Petition to Biogen Idec
Dear Biogen Company Please Gift Kiana Compassionate Use of Spinraza She Deserves Treatment
16-month old Kiana Ehsanifar is inflicted with Spinal Muscular Atrophy (SMA) type 2. The only medication that can save her life is Spinraza, a super expensive drug, which costs 750,000 USD! Kiana lives in Iran and Biogen company which markets Spinraza does not have any connection or contract with Iranian ministry of health at this moment. And the price of this drug is far far beyond anything Kiana's parents can possibly afford. Kiana's family are working hard to do whatever to save their little one but without this drug nothing they can do will save Kiana. There is a fundraising campaing currently ongoing: Telegram: https://t.me/joinchat/BlS8okb3suf5eQZMEIdBUw Kiana deserves to be given a chance to live more days and years, and to have a normal life. She deserve compassionate use of Spinraza. It's not fair that she loses the critical time for treatment at this young age. Kiana is in desperate need of this medicine while she still has time, please provide her the treatment before it is too late. Dear Biogen company, please gift Kiana some compassionate use of Spinraza or at lower prices before it is too late. Please support Kiana's family so that this little girl can start her treatment as soon as possible. No kid in this world deserves to be left to gradually or eventually die. Please help saving Kiana's life.
Petition to Joseph Lhota, Andrew Cuomo
Make New York City Accessible For Everyone.
This summer, I had emergency surgery on my knee. I was confined to a wheelchair and my summer in New York City was extremely hard to navigate - most specifically within the subway system. Only 85 out of 425 subway stations are accessible to those in wheelchairs. How can I have a normal day in the city, if I have to wheel down multiple blocks to get to a station that accommodates my condition? Although my injury is temporary, this is a permanent reality for many, many people - 100,000 people according to the 2016 census. I am disgusted with how neglected the disabled are and that the MTA continues to ignore their needs. Only thinking about it for a few minutes, I have already thought of a solution to help fund the building of more elevators - allowing an optional donation for accessibility when someone purchases a Metrocard. I can create solutions within a matter of minutes, yet the MTA has, for years, not found a solution to an issue that DISCRIMINATES against people. I've created this petition so that the MTA decision-makers can understand that the disabled are people too. Please help me, and your fellow New Yorkers, have an easier way to experience all that New York has to offer.
Petition to Facebook
Let's Stop Blood Shortages!
This petition was inspired by Holly Butcher, a 27 year old dying of cancer whose letter about life lessons went viral. Blood donations helped keep her alive an extra year, and one of her last requests called for people to become regular blood donors. Increased demand for blood transfusions is contributing to the nationwide blood shortage. Blood transfusions are utilized for organ transplants, heart surgeries, chemotherapy, and much more. The summer and winter holidays, flu season, and weather conditions contribute to a shortage of tens of thousands of blood donations each year. 4.5 million Americans would die each year without lifesaving blood transfusions. 60% of the U.S. population is eligible to donate- only 5% do on a yearly basis. What if there was a way to increase the number of blood donations? There is. Facebook has hundreds of millions of users in the United States alone. Facebook’s mission is to build an online community and bring the world closer together. Leveraging the social network to increase blood donations is one of the ways that we can tap into its potential to save millions of lives and bring the world closer together. Facebook already possesses technology that allows for a personalized advertising platform which targets audience location, age, and interests. It also possesses technology that allows users to mark themselves as safe during an emergency. I’m sure Facebook can employ these technologies to create a notification system when blood banks are experiencing a shortage. It’s honestly a simple idea: when blood supplies run low, hospitals and donation centers can notify Facebook users in the vicinity of a shortage. Users can then click on the notification and obtain more information about where to donate. The Chan-Zuckerberg Initiative’s mission is to support the science and technology that will make it possible to cure, prevent, and manage all diseases by the end of this century. Facebook already has the technology to save countless lives. Although it may take a few months to test and develop this notification system, it’s important that this system is implemented. This is not a feature that the world wants from Facebook. It’s a feature that the world needs from Facebook. Let our voices be heard and let’s work together for progress! Please sign and share!
Petition to Food and Drug Administration, United States Department of Health and Human Services, Jeff Shuren
Ban mercury dental fillings in children like the European Union did!
