Prevent the restriction of autism diagnosis within the NHS

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BBC news reported on 27th May 2017 that the NHS is being pressured to restrict the number of autism diagnoses, initially in the London areas, although the fear is this may set a precedent for other NHS areas.

You can view the full story HERE

While it is true that autism diagnoses have increased dramatically in recent years, it is not true that these children do not have autism. The proposed plans state 'only the worst cases to be diagnosed' (according to the BBC) as a cost saving measure for that particular NHS area. However, if this does indeed become practise in ANY area, it is clear to assume that other NHS localities could follow suit. 

If children are being diagnosed autistic, THEY ARE AUTISTIC and you cannot simply deny this fact by NOT diagnosing them. 

This proposed plan is outrageous and must be stopped before it can gain any further momentum.

I have two children diagnosed with autism. My middle son as a child was violent, angry, had severe sensory issues, did not understand social situations well and was prone to spinning and self injurious behaviour. However, he was at a mainstream school where he could control his behaviour long enough until he got home where he would 'explode'. Thankfully our local Child and Adolescent Mental Health Service agreed there was a problem and after assessment he was diagnosed with Asperger's. This diagnosis paved the way for CAMHS support, extra support throughout his schooling and out of school activities and for us to find agencies that were able to educate and support us as parents. He is now social, attending university and coping extremely well, something I believe would not have happened were it not for his initial diagnosis. 

M youngest son also exhibited autistic behaviours similar, and slightly more pronounced than my middle son, and was also diagnosed with Autistic Spectrum Disorder by CAMHS. This has led to him being able to remain in a mainstream school with extra 1:1 support and again, like my middle child, has opened doors for access to education and other services (NHS and charitable) that he would not have qualified for without his diagnosis. 

I believe however, that neither of my children would be classed as 'the worst of cases' and without the support they and us received, I doubt very much they would be thriving as they are today.

This is the reality of many children and parents of high functioning autism, the ones that are in mainstream schools, that are not classed as severe, that outsiders may not even realise are autistic, but for those living with them day in day out, KNOW the struggles they go through and how hard life is for them.


To say they should not be diagnosed is outrageous and this proposed plan must be stopped before it can gain any further momentum.





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