Hi Everyone!

I want to let you know that this petition is getting to our senators! I spoke to a senator's office this week and YES they have been reading our comments. I read every comment also. Sometimes, I share the comments with Wesley.

As I begin to reach out to our regulators, I wanted to let them know as well as mail order pharmacies know what and who they hold in their hands. This is the purpose of this video. Please share! 

Here is my plea to mail order pharmacy, the insurance companies, and insurance regulators. 

"I have a most important note for the pharmacist who are packaging these medications and who are overseeing the packages of medications during transport. And for those of you doing it right, Thank you.  

For those of you who work to regulate pharmacies, who work at a mail order pharmacy, or who ship lifesaving medications on the back of hot and freezing delivery trucks, or at the insurance company where there is even a plan allowed to not choose the safest option of picking up medications at the pharmacy at which it is filled, when you see a package of medications getting ready to go out the door, you may only see a bottle of medications. Usually an orange bottle with a white lid or a bubble mailer.

When I look at the bottle of medications in a package for my son, I see glimpses of my son's life like the moments of the house filled laughter as he plays with his sisters, the rough housing with his Dad, the warm gentle feel of his hug, his cute dimples when he smiles, his big blue eyes that melts his moms heart, and the hopes of many more days to come. I hear my sons first words, the sounds of his feet running down the hall, his I love you's, and his dreams and aspirations. There is nothing in this life that could ever mean more. See, we were given a second chance by a little 3 year old girl who donated her life at the worst of times, we know how fragile life can be.

When I see my son's medications shipped to me like this, I feel fear, panic, sadness, insecurity, mistrust, and of course anger. I see him screaming in pain at the hospital, I see him terrified as the transport (air flight team) is walking into the hospital room because there isn't a nurse on the floor who can find his viens to insert an IV because the last one blew again, I see the doctor telling me that my son will either have to have the harsher chemo drugs that can hurt his life or else he will most certainly lose his liver and another may not be available. I see him back on the ventilator, and me begging God to please just don't let me lose him. Please don't let me lose him. I am begging you, please don't let me lose him.  

Now, This is how my son's liver transplant medications have been sent to me not once but twice in only a bubble mailer on hot days. Both times his liver labs were elevated afterwards. We are forced to use only mail order for his life saving drugs, and many others are also.

I am sharing this with you today to beg you, to please, with each medication that you work with, please think of someone you love or have loved. Someone that going a day without them would be gut wrenching to the point that you have no clue how you could even breathe without them in your life.

Then, for each life saving drug that you send please picture that drug being the life of the loved one that you just pictured. Then, send the package out the door with that same amount of care. Ensuring that the temperatures do not go outside of the storage guidelines proven safe by the manufacturer. Please don't make us risk his life! Don't make others risk theirs.

Thank you!