Help for those with severe Crohns Disease and Ulcerative Colitis

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Crohn's Disease is a type of inflammatory bowel disease (IBD) which affects parts of the digestive system. It is a lifelong disease with no cure.

My partner suffers with Crohn's Disease. She was diagnosed with the disease in 2014 after many tests and scans. She had to undergo an emergency 8 hour operation to remove part of the infected bowel.

4 years on she still suffers with the pains and the inflammations. She is currently taking codeine to manage the pain via a repeated prescription which we pay for. She also regularly has to take sickness medication to prevent sickness.

On average she goes to the toilet 15 times per day, this can increase to over 22 times on a bad day. She is sick the majority of the times, struggles to keep food down and even fluids.

Her and many other people in the same situation receive no help from the government, we are not entitled to blue badge parking after going through applications, she is unable to work because of the issues she faces on a daily basis. When she did work before her previous employer publicly shamed her for having to use the toilet so much, so she has experienced some discrimination. However it is not classed as a disability.

I know Crohn's varies in everyone who has it, some have a mild case of it and some a severe case.

I believe there should be some help provided to those that suffer severely with it, some form of benefits, a blue badge so we can easily park and access a toilet, the availability to get free prescriptions. 

Crohn's can affect absolutely anyone and it is a debilitating long term illnesses and requires constant medical attention. It can make daily activities almost impossible to do. Some people cannot leave the house for days and looking after your children is difficult when you are in pain and constantly going to the toilet.

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