Dental amalgam – a filling material for cavities deceptively marketed as “silver” fillings – is about 50% mercury, a neurotoxin. As of 1 July 2018, the European Union has banned amalgam use in children under age 15, pregnant women, and breastfeeding mothers. In stark contrast, the U.S. Food and Drug Administration (FDA) has done nothing to protect these most vulnerable populations...or anyone else. In its amalgam rule, FDA concedes that this mercury product poses a risk for the unborn and young children: “The developing neurological systems in fetuses and young children may be more sensitive to the neurotoxic effects of mercury vapor.” FDA also admits that there is no scientific proof that amalgam is safe for these populations: “Very limited to no clinical information is available regarding long-term health outcomes in pregnant women and their developing fetuses, and children under the age of six, including infants who are breastfed.” But while the European Union is making sure its children get modern mercury-free fillings, FDA’s amalgam rule continues to promote using this toxic mercury product in American children. It's time for FDA to ban amalgam use in children under age 15, pregnant women, and breastfeeding mothers. All children deserve the same protection from mercury fillings as European children!
Petition to Home Depot
Home Depot: Stop selling deadly paint strippers
No family should lose a loved one because of deadly chemicals. But more than 60 families across the U.S. have lost loved ones to a dangerous chemical called methylene chloride. It’s found in paint strippers on the shelves of The Home Depot and other stores. Exposure can kill within minutes. Long-term exposure to methylene chloride has been linked to liver toxicity, liver cancer, and lung cancer. And another common paint stripper chemical called N-methylpyrrolidone (NMP) can have dangerous effects if women of childbearing age or pregnant women use it. The Environmental Protection Administration (EPA) has warned that just one day of exposure to NMP can cause miscarriage or fetal death. NMP is also linked to decreased birth weight and other fetal developmental effects. Last January, the EPA proposed banning methylene chloride and NMP in paint strippers, but the agency has yet to act. Since then, at least four more people have died from using paint strippers with methylene chloride. They left behind mothers, fathers, brothers, sisters, friends. This May, after more than 200,000 people signed petitions like this one to Lowe’s, that company committed to stop selling paint strippers with these dangerous chemicals by the end of 2018. But Lowe’s top competitor The Home Depot is still refusing to act. There’s just no good reason for retailers like The Home Depot to continue selling products containing these chemicals — especially when safer alternatives are readily available. If you agree that home improvement stores shouldn’t sell dangerous chemicals, please join us in calling on The Home Depot to ban the sale of toxic paint strippers now.
Petition to Dorothy Wellington
Be Extra Nice to People Challenge
Three years ago I started this petition, "Be Extra Nice to People" after one day of hearing so many painful stories from people while doing my errands. I had come across several people in dire, suffering conditions. Today, July 11, 2018, while at a bus stop near a hospital, there was a man who was slumped over and had just been released but had no money for the bus to get to his home. I reached in my purse and gave him the extra bus ticket I had. He was so grateful, I told him "You deserve to have a bus ticket to ride all day long wherever you need to go." What's amazing, the words I wrote below are still a voice of our current condition and I have repeated to offer you the "Be Extra Nice to People Challenge" We still have the poor with us, the sick and those suffering from chronic illnesses, people with hurts, pains and exhaustion, sorrow, hardships, losses, broken relationships and more. In addition there has been an increase in fears, worry and distrust in our political systems from Washington down to our local cities. There has always been differences in political views, policies and opinions, voting for opposing candidates, but never to the level of vivaciousness, cruelty and intolerance of each other that's happening across our Nation and on social media. Now, added to this, is the threats and fears of ISIS and Terrorists with murders and bombings in America and around the world. There is a deep loss of trust and respect for diversity of race, prejudice, backgrounds, politics, and gender differences because of radical religions, social and cultural beliefs. Three years ago God instructed me to challenge people to "Be Extra Nice to People" and start this petition. Wars do not end wars, Peace and