A Letter explaining how Trish feels 

Pain started when I was 42, [13 years]             In that 13 years I’ve had one day without pain.

There is nothing the doctors can do, it’s not curable.
 If I had cancer people would be more considerate and understanding 
Cancer can sometimes be cured if caught soon enough, Dystonia can’t.

I put this mask on everyday making out I’m ok and pain not too bad

But Everyday tasks are getting harder and it’s harder to coverup how I feel

All  I get is:
Leave it, it doesn’t need doing
Don’t do it
Stop stressing 

This is why I have written it down, so hopefully one day you might understand. 

My pain and other people are controlling my life and I want the power back, the only way I can find to do this Is to make it my decision when and how I die.

Sorry for being boring crying and keeping you from doing what  you want but most of the time you don’t see the tears or know what this pain feels like. I feel a burden and insignificant and don’t want to be anymore!