We the undersigned are calling on you to commence research into stem cell treatment and patient clinical trials for Cystic Fibrosis.

The Issue

Please sign our petition to give HOPE and potentially new therapies to the 10,000 people living with Cystic Fibrosis (CF) in the UK.

Stem cell treatment for CF is currently not available in the UK because research and patient clinical trials have not yet begun.

The following statistics from the CF Trust are horrific and unacceptable. We’re talking about REAL PEOPLE with their own lives, families and friends, NOT just numbers – something needs to change!!!

  • 2 people with CF die every week
  • 1 in 3 die whilst on the transplant list 
  • Average age of survival is just 41

Director of Research at the CF Trust, Dr Janet Allen’s statement on 5th February 2015 in relation to stem cell  treatment in the news:

“Stem cell therapies hold enormous promise for the future.  However, at the moment, the work is still at an experimental stage and is not available as routine.  It is very important that any claims for success are properly evaluated and subject to critical review by independent experts.  Stem cell therapies need to be scrutinised as rigorously as any new treatment for cystic fibrosis.”

http://cftrust.blogspot.co.uk/2015/02/three-parent-babies-and-stem-cells.html

We truly believe research and clinical trials in Adult Stem Cell Research for CF is worthy of high level research. To this end, please sign this petition and share it with your family and friends to bring HOPE to all those with CF.

Let the future begin today!!

 Roisin & Anntoinette

 

This petition had 5,015 supporters

The Issue

Please sign our petition to give HOPE and potentially new therapies to the 10,000 people living with Cystic Fibrosis (CF) in the UK.

Stem cell treatment for CF is currently not available in the UK because research and patient clinical trials have not yet begun.

The following statistics from the CF Trust are horrific and unacceptable. We’re talking about REAL PEOPLE with their own lives, families and friends, NOT just numbers – something needs to change!!!

  • 2 people with CF die every week
  • 1 in 3 die whilst on the transplant list 
  • Average age of survival is just 41

Director of Research at the CF Trust, Dr Janet Allen’s statement on 5th February 2015 in relation to stem cell  treatment in the news:

“Stem cell therapies hold enormous promise for the future.  However, at the moment, the work is still at an experimental stage and is not available as routine.  It is very important that any claims for success are properly evaluated and subject to critical review by independent experts.  Stem cell therapies need to be scrutinised as rigorously as any new treatment for cystic fibrosis.”

http://cftrust.blogspot.co.uk/2015/02/three-parent-babies-and-stem-cells.html

We truly believe research and clinical trials in Adult Stem Cell Research for CF is worthy of high level research. To this end, please sign this petition and share it with your family and friends to bring HOPE to all those with CF.

Let the future begin today!!

 Roisin & Anntoinette

 

The Decision Makers

Professor Sir John Savill
Professor Sir John Savill
Chief Executive and Deputy Chair of the Medical Research Council
Dr Janet Allen
Dr Janet Allen
Director of Research Cystic Fibrosis Trust

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