Diplomacy end wars. Would you sign this petition and accept the Challenge to make efforts to "Be Extra Nice to People" as you drive your cars, meet people at your stores, schools, places of employment, be nice to your family and friends, everywhere you go "Be Extra Nice to People." Then, follow the same kindness and tolerance on the Internet and social media. Do not return evil comments with more evil comments. Do not give vivaciousness any support with more comments of hate and intolerance. Our Nation has suffered a great loss of trust, acceptance and of being One People. As diversity of race and backgrounds grew in our Country--instead of oneness, many people resorted to hatred and separation--"they are not a part of us." Those attitudes and beliefs are lies, truly, "We are One World One People created by the design of One God." If one person takes the Challenge of courage and commitment to "Be Extra Nice to People," and shares this petition with another person, soon we could have a collective mass being extra kind to our world of diversity. "Acts of kindness are based on Love and it is the most powerful energy in all the world." (Love is backed by God). www.dorothywellingtonministries.com
Petition to U.S. House of Representatives, U.S. Senate, New Hampshire State House, New Hampshire State Senate, New Hampshire Governor, The US Senate, Beth Bell, MD, Sylvia Burwell, Dr. Tom Frieden, Rima Khabbaz, Chris smith, Collin Peterson
Calling for a Congressional investigation of the CDC, IDSA and ALDF
We are experiencing a health crisis here in New Hampshire and across the country with the growing epidemic of Lyme disease. A number of legislators have personally been affected and have introduced legislation to address this problem. Here are just a few recent examples. Massachusetts Representative David Linsky: “The occurrence of Lyme disease has reached near epidemic proportions in Massachusetts. Virtually every family in Massachusetts has been affected by Lyme disease in some way. Lyme disease is a public health crisis in the Commonwealth.” Read more… Connecticut, Rhode Island, New York Senator Richard Blumenthal: "Today for me culminates more than a decade of work and probably a decade more, because I've seen firsthand the devastating, absolutely unacceptable damage done by Lyme disease to individual human beings, Connecticut children and residents whose lives have been changed forever as a result of Lyme disease” Read more…. New Jersey, Pennsylvania Congressman Chris Smith: "It seems everywhere I go, someone comes up to me to talk about how Lyme disease has severely impacted their lives or someone they know," Read more… Virginia Virginia Governor’s Task Force Chair Michael P Farris, Esq: "Doctors here in Virginia are committing malpractice by saying the ELISA test is sufficient." Read more… Texas Sen. Harris says he was severely affected by the disease, but “got a lucky break.” His doctor, constrained by a disciplinary board that limited antibiotic use for tick-borne illness to 1 month or less, arranged for 17 physicians to take turns writing prescriptions for Sen. Harris’s treatment. Read more… Two HoustonTexas physicians tested their chronically ill patients for Lyme disease via CDC Western blot criteria finding all patients positive for the infection in a state where the prevalence of Lyme infected ticks is only about 1-2%. “No history of bull’s-eye rash or illness following tick bite was reported by these patients.” The CDC defines “Lyme disease” exclusively as a zoonotic illness. Congenital and gestational transfer cases have been disregarded for reasons not evident to us”. Read more… Congenital Transmission of Lyme: 28 Peer-Reviewed Studies After spending four years on this subject the following statement from a physician on the front lines treating the late stage Lyme epidemic for a quarter century rings true: “In the fullness of time, the mainstream handling of chronic Lyme disease will be viewed as one of the most shameful episodes in the history of medicine because elements of academic medicine, elements of government and virtually the entire insurance industry have colluded to deny a disease.” We have studies proving persistent infection after antibiotic treatment for mice, dogs, ponies, monkeys, cows, iris biopsy, and ligamentous tissue but if you perform a simple Yahoo search for the following statement, “There is no convincing scientific evidence that chronic Lyme exists” you will find the top search results are connected to “elements of academic medicine” involved in the denial of the late stage Lyme epidemic. Persistent Lyme infection: 273 Peer-Reviewed Studies Circular reasoning: "Suppress all evidence and then proclaim there is no evidence" “One way to stop an epidemic is to redefine it by narrowing the disease's diagnostic criteria so tightly