent of households into financial catastrophe. This does not yet factor in the staggering economic and social costs, with productivity losses for both patients and immediate caregivers. This huge out of pocket costs often deter health seeking behavior or leads to discontinuance and abandonment of treatment (i.e. voluntary stoppage of necessary treatment by patient /family) . In some areas and with certain types of cancer, abandonment or discontinuance of treatment can be as high as 75% while average treatment compliance is at a low 21%. These conditions are most observed among the poor. marginalized sectors but occurs even among the so called middle class. Incidence of cancer is projected to increase by as much as 80%, by 2030, in low resource countries like the Philippines (WHO). This will have a staggering effect on the ability and resiliency of the Philippine health system as well as its overall economy. THUS, PURSUANT TO THE CONSTITUTIONAL PROVISIONS OF ARTICLE II, SECTION 15 ("The State shall protect and promote the right to health of the people and instill health consciousness among them"), and ARTICLE 13 SECTION 11 ("The State shall adopt an integrated and comprehensive approach to health development which shall endeavor to make essential goods, health and other social services available to all people at affordable cost. There shall be priority for the needs of the underprivileged sick, elderly, disabled, women, and children. The State shall endeavor to provide free medical care to paupers") WE CALL ON GOVERNMENT TO PASS A LAW WHICH WILL EXPAND EFFORTS TO EFFECTIVELY MANAGE AND CONTROL CANCER, IN ALL ITS FORMS, BY INCREASING INVESTMENTS FOR ITS PREVENTION, EARLY AND ACCURATE DETECTION, OPTIMAL TREATMENT, AND BY ADOPTING AN INTEGRATED, MULTI-DISCIPLINARY, AND PATIENT/FAMILY CENTERED APPROACH. We ask that this law include provisions that will have the following integral elements. 1. Strengthening of Cancer Care Infrastructure and Service Delivery Networks to cover the continuum of care. Public health facilities shall be strengthened to provide services spanning prevention, detection, diagnosis, treatment, palliative and hospice care, survivorship follow up and rehabilitation. This entails (a) providing investments in health facility renovation or upgrade, (b) providing reliable supply of medicines, biologics, and other supplies, (c) training and enhancing oncology related capacities in pathology, radiotherapy, surgery, nursing care, (d) establishing clear protocols for patient navigation and palliative care, (e) ensuring proper recording and monitoring of cancer cases , and (f) ensuring that recording and monitoring extends to primary health care units. Regional Cancer Centers shall likewise be designated in strategic areas to improve access to optimal care and reduce patient costs. Robust and cost effective refer all systems among various levels of service delivery shall be institutionalized. 2. Strengthening the capacity of the Human Resources for Health in Cancer Care. A competency-based curriculum for all health care workers providing cancer care treatment and support at all levels of the healthcare service delivery system shall be created. This shall include multi-disciplinary, interdisciplinary approaches to cancer care. This will also include adoption of cost-effective teaching platforms for enhanced knowledge, skills, and attitude and implementation of health worker accreditation and certification mechanisms. 3. Strengthening the FDA to ensure the safety, quality, and efficacy of medicines, biologics, and other health technologies. The Food and Drug Administration (FDA) shall strengthen its regulatory capacity to ensure availability of safe, efficacious, quality medicines, biologics, and other health technologies for cancer patients. The FDA shall also develop policies facilitating clinical trials, supporting early access to innovative therapies and health technologies to ensure highest possible fighting chance of survival among people with cancer. 4. Institutionalizing Funding and Social Protection Mechanisms for Cancer Patients, Survivors, Caregivers, and their Families. Given the catastrophic nature of cancer and in order to ensure equitable access to treatment and care, there is a need to provide financial support to cancer patients, survivors, caregivers, and their families in the following forms: Establishment of a Cancer Assistance Fund to reduce out-of-pocket expenditures for diagnosis, treatment, follow through survivorship care and rehabilitation services. This may be sourced from pooled and integrated funds from the Department of Health, Department of Social Welfare and Development, Philippine Charity Sweepstakes Office, Philippine Amusement and Gaming Corporation, among others. PhilHealth Benefit Packages for Cancer. The Philippine Health Insurance Corporation (Phil Health) shall develop and/or expand its benefit packages to include all forms of cancer including metastatic cancers and high risk cancers in children . Social Protection Mechanisms for cancer patients, survivors, caregivers, and their families. The State, in collaboration with DOH, SSS, GSIS, PCSO, PAGCOR, DOLE, DSWD, DOLE and LGUs shall develop social protection mechanisms to support the needs of the cancer patients, survivors, caregivers and their families to reduce, if not eliminate catastrophic cost and ensure well-being. Nondiscrimination. Access to healthcare services should be provided without discrimination regarding race, religion, sex, national origin, or disability. Patients should also be free from discrimination based on their disease, with respect to both employment and health insurance accessibility 5. Establishment of a National Cancer Registry and Surveillance System and Evidence Generation. A National cancer registry and surveillance system covering all forms of cancer among adults and children shall be designed and implemented to support program decision-making. All public and private health centers, hospitals and facilities shall also observe notification protocols to alert the DOH of all cancer cases. 6. National and regional research and demonstration projectsshall be conducted to generate evidence to improve policies and the implementation of the Integrated Philippine Cancer Control and Management Program (IPCCMP). 7. Strengthening Health Promotion, Information, and Education Programs. Health promotion and education activities shall be strengthened in schools and learning institutions, work places, communities, and among vulnerable, at-risk, and disadvantaged populations. A National Cancer Information Office shall also be developed to develop platforms (e.g. interactive websites) to provide comprehensive cancer information services to cancer patients, their families, the public, and health professionals. The DOH, in coordination with the Philippine Information Agency (PIA), KBP (Kapisanan nang Broadcasters nang Pilipinas) and other related institutions , shall encourage media outlets to launch a media campaign on adoption of healthy lifestyles, early warning signs and symptoms of cancer, cancer prevention and control, treatment and management, using all forms of traditional multimedia and social media. The media campaign shall maximize participation of advertising agencies in developing behavior change communication materials that would promote cancer information and encourage adoption of health lifestyles among the public. 8. Establishing National Cancer Screening Programs. Identifying cancer at the earliest possible stage means that treatment is less costly, cure is most likely, survival rates will increase and health outcomes will become more positive. We envision that creation and passage of this law will ensure that a diagnosis of cancer will no longer be akin to a a death sentence and that Filipinos will be able to fight and survive cancer just like citizens of other countries in Asia and the world. Increased survivorship and improved health outcomes for Filipinos with cancer will contribute to our countrys achievement of Sustainable Development Goal 3 (Reduce mortality from cancer by at least 30%) as well as the realization of our countrys health and development priorities. KALABANIN ANG KANSER TUNGO SA TUNAY NA KALAYAAN! CANCER COALITION PHILIPPINES PHILIPPINE CANCER SOCIETY PHILIPPINE SOCIETY OF ONCOLOGISTS I CAN SERVE FOUNDATION CANCER WARRIORS FOUNDATION CAREWELL COMMUNITY FOUNDATION PROJECT: BRAVE KIDS PHARMACEUTICAL AND HEALTHCARE ASSOCIATION OF THE PHILIPPINES  Ngelangel et al (2016). Philippine Costs in Oncology Study. https://www.facebook.com/CancerCoalitionPH/