The government of India should provide free treatment for kids suffering from SMA

The government of India should provide free treatment for kids suffering from SMA

Started
1 April 2022
Petition to
Indian Medical Association (Indian Medical Association)
Signatures: 22Next Goal: 25
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Why this petition matters

Started by Naveen K P

Respected Sir,

The request is very simple.

There are more than 3,00,000 kids in India who are suffering from a rare and fatal genetical condition called Spinal muscular atrophy (SMA). The cure for this is apparently a gene therapy medication called Onasemnogene abeparvovec sold under the name of Zolgensma.
The cost of this drug is so high that it is not affordable for roughly 98% of people living on the planet.
Considering the fact that a lot of research and development have been done into the production of this drug, the huge cost of this medication can be duly justified.
So my request is that it should be the responsibility of each Nation, in my case India, to make sure that this drug is made available for anyone who needs it.
We are talking about two year old kids for crying out loud.
They are the future of our country and they definitely deserve a chance to live. The reason why I am initiating this petition is because I have been seeing countless people raising various crowd-funding campaigns to amass money for kids with such condition and I really appreciate it if our Medical Association can do something about it. Because, on the long run, crowd-funding is not going to be a viable solution since more than 3,00,000 kids in India alone are suffering and they need your help.
I request everyone to sign and share this petition as much as possible.

I really hope this won't go unnoticed.

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Signatures: 22Next Goal: 25
Support now

Decision-Makers

  • Indian Medical AssociationIndian Medical Association