We didn't do this for social media likes, views or recognition. We have limited anything that can identify us or Molly. We felt we had a duty to start this campaign based on our experience and the significant anomaly in our hospital records. We've done this to try and help other children. We have invested alot.
It was clear to us at the beginning; no records = no initial reference point for cardiologists, no future learning, no improvements to screening practices, no accountability and no public confidence in process. Not keeping records appears to be convenient for some NHS Trusts - but this clearly isn't in the best interests of our babies during pregnancy screening.
We have thrown all we can at this since February 2024 to try and influence change. We have taken a step back in the hope others will step up in the coming months. We understand our campaign has actually made a difference and that we have influenced meaningful work around this issue which is ongoing. More will be published by others later this year and we have put our faith in those that have told us this. Time will tell.
Thank you to all those that shared the petition and that have helped us raise awareness.
Molly's parents