Why are people with Dystonia not on the vulnerable list? 
This may seem irrelevant now but it really isn’t! 
People on the Vulnerable list can get a 4th vaccine this Autumn, WE CAN’T! Unless we are over 75! 

Neurological disorders were on the vulnerable list but Dystonia wasn’t despite 10,000 people been affected in the U.K. It feels like we don’t matter, it should have been at neurologist’s or GP’s discretion to decide. If the Dystonia is mild, you maybe didn’t need to be on the list, but if you have severe Dystonia and it affects your neck and throat and torso we should have been. We were let down! 
I personally kept safe for over 2 years but had Covid just over 4 weeks ago. I ended up in hospital very poorly and still can’t swallow properly! Therefore I am currently on a liquid diet. 
During Covid, we have been let down and we also don’t qualify for the anti viral medication. 
WHY HAVE WE BEEN LET DOWN?