Treat my daughter and other Irlen sufferers on the NHS

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My 13 year old daughter Edie suffers with Irlen Syndrome - a condition that affects how her brain processes the things she sees. It makes words move around on the page when she’s reading and makes her very sensitive to natural light meaning she can’t go outside for long. She needs special coloured lenses to help her live a normal life - but the NHS won’t fund it.

Edie was also previously diagnosed with dyslexia in 2017. Children with dyslexia are entitled to certain support throughout their education - but because Irlens is not recognised by the NHS there is no mandatory support and everything has to be funded by parents.

Her school has tried to be accommodating. They have provided her with filtered overlays that she puts over books to help her read, and they give her exams on rose-tinted paper. But this is not a long-term solution. The price of special glasses is around £400 and this is not something we can currently afford.

Irlens UK say as much as 15% of people could be affected by the syndrome. This means that there are many children across the country just like my Edie who need support and probably aren’t getting it.

My daughter is now in year 8 and really struggling, and I’m worried about her future and whether we’ll be able to afford new lenses for her every year. That’s why it’s so important for us and families like ours that the NHS recognises Irlen syndrome and provides us support.

Please sign my petition telling the NHS to support Edie and children like her.