9 supporters are talking about petitions related to Autistic Mental Health!
Even though my niece and I knew her son has autism, he desperately needed a diagnosis which was rejected all through primary school. He was 13 before he got the help he needed
It is so important to be assessed to receive the correct diagnosis in order to access the correct support. For self understanding and improving mental health. It helps you understand why you have certain difficulties, access resources like psychological therapy, jib accommodations and connect with supportive communities. Also helps your family and friends understand too.
After 40 years of being misdiagnosed by NHS Grampian, I finally thought I had the opportunity to be understood and get the accommodations I so desperately need (but am only allowed with an nhs diagnosis) . But no. 1.5 years before even a 'triage' appointment then another at least 2 years until the assessment even begin?! I thought that was bad enough. Now NOTHING! This is sheer cruelty. What other disability would NHS Grampian treat like this?!
This unit only has funding for 4h a week, which is why the waiting list is years long.
There's a demand for this service as the only other option is to go private as far as I'm aware . I've read many times that Grampian won't recognise private diagnoses and the only way to be treated if you have gone private is to buy a private prescription.
Instead of closing the service, it would be better to increase the number of hours funded so people are able to seek a diagnosis, be treated/supported to live a better quality of life
I am living with a partner who has suspected ADHD, he is has been struggling for years with crippling mind paralysis, we can’t get any help (meds or financial) without a diagnosis, we’ve been waiting 2 years. We have discussed getting a private diagnosis, but our surgery says we can’t get we can’t get meds through NHS unless he is assessed by the NHS. there is no Right To Choose option in Scotland and we can’t afford ongoing meds privately. The situation has left him feeling suicidal, with the service completely withdrawn next month we have no hope.
For countless years we have been plagued by mass misunderstanding, negligence and discrimination. Our Government (the ones we elect to protect our needs) are once again dismissing our basic rights as beings on this earth - to be understood and helped.
We struggle in a society battling social/professional “norms” that consistently dismiss our needs for a disability we are born with.
One of the only ways we can be given some sense of support is by being diagnosed. The statistics speak for themselves and I don’t know how anyone can dismiss this issue.
It’s disgusting.
These kinds of self-referral pathways are critical for high masking individuals. Sometimes, they are testing the waters before seeking full help with what has been a long and interesting life, IF they made it past suicide. Private referral systems are often beyond their financial means. Ask me how I know. Grateful Scotland has both NIH, AND this pathway to diagnosis service. Please don't cut it. Reorganize? Maybe. But not cutting it outright.