What we have tried...
1.We submitted hundreds of FOIs to NHS England, the Integrated Care Boards and all trusts in England. We clarified the national picture.
2.We unsuccessfully appealed to the Information Commissioners Office and General Regulatory Chamber for access to information held by NHSE.
3. We were granted a meeting with the NHSE CHD Clinical Reference Group.
4. We've repeatedly written to the CHD networks, national and local MVPs, cardiac charities, media outlets and investigative journalists.
5. We started our online petition and social media pages in early 2024. We were referenced repeatedly in the Tiny Tickers publication in November 2025 on the fetal cardiac view retention issue. Tiny Tickers were the first organisation to openly address the inconsistency in trust practice.
6. The complaints process with our trust has been exhausted and our Health Ombudsman investigation continues 3 years later.
We are just regular parents advocating for Molly and other CHD families. We are hopeful the Health Ombudsman will ultimately publish something meaningful. Our goal remains consistency and transparency in national pregnancy screening.
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