Dear All,

We are urgently rallying for your support once more.

Epileptic children are standing at the precipice of time, desperately needing our MPs to take decisive action and extend their helping hand.

Just yesterday, I was on BBC Breakfast News alongside my dear friend, Alice Salisbury, whose son endured a staggering 800 seizures each day. Their lifeline was a private prescription for cannabis, which mercifully reduced those agonizing seizures to only a few. Yet, this lifeline came at an exorbitant cost to their family. Tragically, many more families under the support of the Medcan Family Foundation find themselves unable to access these vital medicines, whether privately or through the NHS.

Consider Carly, a mother who is also a full-time caregiver to her beloved Esme. She could never afford a private prescription, even if it were accessible. Now, her daughter is on the palliative pathway, having exhausted every avenue the NHS has to offer. Esme wears a heart monitor at night due to the looming threat of sudden unexpected death in epilepsy (SUDEP). These children teeter on the precipice of life and death, while a potential lifeline remains sadly out of reach, trapped by failing policy and guidance.

On the 14th of November, these brave children and countless others from the #savetheunicorn campaign will converge upon Parliament to meet with ministers and share their heart-wrenching stories. We implore as many MPs as possible to attend this pivotal event, for it addresses an issue of paramount importance that must echo through government.

I have personally called on the Prime Minister to intervene, to collaborate with us in finding a resolution to this dire situation.

We ask you to take a moment and use the link provided below. In just a few clicks, you can send an email to your MP, urging them to attend our crucial event.

https://medcan-foundation.emailyourmp.uk/

Thank you, 

Love
Hannah & Alfie
Click here to view the full BBC interview