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Struggling an incurable disease is a severe challenge for everybody with no exceptions. Every single day of Saiera Iusufi is a persistent fight with Multiple sclerosis (MS) that brought her into a wheelchair. The efforts require both time and tremendous resilience just not to lose the wealth of health and, consequently, life.

Saiera’s every day is daily routine fight for the life. The goal is to survive until the remedy is invented.

She keeps struggling but, alas, her vital strength is not infinite. Since much power is given to defend the rights for help and protection of her family. She needs an access to the remedy which absence will inevitably lead to the premature death.  The Convention on the Rights of Persons with Disabilities, adopted by the United Nations General Assembly, contains provisions aimed at protecting and fulfilling the rights of persons with disabilities.

 

In any society, people with disabilities belong to the most vulnerable social group and experience great difficulties because they remain outside the social environment. Even in the most prosperous countries, where human rights are strictly observed, the rights of persons with disabilities are observed in the last place and according to the so-called “residual principle”.

 

Article 11 of the Convention on the Rights of Persons with Disabilities states: "States Parties shall take, in accordance with their obligations under international law... all necessary measures to ensure the protection and safety of persons with disabilities in situations of risk... including humanitarian emergencies."

 

Sweden was among the first states to ratify the Convention on the Rights of Persons with Disabilities, thereby demonstrating to the world community its readiness to stand up for the rights of persons with disabilities.  Which does not prevent Sweden from deporting a disabled woman, a wheelchair user SAIERA IUSUFI, from the country. SAIERA suffers from multiple sclerosis.

 

A large and very close-knit SAIERA family lives in Sweden - mother, stepfather, half-sisters and brother. They take care of her and help her fight a terminal illness. Due to medical error serious illness was not recognized at the initial stage and now she is a wheelchair user. There is no cure for multiple sclerosis, but there is Rituximab therapy that stops the progression of the disease.

Rituximab is not available in Russia. There are biosimilars but their use does not guarantee the desired effect.

 

During her absence from Russia, SAIERA's social pension was taken away without notification and she was deprived of the status of a life-long invalid without explanation. How long can a person live without a life-saving medicine, without proper treatment, care and social assistance?

How long can a sick person survive without a livelihood and totally alone?

 

The Swedish Migration Court wastes time on such experiments on a disabled person when the result is obvious - no, it is not possible for such person to survive.

 

Now Sweden, country that signed the Convention on the Rights of Persons with Disabilities, is deporting a helpless wheelchair user into the hands of the Russian totalitarian regime. The Migration Court explains this inhuman act as "there are no grounds for providing protection and asylum."

 

What is the reason for such an inhumane act, when it is obvious that upon returning to Russia, SAIERA IUSUFI will face a premature death? There is open discrimination against a woman and a disabled person, which is unacceptable in modern society, where humanism and equality are the essential conditions for any civilized society.

 

Disabled people are deprived of opportunities that allow them to be independent. And this means that they are completely dependent on the generosity and mercy of many, many people.