
Until 4 years ago I had never heard of Dystonia and didn’t realise that there were so many different types of Dystonia and how many are living with this rare condition. I was diagnosed 25 years ago with RRMS and that was difficult to accept and live with. I started blinking excessively a few years ago and never thought anything about it. When it started to affect my eating, swallowing, speaking we paid probably to see a neurologist. As soon as I sat down he said that I have Meige syndrome. All the months waiting prior to seeing him I was being treated with anxiety and depression. After being given lots of different antidepressants I finally got my diagnosis for this horrible condition that affects me every day. Trying to live with 2 neurologist conditions has been a challenge and still is!