I have learnt a lot over the last 7 years!
I have learnt I have an incurable condition that I have lived with for most of my life, but it has suddenly got a lot worse it has also caused me to have chronic migraine for 3 years now.
I have realised you only need a few friends that are there in the good and bad times!
My family and extended family are amazing and have supported me all the way!
My husband deserves a medal �! 
I can’t cook, walk far, I fall over a lot, it’s normal to walk into things, I bite my cheeks every night when I’m asleep, I lose my balance, I don’t have a bath or shower on my own, my mental health has really hit rock bottom as my life has changed so much.
I hurt every day and have no energy to do anything and the Doctors think this is acceptable as there is not enough people to put more research in!
But one thing is for sure, I will fight all the way as this will not beat me however hard it tries and it tries very hard at times!

I help run a Facebook group for people with Dystonia called Dystonia Support Group U.K. 
All the photos above  are photos from our group on Facebook Dystonia Support Group U.K.