A new chief of the Viral Diseases Branch of the Centers for Disease Control and Prevention provides an opportunity for that government agency to change the direction of ME/CFS research. Yet, they need to know what changes are needed. On Dec. 6, PANDORA sent a letter to Dr. Elizabeth Unger who is now heading up ME/CFS research for the CDC. The letter contains solid and strong recommendations that are based in a consensus of patient organizations, experts in the field of ME/CFS and advocates. Also, at the CDC Stakeholder's meeting on April 2009, these same solid and strong recommendations were made.
This letter included the signatures of ten other patient organizations:
The Vermont CFIDS Association, Inc.
CFS Knowledge Center
Rocky Mountain CFS/ME & FM Association
Massachusetts CFIDS/ME & FM Association
Mothers Against Myalgic Encephalomyelitis
CFS/FMS Organization of Georgia, Inc.
CFS Solutions of West Michigan
Wisconsin ME/CFS Association, Inc.
Medical Professionals with ME
The Connecticut CFIDS & FM Association, Inc.
It also included the signatures from noted patient advocates, such as Robert Miller, Heidi Bauer, Jill Justiss and Jim, Billie and Eric Moore.
Now it is your turn. If you agree that the CDC needs to make the changes listed in the letter, sign this petition. Each signature results in an e-mail being sent to Dr. Unger’s bosses, urging them to direct her to implement the changes:
Stephan Monroe, Ph.D., Director of the Division of High Consequence Pathogens and Pathology
Beth Bell, M.D., M.P.H., Director of the National Center for Emerging Zoonotic Infectious Diseases
Rima Khabbaz, M.D., Deputy Director for Infectious Diseases
Ileana Arias, Ph.D., Principal Deputy Director for the CDC
Thomas Frieden, M.D., M.P.H., Director for the Centers for Disease Control and Prevention
Also, an e-mail will be sent to:
Dinah Bembo, Assistant to the Assistant Secretary of Health