Raise Funds for Research and Treatment of Rare Childhood Illnesses and Diseases

Recent signers:
Duncan Charman and 19 others have signed recently.

The Issue

Tragedy struck when a close friend's family member, a child brimming with potential, was taken too soon due to an untreatable illness. This devastating experience has painfully highlighted the reality of rare and incurable diseases affecting children worldwide. Too many families are left helpless in the face of these daunting diagnoses. It is time for a change.

We believe every child deserves the chance to live a full, healthy life, which is why we are urgently calling to raise funds for research and treatment of rare childhood illnesses and diseases.

Financial resources for these particular medical anomalies are severely lacking. The National Institutes of Health (NIH) dedicates only an estimated 10% of its budget to rare diseases research, despite there being over 7,000 known rare diseases (NIH, Global Genes). This number should be increased to meet the proportion of those affected. Specific diagnoses often go overlooked due to their low incidence, yet collectively, these diseases affect nearly 10% of the U.S. population (NIH).

Moreover, children are commonly affected, atlas of science stated that 50% of those afflicted are children, with 30% not living to see their 5th birthday. This horrifying statistic underscores the urgency of increasing funding for research and treatment.

By signing this petition, we implore authorities and foundations to allocate greater resources to research, development of treatments, and support for children and their families battling rare and untreatable diseases. In remembrance of our loved ones lost and in solidarity with those currently struggling, we request you to join this cause. Please sign this petition today - because it is real, it is happening, and your voice matters.

avatar of the starter
Tia PatelPetition Starter

73

Recent signers:
Duncan Charman and 19 others have signed recently.

The Issue

Tragedy struck when a close friend's family member, a child brimming with potential, was taken too soon due to an untreatable illness. This devastating experience has painfully highlighted the reality of rare and incurable diseases affecting children worldwide. Too many families are left helpless in the face of these daunting diagnoses. It is time for a change.

We believe every child deserves the chance to live a full, healthy life, which is why we are urgently calling to raise funds for research and treatment of rare childhood illnesses and diseases.

Financial resources for these particular medical anomalies are severely lacking. The National Institutes of Health (NIH) dedicates only an estimated 10% of its budget to rare diseases research, despite there being over 7,000 known rare diseases (NIH, Global Genes). This number should be increased to meet the proportion of those affected. Specific diagnoses often go overlooked due to their low incidence, yet collectively, these diseases affect nearly 10% of the U.S. population (NIH).

Moreover, children are commonly affected, atlas of science stated that 50% of those afflicted are children, with 30% not living to see their 5th birthday. This horrifying statistic underscores the urgency of increasing funding for research and treatment.

By signing this petition, we implore authorities and foundations to allocate greater resources to research, development of treatments, and support for children and their families battling rare and untreatable diseases. In remembrance of our loved ones lost and in solidarity with those currently struggling, we request you to join this cause. Please sign this petition today - because it is real, it is happening, and your voice matters.

avatar of the starter
Tia PatelPetition Starter

The Decision Makers

Action medical research for children
Action medical research for children
https://action.org.uk/

Petition Updates