Stop the Stigma: Support People with Parkinson’s Facing Discrimination


Stop the Stigma: Support People with Parkinson’s Facing Discrimination
The Issue
My name is Banita Khanal, and I am an advocate for people living with Parkinson’s disease in Nepal. In 2025, I was selected for the Impact Leadership program at Kanthari Institute in Kerala, India — a place I believed stood for empowerment, inclusion, and leadership for change.
After arriving on campus, I shared my story candidly as someone living with Parkinson’s. Instead of being met with empathy, I was called by leadership and asked to leave the program without the chance to explain or continue. I was pressured into signing a document declaring I was “emotionally and mentally unfit” to participate, and my deposit of INR 1,00,000 has not been refunded.
Since returning to Nepal, I have felt socially isolated and unsupported by the institution and community that once welcomed me.
This experience is more than personal—it highlights a systemic failure to support and respect people with chronic neurological conditions. It’s not just about me, it’s about fairness, dignity, and inclusion.
I ask Kanthari Institute to:
- Offer a formal written apology and correct the record regarding my dismissal
- Refund my security deposit of INR 1,00,000
- Commit to training their staff and fellows about Parkinson’s and similar chronic illnesses.
Now, I call on global Parkinson’s and disability rights groups — and concerned individuals — to stand in solidarity.
By signing this petition, you affirm that people with Parkinson’s deserve dignity, opportunity, and respect. Together, we can challenge stigma and demand systemic change.
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The Issue
My name is Banita Khanal, and I am an advocate for people living with Parkinson’s disease in Nepal. In 2025, I was selected for the Impact Leadership program at Kanthari Institute in Kerala, India — a place I believed stood for empowerment, inclusion, and leadership for change.
After arriving on campus, I shared my story candidly as someone living with Parkinson’s. Instead of being met with empathy, I was called by leadership and asked to leave the program without the chance to explain or continue. I was pressured into signing a document declaring I was “emotionally and mentally unfit” to participate, and my deposit of INR 1,00,000 has not been refunded.
Since returning to Nepal, I have felt socially isolated and unsupported by the institution and community that once welcomed me.
This experience is more than personal—it highlights a systemic failure to support and respect people with chronic neurological conditions. It’s not just about me, it’s about fairness, dignity, and inclusion.
I ask Kanthari Institute to:
- Offer a formal written apology and correct the record regarding my dismissal
- Refund my security deposit of INR 1,00,000
- Commit to training their staff and fellows about Parkinson’s and similar chronic illnesses.
Now, I call on global Parkinson’s and disability rights groups — and concerned individuals — to stand in solidarity.
By signing this petition, you affirm that people with Parkinson’s deserve dignity, opportunity, and respect. Together, we can challenge stigma and demand systemic change.
7
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Petition created on June 24, 2025