Babies born alive at 22 weeks should be offered life saving measures in all level 3 NICU
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Here at AutumnsLaw17 We are now Campaigning for more permanent changes in the U.K on live preterm births at 22 weeks of gestation for Babies to be given life saving measures as a national standard practice with parents Consent And for them to be given the full discussion to discuss their options Beforehand if their child is born alive and breathing and for health professional not to withhold this vital information that parents do have rights under the new guidelines they came into effect back in October 2019 Although changes have been made with are campaigning the last two and half years we are still unfortunately seeing parents bein told it’s still 24 weeks around the country at many hospitals and their not given parents all of the information and opportunity to discuss their options for their babies or transfer them to a hospital that will help and unfortunately if we don’t get to these parents to help advocate with them and for them and their babies they are sadly bein left to die in their parents arms like we experienced with autumn as they are only offering cuddle comfort and given parents the worse case. This simply isn’t good enough and parents shouldn’t still be having To fight For their child In 2020 this should be standard practice in all level 3 NICU units in the U.K.
She was a human bein she was another life she had rights and so did we as her parents but they were taken away from us and decided for us that night, not that we didn't try because believe you me we did but were told NO there is nothing we can do she's not 24 weeks and repeatedly got told about how small she'd be how under developed she might be, not have fully formed ears just holes or her nose might not be formed properly to name a few, how very disabled she'd be if they tryed , told us not to believe everything you read when presented by myself with other baby's the same age helped.
You put your trust in a health professional to look after you when your expecting a baby to guide you even more so when you find out you have a high risk pregnancy and I was already high risk due to having only one functioning kidney, well the truth is they did nothing as what was discussed anti natal wise they didn't keep a eye on me and my unborn baby with those promised regularly 2-4 week checks. The care just wasent there from the start , I felt I wasn't advised or supported with anything properly apart from to carry on as normal it's basically out of my hands and there's , but I should of been advised a lot of things and had those promised regular checks on me and my unborn baby at the time. And just maybe I wouldn't of gone into early labour if I'd of been advised and those checks had of took place who's to say I'm wrong it's very debatable.
That night I went into labour we asked them to help but nothing , but to then find out weeks later a hospital do and have taken babies at 23 weeks is unforgivable which autumn was 1 day off that at birth the grey area 22+6 and we only got offered cuddle comfort. Its beyond words as parents to find out we did have the right to ask for a neonatal team standing by,we did have the right to ask them to intervene weather they would of is a different thing but we had that right for that to happen but weren't given that opportunity based on incorrect gestational age of our baby they were out by 4 days which again I did question during my pregnancy numerous times, no one listened as a scan machine knows best. I'm not saying our daughter would of survived regardless or lived to tell the tail her self what I'm saying is we and her had that opportunity taken from us by bein Miss informed and having opportunity to discuss ignored. I didn't question my dates that night who dose in labour you never really here a midwife say she's 22 plus 5 or 27 plus 3 it's 22 or 27 weeks I only questioned it afterwards when saw on my labour sheet the mistake in gestation age even that was out by a day their own date given at our 12 week dating scan so what other mistakes can be made???.. many can and have in our case.
All I want to do as a mum and us as a family is put that right and get justice for her and any other familys that this may happen to they need to know they have a right to ask for a team to be near by ask for intervention and have rights and make sure all information is correct and you receive the care needed, be your own advocate and contests if your told NO.
This just can't keep happening and Ultimately things need to change. Some hospitals will and some won’t intervene under 24 weeks this should be fluent throughout the country and not a postcode lottery on our babies lives , regardless of what statistics say our babies aren’t a statistic each baby is a individual and even with help if that chance is slim no one knows for sure how a baby born between 22+ weeks is going to respond as each baby journey is different.
I'm always going to wonder about the what ifs now I will take this to my grave but if our story can help and people learn from it the health professionals do what they should of done that night regarding our right and input to decide and be more open and fluent with these discussions about what's best and what the parents want , as we do have a say as parents our input is just as important if not more important the two people who created that life then who knows how many babies and there family's may have a chance at the outcome of their situation potentially being very different from ours, no one has a crystal ball no one can predict if our child that night may or may not survived based on other babies shes not other babies she had a 35% chance of survival that’s better then none more so being born alive and showing signs of life and with help how different things could have been, if she of had that chance and everything wasent decided for us and her , based on mistakes made and lack of communication, bad opinions clinical errors, withheld information and being shut down and they did try as, that’s what we wanted for her a chance to live it was her human right we would of said do everything you can for her if she comes out breathing alive which she did , but because of all this we will never know now what the outcome would of been for her and us that's a hard pill to swallow don’t let that be you and you’re child.
Setting the record straight on a few things concerning our child and myself our preg
1. Our baby was actually 22+6 when I delivered Her
Not the date written down in my notes that was wrong
2. She was actually born breathing and fighting to survive for those 2 hours
3. No one came that night to see us or her from neonatal to discuss what was best
4. We weren't given the option if she came out breathing do you want us to do everything we can if so
5. The decision was made for us based on incorrect dates of gestation by days
5. Guidelines are just guidelines if you do your research this somewhat differs from one hospital to another at what age they resuscitate incubate at preterm baby but each case is also ment to be assessed individual was ours no
6. They've taken many babies born at 23 weeks and other places around uk have taken baby's from 22 +5 and give them a chance .
Why not her? ....
7.lack of anti natal care and support no regular checks during my pregnancy no healthcare plan no advice given concerning my condition
8. Her weight was wrong
9. She was healthy during the pregnancy
10.No ones blaming them for murdering our child as someone put but the facts are as above the situation is bigger then it seems
11. I could of been brutally honest about all of this and said a lot worse then I have but I won't .. things will get done properly
12. You can't help one baby born alive at a certain gestation when mother goes into labour and not another it's wrong to say so unless deemed absolutely necessary and should be fluent throughout the country.
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