that it's hard for any chronically ill Lyme patient to fit the profile and obtain insurance reimbursement.” Read more… The following CDC letter (Dec 1996) addressed to former Senator Alfonse D’Amato promising to inform the medical community that the CDC’s Lyme case definition was created for reporting purposes only and not intended for clinical diagnosis is yet another failure on the part of the CDC to follow up on their responsibilities. Countless numbers of Lyme patients have been denied treatment and insurance reimbursement as a result of the restrictive case definition. Read more… Jan 2004 testimony from Paul Mead, M.D., M.P.H. Medical Epidemiologist from the CDC’s Division of Vector-Borne Infectious Diseases: “No surveillance case definition is 100% accurate. There will always be some patients with Lyme disease whose illness does not meet the national surveillance case definition.” Read more… Seronegativity in Lyme borreliosis: 103 Peer-Reviewed Studies There has been a combined effort on the part of the CDC, IDSA and ALDF to use the media for propagating the Lyme disease disinformation campaign following Chomsky's propaganda model. They have used Medscape, Family Practice News, The New England Journal of Medicine, The Lancet Infectious Diseases and now The American Heart Association to spread the disinformation. This deliberate campaign is aimed at purposely confusing our medical community to keep case numbers artificially low by omitting the late stage of the disease entirely as there is absolutely no medical training whatsoever for the later stages of this disease (Willful Ignorance) so patients are often ping ponged though the medical community for years or decades before obtaining a late stage Lyme diagnosis. Nine Steps to Deny an Epidemic on a National Level 101 Letter to the editor of Clinical Infectious Diseases questioning the validity of Dr Alan Steere’s research. Read more…. Letter to the editor of Clinical Infectious Diseases questioning the validity of Dr Gary Wormser’s research. Read more…. Dr Alan MacDonald’s letter to the editor of Clinical Infectious Diseases questioning the reality of the abstract by Lantos, Auwaerter, and Wormser: Read more….. Agenda-driven bias: “People with these types of agendas may be more likely to abuse meta-analysis due to personal bias” NEJM editor: “No longer possible to believe much of clinical research published” When “evidence based medicine” has been spun to fit bias agendas and the patient voice has been intentionally ignored who investigates the dishonest science? Email message sent to the editors of the publications listed above announcing this petition. Read more… It’s all about the VACCINE It has become blatantly obvious that the CDC will go to great lengths to insure that Lyme disease remains within its narrow definition in order to fit the vaccine model. Chronic Lyme does not fit any vaccine model. The CDC has long known about the virulence and persistence of this spirochete focusing on a vaccine as the cure-all to this world wide epidemic. The late stage/chronic Lyme community has become collateral damage for a vaccine market in the course of a government sponsored initiative as Baxter’s phase III clinical trials are underway. The CDC has aligned itself with institutions/researchers with a bias against persistent infection and has misused its authority by inappropriately allotting government funds to Mass General Hospital (Dr Alan Steere) and New York Medical College (Dr Gary Wormser) as identified in the following communications. Read more…. The Principle Investigators of the two previous Lyme vaccines: Allen C. Steere for SmithKlineBeecham's LymeRix and Gary Wormser for Connaught's vaccine (which never made it to market) have conceptualized a disease that would enable vaccine development. The one-size-fits-all Lyme treatment guideline (lead author: Gary Wormser) matches the conceptualized disease. A preventive vaccine for Lyme disease would not satisfy the FDA if a chronic persistent infection and seronegative disease exist. Post-treatment Lyme disease syndrome is simply a fabricated medical condition disguising treatment failure. Seronegativity in Lyme borreliosis: 103 Peer-Reviewed Studies It remains questionable that a Lyme disease vaccine is practical for an infection that produces a lack of immunological memory (unlike Measles, Mumps etc.) so the Wormser study fabricating a six year strain-specific immunity makes perfect sense for the marketing/acceptance of such vaccine as identified in a letter to Editor in Chief, Ferric C. Fang, M.D. Infection and Immunity. Read more… The producers of the documentary, “Under Our Skin,” submitted a Freedom of Information Act (FOIA) request to investigate possible conflicts-of-interest of three Centers for Disease Control (CDC) employees who control public health