Please continue to support us in our relentless pursuit of justice for these innocent lives. Your voice can make the difference. Contact your MP now using the convenient link and help us ensure that no more children like Esme pictured above suffer needlessly.

https://medcan-foundation.emailyourmp.uk/

The hope was that the change in the law would unleash a new era, where unlicensed advanced cannabis medicines would be freely prescribed by specialist doctors, offering a lifeline to children battling treatment-resistant epilepsy.

Yet, the stark reality paints a different picture: less than a handful of NHS patients have been granted access to this medicine, leaving countless others with a grim choice—empty their pockets for private treatment or watch their children suffer.

The government's stance is clear: safety must be established beyond doubt before considering a broader rollout.

In the midst of this bureaucratic quagmire stands Carly Ashton, a mother who finds herself in a heart-wrenching predicament. She can't secure an NHS prescription, nor can she afford the costly private alternative. Her precious two-and-a-half-year-old daughter, Esme, bears the burden of an exceedingly rare form of epilepsy, a condition affecting a mere 700 children across the globe. Esme's life has become a ceaseless cycle of 15 different medications, leaving her in a perpetual state of sedation and the introduction of further medication to combat the side effects. The dire warning Carly has received echoes in her mind daily — a single uncontrolled seizure could snatch Esme away without warning.

Each night, Esme dons a heart monitor, a fragile defence against the spectre of sudden unexpected death in epilepsy, as this week alone saw her endure over a hundred seizures in one night, cruelly interrupting her sleep.

In a world where a simple, safe treatment exists, the notion that any child's life could be needlessly curtailed is simply unthinkable.

Thank you, 
Hannah & Alfie xx