Access to medicinal marijuana for Ehlers-Danlos Syndrome & Hypermobility Spectrum Disorder
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Ehlers-Danlos Syndrome and Hyper-mobility Spectrum disorder, two 'invisible illnesses' that have only just begun to be recognised across the globe. It took a total of 12 years for me to be diagnosed after being known to consultants and health care professionals for a number of years and in February 2016 I was finally told that I had EDS type 3 and would be chronically ill for the rest of my life.
It is an illness which affects the connective tissues in your body and can either have no symptoms whatsoever or cause those that have it to be wheelchair or bed bound. I am lucky enough to still be able to walk however chronic pain and fatigue along with a number of other symptoms still have a massive effect on my life. After connecting with people all across the globe with the same condition, finding that next to none find relief through all the painkillers and medications we are trialled on I believe we should have access to any alternative options which could be of benefit.
On many EDS forums I have found that many with access to medical marijuana praise the effects of it with coping with this illness however in the UK it is only provided to those with MS in the form of Savitex. Furthermore due to the psychological impact of this illness many suffers also lead lives with anxiety, depression, serious sleep disorders and again medicinal marijuana has been highlighted as something which has great benefits for all of these. I would like the UK government to seriously discuss the unavailability of this as a medical treatment when it is known to have such amazing outcomes. I would love to live a more so painless life along with many others.
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