policy for Lyme disease. (Barbara Johnson, Paul Mead and David Dennis) That request was finally fulfilled (May 2012) from the Department of Health and Human Services (five years later!). The information received is highly redacted with approximately half the information cut. What does the CDC know about Lyme disease that requires hiding from the public? The Centers for Disease Control has betrayed the public trust. For more on the FOIA see Poughkeepsie Journal article # 1 article # 2 By Mary Beth Pfeiffer Mary Beth Pfeiffer of the Poughkeepsie Journal highlighted the worst conflicts of interests between federal officials and a core group of researchers receiving government grants in the “ties that bind” page. Read more… Who is responsible for the “highly pathogenic” clone of the Lyme disease bacteria, (Borrelia burgdorferi) found in Europe and North America as reported by the journal Emerging Infectious Diseases? Read more… The following list establishes who knew what and when identifying their contribution to the disinformation campaign aimed at denying persistent Borrelia infection. When subpoenas are issued CDC officials cannot claim conflicts of scheduling issues and must attend to testify under oath regarding the mishandling of Lyme disease. Congressional Investigation Subpoena List 1. CDC Officials DAVID DENNIS (1) (2) (3), C. Ben Beard, Barbara Johnson (1), Paul Mead (1), Joseph Breen Former NIH Lyme Program Officers Phillip Baker, Edward McSweegan (1)(2) 2. IDSA Lyme Treatment Guideline Authors (1) (2) (3) (4) Gary P Wormser (1), Raymond J. Dattwyler (1), Eugene D. Shapiro, John J Halperin (1), Allen C. Steere (1), Mark S Klempner (1), Peter J. Krause, Johan S. Bakken, Franc Strle, Gerold Stanek, Linda Bockenstedt (1), Durland Fish (1) (2), J. Stephen Dumler, Robert B. Nadelman Academic Medicine Paul Auwaerter, Arthur Weinstein (1) 3. The American Lyme Disease Foundation Phillip Baker, (1) (2) Executive Director Please call your legislator and respectfully urge immediate action from the U.S. Senate and U.S. House of Representatives to fully investigate the facts surrounding the failures of leadership and management deficiencies by requesting a Congressional investigation of the CDC, IDSA and ALDF (Find your Senator) (Find your Representative) Yolanda Foster on Lyme disease, one of the "Real Housewives of Beverly Hills” Dr Alan MacDonald on Alzheimer's and Lyme disease, “The Biology of Lyme Disease: An Expert's Perspective” Remarks: World Wide Lyme Rally & Protest Kenneth B. Liegner, M.D. Lyme disease testing flaws and conflicts of interests The Barry Marshall affect on chronic disease Inconvenient truths Bullying of Lyme patients List of abbreviations CDC: Centers for Disease ControlIDSA: Infectious Disease Society of AmericaALDF: American Lyme Disease Foundation Carl TuttleHudson, NH03051 Website: New Hampshire Lyme Misdiagnosis Letter to the Editor, The Lancet Infectious Diseases Published May 2012 The Tuttle family was featured on New Hampshire Chronicle’s “Living with Lyme” with the program archived on their site in six small segments for viewing on the computer Part 1, Part 2, Part 3, Part 4, Part 5, Part 6
Petition to East Hanover Land Planning Board, Carolyn Jandoli, Frank Demaio Jr., Michael Martorelli, Brian Brokaw Sr.
Join in solidarity to prevent the construction of an infringing industrial development.
Please consider visiting the GoFundMe for this project and contributing towards the legal fund. Any amount helps!Please also visit this link for a recap of the previous town hall meetings.PROJECT UPDATE: The plan has now been updated to contain one 6,000 sqft warehouse and 7 townhouses of dubious nature (that may exist only to incentivize the rezoning and may never be built). We the undersigned OPPOSE the zoning proposal to convert 8 Merry Lane, an existing Residential area, into a proposed Industrial zone. The plan is to build a huge industrial warehouse 20,000 sqft (UPDATE: Now 6,000 sqft warehouse and "7 townhouses") in the heart of the residential area. We believe this is a clear circumvention of established Spot Zoning laws for the following, blatantly adverse reasons: We believe the 8 Merry Lane industrial use application is not in the best interest of the General Welfare of the public. It's contradictory to the intent of the Master Plan - whose goal it is to designate and preserve this area as a residential zone. This application will negatively affect the quality of life for the families and residents living in this and adjacent residential zones. The granting of this proposed use would be arbitrary and capricious. Please do not grant a special privilege to allow industrial use on 8 Merry Lane in East Hanover. If it happens to us, it could happen to you too. Exercise your rights as law-abiding homeowners and display your opposition.